Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had My Endoscopy Today...

salexander421

Recommended Posts

salexander421 Enthusiast
salexander421
Posted

I had my endoscopy today after undergoing a 3 month gluten challenge. My celiac panel was negative but doctor still wanted to do endoscopy to confirm negative blood work. He said that there was gastritis and apparently I have a hernia somewhere causing indigestion (I found that interesting since I don't experience indigestion when gluten free). He said that he didn't see anything that made him suspect celiac but that I would need to wait on the biopsy which should be back in 7 days. I guess my only question would be about the gastritis. Is it common to see gastritis but have a negative biopsy? Would gastritis maybe point more towards non celiac gluten intolerance? Of course he prescribed prevacid which I have no intentions of taking, I'm gluten free again starting right now :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MsCurious Enthusiast
MsCurious
Posted

I had my endoscopy today after undergoing a 3 month gluten challenge. My celiac panel was negative but doctor still wanted to do endoscopy to confirm negative blood work. He said that there was gastritis and apparently I have a hernia somewhere causing indigestion (I found that interesting since I don't experience indigestion when gluten free). He said that he didn't see anything that made him suspect celiac but that I would need to wait on the biopsy which should be back in 7 days. I guess my only question would be about the gastritis. Is it common to see gastritis but have a negative biopsy? Would gastritis maybe point more towards non celiac gluten intolerance? Of course he prescribed prevacid which I have no intentions of taking, I'm gluten free again starting right now :)

Congrats on having the biopsy hurdle behind you! And good luck with the results. Happy for you that you can go gluten-free again starting now! :)

salexander421 Enthusiast
salexander421
Posted
  • Author

Congrats on having the biopsy hurdle behind you! And good luck with the results. Happy for you that you can go gluten-free again starting now! :)

Thank you :) I'm so glad to have this all behind me! The next week will be challenging anticipating the results but I do feel that I already have my answer as far as how it affects me so I feel good no matter what the outcome is.

shopgirl Contributor
shopgirl
Posted

There's no way for the doctor to see Celiac damage with the naked eye unless it's the really extreme complete villous atrophy.

But, either way, congratulations! You don't have to worry about eating gluten again. (Well, you do have to worry about eating but you don't have to actually eat it.)

sa1937 Community Regular
sa1937
Posted

I had both gastritis and duodenitis (inflammation) show up on my EGD so I don't think it's all that uncommon. I was surprised since my stomach didn't really hurt. Unless damage is really severe, I don't think doctors can usually visually see it with the scope. Hopefully he took at least six biopsies because if damage is patchy, it could be missed.

Wishing you healing as you go back to gluten-free!

Jaymie Jaymz Rookie
Jaymie Jaymz
Posted

You're so lucky that it's over! Mine's not until the 30th. Did the procedure go smoothly for you?

I'm hoping they find something or I'll have to stay on gluten since he wants to do the pill cam if the biopsies are negative.

salexander421 Enthusiast
salexander421
Posted
  • Author

You're so lucky that it's over! Mine's not until the 30th. Did the procedure go smoothly for you?

I'm hoping they find something or I'll have to stay on gluten since he wants to do the pill cam if the biopsies are negative.

I'm so sorry you have to wait, It'll be here before you know it! It went very smoothly for me, I don't even remember a thing and I was up and moving around within minutes after as if nothing had ever happened :P I hope you get the answers you're looking for!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


salexander421 Enthusiast
salexander421
Posted
  • Author

Hopefully he took at least six biopsies because if damage is patchy, it could be missed.

I never really got a clear answer on that one so I'm just keeping my fingers crossed and hoping he took enough. I'm not that great with dealing with doctors :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,334
    • Most Online (within 30 mins)
      7,748
    ShadowLoom
    Newest Member
    ShadowLoom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
    • trents
      Struggling to get into a good pattern

      By trents · Posted

      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
    • Scott Adams
      Newbie with Celiac / NCGS symptoms

      By Scott Adams · Posted

      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
×
×
  • Create New...