Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Burning Sensation


gfreecollegegirl

Recommended Posts

gfreecollegegirl Newbie

Hi,

When I accidentally eat gluten, which just happened yesterday, I get a whole variety of symptoms that start happening the day of and continue almost a week, such as the bloating, cramps, brain fog, anxiety, general misery, etc! The symptom I can't figure out is what I call the "burning sensation" that I can feel in my intestines that starts the 2nd day and goes on and on....but is now starting to be present at other random times! Even when I'm pretty sure I haven't had any gluten!

Originally, it was dairy that gave me this symptom. After I went gluten free last year and was still eating dairy, I was in agony from this "burning." (On a side note, after I went gluten-free my lactose intolerance really kicked up a notch and I've lost my ability to stomach any dairy.) Thus, I am also dairy-free now. What perplexes me is that the burning sensation is back and not just when I've been glutened (but not as bad as it was when I still drank cow's milk & ate yogurt).

I have this feeling that it's from the almond milk I drink. (I do not have any nut allergies tho.) Anyhow, I drink a lot of it now. So, I'm wondering if any of you have experienced this and if it could be soy? Corn? MSG? Something else? I'm sure I don't have a problem with all grains because I could eat rice all day and be fine.

Any advice would be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rgarton Contributor

Hi, sounds odd! I don't have a burning sensation as such but i did develop a soy intolerance after eating it almost everyday after being diagnosed with celiac disease and possible lacto-intolerance. It now gives me almost the same effects as if i have eaten gluten! It was very miserable until i realized what it was that was causing it. I use lacto-free milk but i know that doesn't help some people. Maybe try cutting it out and seeing what happens when you do have it after a week or something? Good luck!

NorthernElf Enthusiast

Wow, I could have written the last two posts, more or less !

I think when you are glutened, you are already "down" - it doesn't take much to get you down further. I tend to avoid dairy & soy as well - but I can get away with a little now & then (of course I can never 'get away' with gluten). I too have tried milk substitutes because dairy gets me but have not had any success - & I blame that on soy. It's frustrating ! I just don't have cereal.

So...no gluten & very little dairy or soy here as well.

lynnelise Apprentice

I have gastritis and when it flares up my stomach will burn for a week or two. I find drinking coconut water can help soothe it! Plus being extra careful about spices and acidic foods.

Melissaann829 Apprentice

I actually get burning sensations in my feet and sometimes my stomach too. I cheated and ate some gluten this past week and now I feel miserable. Lots of symptoms. Uhhhh.

IrishHeart Veteran

I developed awful burning sensations in my skin, stomach, mouth, esophagus, heck... everywhere . :blink: My muscles, my feet....it was the real clue that something other than "IBS" was going on.

It is very painful. I felt like I was on fire all the time!! I cried every day.

4 months after being gluten-free, it is slowly subsiding.

Fortunately, the stomach burning finally left when I started taking probiotics and the bowel issues stopped.

I still have a burning mouth and throat, though and spicy food or citrus is out of the question still.

It's inflammation. In the muscles, nerve compression. Toxicity. Many explanations.

Once I saw that "burning, prickling, stabbing" sensations were a symptom of celiac disease, I felt relieved.

Several people on here told me that they also had this burning and that it resolved in time..it made me feel validated and encouraged.

It made me crazy for the 3 years pre-diagnosis.....and no doctor could tell me what it was.

COULD be soy, MSG...they bother me and others on here report "burning" from soy as well.

Hope it subsides for you soon!

gfreecollegegirl Newbie

Thanks for the insight everyone!

I am feeling better today (a good change from yesterday, when I felt completely life-less and was an emotional wreck!) I've cut everything out except for: meat, vegetables, fruit, and gluten-free brown rice bread. I feel a lot better and I haven't experienced any of this burning today!! :) I think I will try almond milk, chocolate (which has soy in it), and corn on different days later this week and see if any of them are causing it. I have a suspicion that it's soy because so many people have a problem with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Thanks for the insight everyone!

I am feeling better today (a good change from yesterday, when I felt completely life-less and was an emotional wreck!) I've cut everything out except for: meat, vegetables, fruit, and gluten-free brown rice bread. I feel a lot better and I haven't experienced any of this burning today!! :) I think I will try almond milk, chocolate (which has soy in it), and corn on different days later this week and see if any of them are causing it. I have a suspicion that it's soy because so many people have a problem with it.

Glad you feel better. :) That is a good plan--and frankly, the only way we can determine which foods continue to give us problems. Best luck!

  • 5 years later...
EenieNeNe Apprentice

I get a burning sensation in my lower back that in the past I had attributed to my cysto-eurethritus <sp> but now I am not so sure.

I definitely feel it the next day after I ingest a lot of gluten.

I am still in the diagnosis stage for celiac so have not gone gluten free yet, I have had an endoscopy and a colonoscopy and now my doc wants to do the camera in a pill test, he is convinced I have celiac because of my family history, unexplained iron deficiancy and a really high result on one antibody.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.