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What's The Biopsy Like?

Kailynsmom

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Kailynsmom Apprentice
Kailynsmom
Posted

Hey, I was just wondering what to expect post biopsy? Recovery? Pain? Diet?

Also, anybody in Atlanta GA use Children's Digestive HEalth Care (at CHOA- scottish rite)- we use Dr. Cohen, but I've heard there is another dr that specialized in toddler celiac disease not far from him. I'm thinking about switching dr.s if she's dx.

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lovegrov Collaborator
lovegrov
Posted

My experience was grogginess for a little while but no pain other than a very slight sore throat.

richard

flagbabyds Collaborator
flagbabyds
Posted

It is one of the best surgeryies you can have because there is really no pain and really no big recovery. All of mine I have just been a little sleepy afterwards because of the anesthesia but it get better the next day because they surgery is so short they don't need to use much of it. You might have a sore throat for a couple of hours to like 2 days, but it really isn't that bad.

VydorScope Proficient
VydorScope
Posted
Hey, I was just wondering what to expect post biopsy? Recovery? Pain? Diet?

Also, anybody in Atlanta GA use Children's Digestive HEalth Care (at CHOA- scottish rite)- we use Dr. Cohen, but I've heard there is another dr that specialized in toddler celiac disease not far from him. I'm thinking about switching dr.s if she's dx.

My toddler son (22 months... I think :) ), and I , have both had the biposy, and its realy nothing to it. He might have a sore throat and be a little groggy afterwards, but thats about it.

celiac3270 Collaborator
celiac3270
Posted

No big deal...I've had it done twice. Don't worry about it ;):)

lisabp Newbie
lisabp
Posted

My son (20 months old) had his biopsy one month ago. I was worried too and it indeed was nothing. Since he didn't have any appetite keeping him from eating was not a big task. The worst part was waiting to go into surgery and THEN having the IV in his hand after was driving him crazy. Have whatever clear liquids your daughter likes best ready after and I had a Wiggles movie and DVD player handy too. That settled him right down. Hold off on dairy for a few hours. I ended up giving tylenol right after the procedure and then one more dose. His voice was horse for about a day. A week after (gluten free) his attitude was totally better and now one month after he is eating like crazy and has 2 teeth coming in! The gals at daycare call him "the happiest baby in the world" and he really is. The biospy is the start of something great becauss then you can go gluten free and never look back. :D

JacobsMom Contributor
JacobsMom
Posted

Jacob was alittle over 2 when he had the biopsy..and I worried for NOTHING...The longest part of the procedure was waiting to get him in....He was groggy afterwards but did just fine...It was alitt funny to be honest...He wanted to get up and was like a DRUNK...

You have nothing to worry about at all!!!

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  • 2 weeks later...
momofaceliacdaughter Newbie
momofaceliacdaughter
Posted
Hey, I was just wondering what to expect post biopsy? Recovery? Pain? Diet?

Also, anybody in Atlanta GA use Children's Digestive HEalth Care (at CHOA- scottish rite)- we use Dr. Cohen, but I've heard there is another dr that specialized in toddler celiac disease not far from him. I'm thinking about switching dr.s if she's dx.

<{POST_SNAPBACK}>

hi my daughter just had the biopsy done. i know it is scary but she was asleep and her throat hurt a little after it for a day or so. they put her out through her iv. she was in the recovery room just until she could drink and go to the bathroom. she had no pain and her diet didnt change much just clear liquids for 24 hours

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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