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How Long To Try Gluten Free?

kimtn

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kimtn Newbie
kimtn
Posted

Hi Everyone!

My daughter has sensory processing difficulties and some signs of allergies so I am trying gluten-free with her. She just turned four. How long should I try a gluten free diet? The doctor said 2 weeks but that just doesn't seem long enough to me.

Thanks for your help!

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Mizzo Enthusiast
Mizzo
Posted

I saw some improvement pretty good improvemnets in 2 weeks(severe stomach aches gone), but 3 months was really the true marker for US.( no more digestive issues, behaviour back to near normal )

Everyone is different sorry to say. But really, for only 2 wks, you will be questioning yourself if it was truly the diet or did you catch a lucky 2 wks.

txplowgirl Enthusiast
txplowgirl
Posted

A good 2 to 3 months being really strict.

kimtn Newbie
kimtn
Posted
  • Author

Thanks. We are almost at three weeks and I don't think there's been any improvement, but I'm definitely willing to try for 2-3 months.

Kimmik95 Rookie
Kimmik95
Posted

I would doubt you would notice much in 2 weeks, especially if her symptoms are mild.

Hi Everyone!

My daughter has sensory processing difficulties and some signs of allergies so I am trying gluten-free with her. She just turned four. How long should I try a gluten free diet? The doctor said 2 weeks but that just doesn't seem long enough to me.

Thanks for your help!

Kelleybean Enthusiast
Kelleybean
Posted

We are going to give it 4 months (my son is autistic). Our logic is that we wanted to give it long enough to know for sure and that it is easiest for us now while he is young - our son is 2 - since we have more control over his diet. I've read that it can take several months for gluten to leave your system.

Norris Rookie
Norris
Posted

My daughter's villi were so damaged that she did not have a pain-free day for five months on the gluten free diet. We were told that pathology said her villi were completely flattened to the point that her small intestine interior walls looked smooth- no visible villi upon examination.

Gluten free gets easier as you go along and learn the ropes. When in doubt, call drug and food companies to double check that their product is gluten free.

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kimtn Newbie
kimtn
Posted
  • Author

I just don't know if I'm making the right decision by trying this food trial. My husband isn't totally on board but what I say goes! He wonders if her symptoms warrant this kind of trial. What do you guys think? Her symptoms are sensory processing disorder, apraxia, aggressive, she's been sick all winter (but then again, so has my son!), dark circles under her eyes, frequent BMs -- sometimes randomly loose with lots of gas, fatigues more easily than used to but she's also pretty capable of high energy play. Her weight and height are normal although her hair doesn't really grow -- not sure if that indicates anything. I'm not saying she has celiac but maybe a sensitivity? She's 4. What do you think?

Dixiebell Contributor
Dixiebell
Posted

Have you had her vitamin and mineral levels checked? Low levels can cause many problems.

kimtn Newbie
kimtn
Posted
  • Author

I haven't....which ones should i test?

Dixiebell Contributor
Dixiebell
Posted

A,E,D,K,B12, Calcium, Potassium, Iron and Folic acid. There might be more.

Anya Apprentice
Anya
Posted

I just don't know if I'm making the right decision by trying this food trial. My husband isn't totally on board but what I say goes! He wonders if her symptoms warrant this kind of trial. What do you guys think? Her symptoms are sensory processing disorder, apraxia, aggressive, she's been sick all winter (but then again, so has my son!), dark circles under her eyes, frequent BMs -- sometimes randomly loose with lots of gas, fatigues more easily than used to but she's also pretty capable of high energy play. Her weight and height are normal although her hair doesn't really grow -- not sure if that indicates anything. I'm not saying she has celiac but maybe a sensitivity? She's 4. What do you think?

Did you consider going dairy free as well? I just know a lot of cases where the dairy is also a big issue.

Gardening Apprentice
Gardening
Posted

Also check zinc levels. I do think the symptoms warrant a trial. OT helped my daughter's SPD quite a bit, but even when she "graduated", she couldn't stand dress-up clothes. Yet several months after being truly gluten-free (she needed a clean-out to reboot her system), she was able to prance around the house in princess dresses.

tarnalberry Community Regular
tarnalberry
Posted

Two weeks isn't enough time to make sure that everything she gets into her mouth is completely gluten free. It's about enough time to realize that you can't share a toaster, or wooden cutting boards, or wooden spoons. Enough time to realize that playdoh has wheat and can cause a problem, and that the toys at preschool are all covered in crumbs from snack time goldfish.

Two to three months is a better way to go, so you can find all of those hidden sources, remove them, and THEN have at least a month or two on the gluten free diet.

kimtn Newbie
kimtn
Posted
  • Author

oh gosh, how could i ask her to stop playing with the playdough at school? she's having a very rough time at school but i think she's improved a good bit in her home life. how many "crumbs" of gluten would cause a problem?

tarnalberry Community Regular
tarnalberry
Posted

you can get/make gluten free playdoh and ask the school to use that instead.

it takes a VERY small amount of gluten to cause a reaction, and if she plays with playdoh, and then puts her hands in her mouth (or gets crumbs from elsewhere), she is getting contaminated and her body isn't ever getting a real chance to heal.

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

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      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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