Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Get Glutened Friday Night, You Feel The Effects ________


Gardening

Recommended Posts

Gardening Apprentice

You feel the effects when? Friday night? Saturday morning? Later?

Both my daughters are gluten sensitive/celiac, and I've been off gluten for 6 months - very strict - to see if it would help my fibromyalgia. It didn't seem to help. I tried something with gluten a week ago as a test, and didn't see any effects. So Friday night, my husband and I went out to dinner and I didn't bother with staying gluten-free. I seemed fine on Saturday. We had a late Saturday dinner (gluten-free)and I immediately had some stomach discomfort. Intestinal pain overnight and then some cramping/loose stool on Sunday around noon.

So... could it have been a delayed gluten exposure? Or did I eat something bad Saturday night?

I'm mostly curious, though, to hear your experiences. I sometimes struggle with tracking down the source of x-contamination/accidental gluten exposure for one of my daughters who seems highly sensitive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Sounds like a delayed reaction to me. Everyone's different but reactions can be delayed up to 3 days. I usually get my neuro symptoms right away (headaches, blurred vision, naseaua, balance issues, brain fog, etc, etc) but my digestive symtpoms are more subtle--I have C for a two-three days followed by several days of D. It takes me a good week to 10 days to fully recoved from a glutening if it's a bad one. The last one I had really bad was from eating pasta that was supposed to be gluten-free but was not (restaurant brought me the wrong stuff).

I hope you feel better soon!

AzizaRivers Apprentice

Could be. For me it often varies, sometimes I wouldn't feel the full effects of a Friday night glutening until Sunday morning. My gluten reactions always wait until morning, for some reason.

eatmeat4good Enthusiast

Me too...delayed reaction. I will think I got away with eating gluten free in a restaurant then the next day I feel slightly off or tired and the next day I have a full on migraine, nausea, diarrhea, and depression with muscle aches and pains. Lasts 3 more days to a week before I start feeling normal.

T.H. Community Regular

could be either, I'd say. Only way to tell is if you try it again, I imagine. Maybe you could have the same foods, even.

For me, I get neuro symptoms within about 20 minutes, at the latest. My father reacts with gut issues the next day or the day after.

ravenwoodglass Mentor

I also get neuro symptoms within 24 hours but the gut reaction can take up to 3 days for me. I will have gas and stomach pain for a day or two before the D hits. Intolerance reactions are often delayed.

aeraen Apprentice

I haven't been able to pinpoint it anymore. I used to be able to say "20 minutes", but lately I've been getting hit w/ sudden D out of the blue, and I know the last thing I ate was gluten free (such as a salad).

I've decided to be a little more pro-active about it and keep a food diary for a month or so, document what I ate and when, on one page and how I (and my tummy) feel on the opposite page. By following the pattern, I just might find out that I'm reacting to something I ate a day or two before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maile Newbie

Neuro symptoms within 1-2 hours (usually insomnia) gut symptoms 10-12 hours after the fact. get D if it's been a while since glutened but I echo the 7-10 day recovery window..if I"m unfortunate enough to get glutened again within the 7-10 days I get C instead of D

brendab Contributor

Stomach pain within 20 min. neurosymptoms soon afterwards and lasting for several days. Gas comes hours after exposure. I was told it was IBS, tested neg. for celiac.

glutenfreesavvy Rookie

I think you suffered a gluten reaction as well. I think one of the most frustrating things about getting glutened (besides the obvious ickiness!) is the symptoms can manifest differently over time. My personal experience, along with researching others' experiences, that symptoms can go in cycles...you react the same for a while, then all of sudden symptoms change around some. I've wondered why that is...maybe changes in our nutritional profile (deficiency in certain nutrients?), stress level, amount of gluten contamination??? I don't know & I'm not sure how easily anyone could actually test that... ;)

Personally, I usually react immediately - or at least within 30 minutes of being in contact with gluten. Although, I've noticed a few times symptoms don't seem to arise until the next day. When that happens, I'm assuming it's a very, very slight cc. (I'm extremely sensitive - can't eat in restaurants (with a few exceptions, yay PF Changs!!!), gotten sick via air & skin exposure, basically eat everything from scratch & prepared fresh in my kitchen)

Since you have fibro & children with gluten issues along with this recent reaction, I wouldn't advise you to eat gluten again. Of course, I'm not a doctor, just an avid health researcher & gluten "hater". :D (Oh, I'm not really a gluten hater...I just hate what it does to my body.) The experts still don't have a full understanding of this gluten thing - what causes it, all the different manifestations of it - celiac, gluten intolerance, gluten ataxia, etc. I've gotten to be so protective of my health, taking any risk is just not worth it, imho.

So sorry to hear you were sick. I hope you're feeling better now. :)

Warmly,

Faydra

Gardening Apprentice

Thank you for all your feedback.

Just to complicate issues ;) My 5 year old woke up with belly pain last night. Felt like she was going to throw up in the morning, then it went away. By 1pm, she had thrown up at a friend's house. Felt naseous the rest of the evening, D at bedtime, and just woke up to throw up again. She's clearly sick.

Now I remember that late last week, when my 3 year old had D for no reason I could trace at all, she was extremely cranky (my husband kept asking me if she had a fever) and complained that her tummy hurt (which she never does when she's having a reaction).

So... I think a bug went around my family.

Also, I'm being tested for Lyme - my practioner thinks that my non-typical fibro isn't fibro at all.

Unfortunately, nothing happens in a vaccum. I plan to stay gluten-free for another week or so, then test again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      24

      Headaches / Migraines and Hypoglycaemia

    2. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    3. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,150
    • Most Online (within 30 mins)
      7,748

    TheaBr
    Newest Member
    TheaBr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.