Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Desperate For An *accesible* Gi Doc In Socal


tictax707

Recommended Posts

tictax707 Apprentice

Many of you may have seen my post in the general forum. I'm still really sick after gluten exposure four weeks ago. I tried to get in to see my GI and was told the first time I could see him was May 16th. MAY!!!! I SLEPT ON THE BATHROOM FLOOR Saturday night for goodness sakes and in desperation to stop the madness I seriously quit eating ANYTHING on Sunday. I told the schduler all this and she was unmoved. :angry:

Thankfully - not eating anything helped. But that is NOT RIGHT!!! NONE of this is! I am desperately seeking a doctor. I need to see someone who knows about celiac AND colitis, but at this point I would almost take a chance on someone I can just SEE when I am at rock effing bottom like this.

SO, I need suggestions for a doctor in southern cali - I am pretty sure some of the people from the LA CDF connections are on here too? I am willing to travel - LA, OC, even SD.

Please, help... :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MrsMonteSS Newbie

Many of you may have seen my post in the general forum. I'm still really sick after gluten exposure four weeks ago. I tried to get in to see my GI and was told the first time I could see him was May 16th. MAY!!!! I SLEPT ON THE BATHROOM FLOOR Saturday night for goodness sakes and in desperation to stop the madness I seriously quit eating ANYTHING on Sunday. I told the schduler all this and she was unmoved. :angry:

Thankfully - not eating anything helped. But that is NOT RIGHT!!! NONE of this is! I am desperately seeking a doctor. I need to see someone who knows about celiac AND colitis, but at this point I would almost take a chance on someone I can just SEE when I am at rock effing bottom like this.

SO, I need suggestions for a doctor in southern cali - I am pretty sure some of the people from the LA CDF connections are on here too? I am willing to travel - LA, OC, even SD.

Please, help... :(

Hi,

Unsure if I can help much with Doctor location, but I can tell you what helped me! Water, remove sugar and carbs. I dropped down to 85lbs because of these idiots. I have no food allergies, except the Gluten. I suggest you seek E.R to expedite the GI process. I was misdiagnosed Diabetic over the sugar. I eat Sausage (Premio is gluten free) It has alot of protein and no carbs, Kool-Aid Mix is Gluten Free, but I drink it weak, and use water as well. Not too much water, but the 8 glass a day rule. I eat lettuce, and strawberries because they are low in sugar. You HAVE to eat. Celiac depletes the body as it is. Chicken was OK for me, but avoid Turkey. Boar's head products are also Gluten Free, but stay low-fat. It has to run it's course, I am getting better every day and was even able to nap today! You have to stay healthy in the meantime, I understand how you feel about not eating, but this can further malnution. No Banana or tropical fruits, no apples, no rice, no sugar, no dressing, butter unsalted only! Low Carb, High Protein, Boil out sausage first to reduce sodium. Eggs maybe, or egg whites every few days. I can feel my head again, ouch! Hope this helps! RoseAnne - NY

ladymiss Rookie

hi- i am so sorry you are feeling so bad! hang in there!

there is a website i've found to be very interesting re: celiac and gluten intolerance. it is put together by a doctor group in CA. they specialize in celiac/NCGS. not sure if this is what you are looking for....but perhaps they would offer another viewpoint and some immediate help. there is info on how to contact/get to their office around SF.

Open Original Shared Link

get well soon.

cap6 Enthusiast

Check out out the Wm K. Warren Medical Research Foundation for Celiac in San Diego at the University of California San Diego. They are wonderful and there is a Celiac GI doctor thaty works through the foundation. Also a top notch nutritionist.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.