Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustration Has Led To New Paranoia And Strictness...


healinginprogress

Recommended Posts

healinginprogress Enthusiast

Well, I've been gluten-free for just over two weeks with very little sign of improvement, if any. In fact, at times things have been worse, though I know some of that can be chalked up to withdrawal.

My most recent bout of bloated, crampy, gassy gluten-ness, however, has really upset me. I've been resisting certain changes...like getting a new toaster oven and pots and pans, and going dairy-free as well. But I am SOOOO sick of feeling like this, and need to figure out what is causing it!!! I like to cook sort of fancy and I've also been enjoying some of the gluten-free treats from the bakery, so regardless of keeping a food diary, it's been pretty much impossible to pinpoint the glutening culprit.

But tonight, all of a sudden, I went hyper-celiac. I started feeling like everything I touch has gluten in it!! That part has calmed down a bit, but my "paranoia" is definitely in high gear...but this is probably a GOOD thing! I packed up all my gluten-free breads and put them in the freezer, to be enjoyed only when I can afford to get a new toaster oven. I cleaned out the microwave. I vowed to give up dairy (at least for now) and to eat simple things so that I can more easily tell what is making me sick. I also vowed to be more careful about kissing my boyfriend, and handling the dog food and dog licking. Until I can buy new pots and pans, I will only eat what I can cook in the microwave or in the oven with some tin foil on a baking sheet/pan.

**QUESTION, THOUGH: Do I have to get NEW pots and pans, or can I clean one or two of the ones I already have really well and dedicate them to gluten-free only???

Problem is, I'm sort of feeling like a freak....like a germ-phobe almost, you know? Okay, not that germ-phobes are freaks, that's not what I mean...I've dealt with mental health my whole life, I think I'm just too worried about other people perceiving me as a paranoid freak. But I guess I should stop worrying about what other people MIGHT think, and just worry about getting well.

It really is just a whole new world...and not my favorite, to say the least :P Wish me luck...elimination diet it is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I cleaned my pots and pans-they are stainless steel. Are your pots and pans stainless or non-stick?

I also kept my toaster oven and just cleaned it real good and the rack the bread sits on is washable so that should be OK. My house went gluten free so the toaster oven is not used for gluten anymore and it hasn't made anyone sick yet, that I know of.

I think some people who live with gluten eaters wash the rack or put foil on it and they have been fine.

I guess I'm trying to save you from buying a new toaster oven. But if that is what you need to do, by all means do it.

I think for sure the dog and your partner could be glutening you. If you took care of those two things you will probably feel better.

Also, your secondary intolerances might be showing up so you are right to think about elimination diet. Soy was the biggest one for me. Nightshades, corn, you probably know them.

Good luck, I know it isn't easy. It isn't what I wanted to do, but I sure feel better for doing it.

I'm glad you went Hyper-Celiac today. You probably needed to.

I have my days too!

healinginprogress Enthusiast

LOL thank you, you're right, I probably needed it! And thank you for trying to save me from buying a new toaster oven...I've had this one for ages and cook so many things in it. My SO hasn't gone gluten-free, so I guess that's where my concern was. I cleaned it out, but could probably do a better job, and I was rinsing the rack every time before I used it, in case he'd used it in between.

So crumbs that happen to fall on the bottom of the oven (not the rack) won't gluten me??

And I have non-stick pans, nothing fancy/expensive, so pretty much all of them are scratched. I just read that they can harbor gluten if they're scratched...and so can wooden spoons and plastic cookware. yayyyyyyyyyyy (sarcasm LOL)

I'm really hoping I don't have many secondary intolerances...and if dairy is one of them, I hope it is temporary! Soy and corn would be sucky ones, too.

BUT best to find out. Feeling better will be soooooooooooo nice, I can hardly even imagine it, to be honest. Thank you so much for the advice, and for the encouragement :)

GFinDC Veteran

Just get one nice stainless steel pan with a lid, and you can do most anything in it. Non-stick pans are not good for you anyway, the coating flakes off and gets in your food and is not healthy. Or go to a thrift store or hardware store and get a nice cast iron pan. Just clean it real well and dedicate it to gluten-free forever.

A simple diet is easier to understand and interpret the effects on you. You can always add things but do it slowly one item at a time and not more frequently than every 3 days to a week.

Roda Rising Star

Off the subject but in another topic you mentioned you had several prescription medications that had gluten in them. Did you ever replace them with gluten free ones?

healinginprogress Enthusiast

Off the subject but in another topic you mentioned you had several prescription medications that had gluten in them. Did you ever replace them with gluten free ones?

I went to my pharmacy yesterday and they were pretty useless, but then I went to a more celiac-aware pharmacy and he investigated all my meds. He said none of them have gluten YAYYYYYY! But three of them do have lactose. I have my hydrogen breath test on wednesday, and I'm starting dairy free (aside from the meds) today, so we'll see whether I need to change them or if the lactose won't be a problem.

healinginprogress Enthusiast

Woke up with a headache and feeling nauseous, though...not a pleasant start.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.