Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again By So Called "gluten Free"


GFreeMO

Recommended Posts

GFreeMO Proficient

A few hours ago for lunch, I made myself a plain burger. I ate that with Heinz ketchup. I know this is safe as I have eaten it a million times. I usually eat Lays plain Stax but since reading Frito Lays gluten free list, I decided to try Lays Classic plain chips. With in an hour of eating the chips, I got my normal reaction, short of breath, flushed face, extreme bloating and D.

I suspect that Frito Lays has a huge CC issue going on. It just makes me furious that some companies claim products to be gluten free and then we get really sick.

Makes me want to eat nothing processed. I could have cut up potato and fried them in some oil and made my own chips and I wouldnt be feeling so badly right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

A few hours ago for lunch, I made myself a plain burger. I ate that with Heinz ketchup. I know this is safe as I have eaten it a million times. I usually eat Lays plain Stax but since reading Frito Lays gluten free list, I decided to try Lays Classic plain chips. With in an hour of eating the chips, I got my normal reaction, short of breath, flushed face, extreme bloating and D.

I suspect that Frito Lays has a huge CC issue going on. It just makes me furious that some companies claim products to be gluten free and then we get really sick.

Makes me want to eat nothing processed. I could have cut up potato and fried them in some oil and made my own chips and I wouldnt be feeling so badly right now.

You know, I have been wondering about Lay's chips. They are the one thing I "sneak" from time to time. I eat NO OTHER PACKAGED FOODS!! and I,too get flushed face, scratchy throat and short of breath!! OMG!! I have wondered what was messing with me!! Maybe that's it for me, too ...WOW.... Thanks for posting this!! It's been a mystery....I feel like an idiot.

I am so Sorry you feel so bad :(

Monklady123 Collaborator

You know, I have been wondering about Lay's chips. They are the one thing I "sneak" from time to time. I eat NO OTHER PACKAGED FOODS!! and I,too get flushed face, throat scratchy and short of breath!! OMG!! I have wondered what was messing with me!! Maybe that's it for me, too ...WOW.... Thanks for posting this!! It's been a mystery....I feel like an idiot.

I am so Sorry you feel so bad :(

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

IrishHeart Veteran

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

BUT the Lay's bag says "Gluten Free" too!! so much for that!! I'll try the Utz..Hubby says we should eat Cape Cod brand as we KNOW that's all they make at their factory ...thanks!

IrishHeart Veteran

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

Since we are on the topic of gluten-free foods "are they/aren't they?"....I WAS eating Oscar Meyer cold cuts. Supposedly gluten-free/CF/SF, so THEY say...but felt "spacey" --one of my "tells" -- after eating it so I stopped.

Are Oscar Meyer deli cuts in the package "safe"..??would you happen to know??

Lisa Mentor

The term "gluten free" is not yet a legal standard in the US. All labeling gluten free labeling is voluntary. Most companies do not test, to claim a "gluten free" status, or at least under the 20ppm suggested as a standard.

What I have seen and most likely will see more of in the future is companies claiming "no gluten ingredients". That will relieve them of any cross contamination claims, nor the obligation to test.

It's not perfect, BUT...WE'VE COME A LOOONG WAY BABY! B)

IrishHeart Veteran

The term "gluten free" is not yet a legal standard in the US. All labeling gluten free labeling is voluntary. Most companies do not test, to claim a "gluten free" status, or at least under the 20ppm suggested as a standard.

What I have seen and most likely will see more of in the future is companies claiming "no gluten ingredients". That will relieve them of any cross contamination claims, nor the obligation to test.

It's not perfect, BUT...WE'VE COME A LOOONG WAY BABY! B)

Hi Lisa,

No gluten ingredients would be a lot clearer!! I am aware of this <20 ppm thing (and I agree with you that this country is waaaay behind other countries in this regulation) but I was HOPING...foolishly...that a company's word was good. It's not. I have been burned many times. Oh well.

I think a product made in a "dedicated" gluten-free factory is about as good as it gets.

I am lucky! We have a totally gluten-free bakery/restaurant near us. Only place I feel safe to eat!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I just want to add that many of us have a wide spectrum of sensitivity. Some people can be ill from a product that contains no gluten ingredients (due to cross contact), whereas some have eaten the same product for years without issues.

