Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help


aking3028

Recommended Posts

aking3028 Newbie

Well, I've been gluten free for almost a month now and things are still pretty shaky. I get nauseous quite a bit but now I've been having horrible headaches. I've tried all kinds of pain relievers but nothing is taking it away. I called my dr and the receptionist said it has nothing to do with going gluten free, but it seems a little funny that they started after I went off of gluten. I've also noticed I've been really irritable also. Not sure if that has anything to do with the gluten or just because I have a constant headache. Has anyone else experienced any of these symptoms? Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I have and it was when I was experiencing severe headaches and took Ibuprofen on a regular basis. It lasted for years until I found out about salicylic acid intolerance or sensitivity. It can cause irritability and constant rebound headaches. If you are allergic to aspirin you will react to Ibuprofen.

You could have withdrawal headaches on eliminating gluten, but I would think those would have resolved by now unless you are getting cross contamination somewhere. That would certainly cause headaches too.

There are some threads on here about SA sensitivity.

Try googling Salicylic Acid sensitivity and see if any of the symptoms match yours. Fruits and vegetables also have salicylates...and if you are ingesting a lot more....could cause headaches in those who are sensitive.

I hardly ever get a headache now since I got rid of gluten and salicylates...and I no longer limit salicylates in fruits and vegetables but had to in the beginning.

Just something to think about, I'm sure you will get other answers.

domesticactivist Collaborator

What kind of headaches are they?

When we went off gluten, and especially when we went totally grain free and added probiotic foods one of the symptoms of candida die off was a bad sinus headache - front of head, face, etc. I also got ear aches with it. My partner got eczema flare-ups as well. When the yeast dies off it's got to get out of your system somehow. We trudged through it to the other side and feel much better.

I've always had migraine auras before going gluten-free, and when we first went off gluten I had the worst migraine auras of my life, as well as flare-ups of every other health problem that's ever plagued me. Now that it's been a few months (and especially after starting the GAPS diet) all those symptoms are long gone. I can not believe how healthy I've been feeling!

I think for me the main thing that caused all the flare-up, headaches, auras, etc was the sugar withdrawal. Removing so much hidden sugar from our diet was hard at first because it was an addiction. But once I got through the withdrawal and through the die-off I've felt much, much better.

WinterSong Community Regular

I'm 2 1/2 weeks gluten-free, and last week I had my first ever migraine. It lasted for two days. It started again yesterday and I finally took something for it today when I almost passed out at work. My doctor agreed that it's probably from withdrawl and said that it should go away in time...I can't wait. Hope you feel better soon, too.

aking3028 Newbie

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

ravenwoodglass Mentor

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

What are you typically eating? Have you deglutened your home? Have you checked all scripts and OTC drugs as well as supplements? Have you eliminated gluten from all your toiletries? I used to get horrible migraines when I was consuming gluten and thankfully they ended once I got rid of every possible source of gluten. They do return full force with even a small amount of CC which is why I asked the questions.

Junot Newbie

joint.webp

when im feeling my worst worst worst and the nausea is uncontrollable and the pain is to much and I think I just cant do this anymore, this is what saves me, no joke.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

I'm hoping they go away soon too. It's awful waking up with a headache and then lasting all day and going to bed with it still in full force. What did you take that it went away? My doctor's receptionist said it has nothing to do with it, thats when I went on here and figured I'd check on my own.

The first one went away after I took a dose of tylenol. Then I found out that Excedrin Migraine was on the Gluten Free Drug List, and that helped a lot with this last one.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.