Many times its trial and error and individualized. It doesn't necessarily mean that a particular product is not safe for others :)

GFreeMO Proficient

Ive never heard of Utz chips. I don't think they have them in my part of the country. (Missouri) Anyone know where I can find them?

Lisa Mentor

Ive never heard of Utz chips. I don't think they have them in my part of the country. (Missouri) Anyone know where I can find them?

Open Original Shared Link

Open Original Shared Link

GFreeMO Proficient

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

I have been eating the plain Lays Stax for 2 years before I tried these Lays Classic chips today and never had a problem with them. They are made on dedicated equipment in a whole other country. Mexico

Back to Stax for me. Live and learn I guess. Celiac makes you want to stick with tried and true brands and never veer from them.

Lisa Mentor

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

I have been eating the plain Lays Stax for 2 years before I tried these Lays Classic chips today and never had a problem with them. They are made on dedicated equipment in a whole other country. Mexico

Back to Stax for me. Live and learn I guess. Celiac makes you want to stick with tried and true brands and never veer from them.

Well then, live a little....ALL flavored STAX are gluten free. Branch out for the BBQ! :P

IrishHeart Veteran

Well then, live a little....ALL flavored STAX are gluten free. Branch out for the BBQ! :P

I think I am just "super-sensitive" right now :P I seem to do all right with Cape Cod chips...but, that's ALL they make in their factory...anyway, thanks for your thoughts! Appreciate it!

Robert16 Newbie

I give CAPE COD CHIP a-plus also they are great only snack i get to.

sa1937 Community Regular

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

Utz chips are made in Hanover, PA, which probably explains why that brand is so readily available in grocery stores around here (south central PA).

GlutenFreeManna Rising Star

I am super sensitive to cc and I eat Wavy Lays all the time without problems, BUT I don't consider them a "gluten free product" I consider them to be something with no gluten ingredients added. Because of that difference in my mind, I wouldn't be too surprised if someday I had a reaction to eating them. When I think of "gluten free products" I think of products that are actively marketed as gluten free, meaning it's printed in BIG letters on the front (not the tiny note under the ingredients) and they advertise as gluten free, are made in a dedicated gluten-free facility or have an endorsement from a gluten-free organization. I know it sucks that a main stream product with no gluten ingredients added cannot be trusted, but I'm much more dissappointed when a company makes bold gluten-free claims and then fails to make a 100% safe product.

I hope you recover quickly from your glutening.

lovegrov Collaborator

Since we are on the topic of gluten-free foods "are they/aren't they?"....I WAS eating Oscar Meyer cold cuts. Supposedly gluten-free/CF/SF, so THEY say...but felt "spacey" --one of my "tells" -- after eating it so I stopped.

Are Oscar Meyer deli cuts in the package "safe"..??would you happen to know??

They are. Kraft will clearly list any gluten so just rad the ingredients, and I don't think any of their cold cuts have gluten.

richard

T.H. Community Regular

Kraft will clearly list any gluten so just rad the ingredients, and I don't think any of their cold cuts have gluten.

But they still fall into that category of 'no gluten ingredients' rather than 'gluten free and actually testing our products to prove it,' unfortunately.

tea-and-crumpets Explorer

I was actually looking at the Lays list today, since I wanted to try the Tostios scoops chips. They say specifically that Lays Classic are gluten free AND that they have tested to less than 20 ppm.

Open Original Shared Link

Is this new? I don't remember anything beyond Stax being tested before. If it is new, maybe you got a batch from before?

Actually, looking at it again it says the list was updated on February 21, 2011.

GFreeMO Proficient

I was actually looking at the Lays list today, since I wanted to try the Tostios scoops chips. They say specifically that Lays Classic are gluten free AND that they have tested to less than 20 ppm.

Open Original Shared Link

Is this new? I don't remember anything beyond Stax being tested before. If it is new, maybe you got a batch from before?

Actually, looking at it again it says the list was updated on February 21, 2011.

I may have had the older non tested ones b/c the date on my bag was March 8th. I think that they have a shelf life of several months. at any rate, I wont be eating them again. I emailed Frito Lay and they told me that the Stax were still the only chips produced on dedicated equipment.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,676
    • Most Online (within 30 mins)
      7,748

    AW1851
    Newest Member
    AW1851
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.