Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious About Correlations

milkmommy

Recommended Posts

milkmommy Apprentice
milkmommy
Posted

HI Everyone,

Im am wondering if anyone knows if there is a correlation between what is seen on an endoscopy and recovery time or marsh score?

I havent seen my GI for the biopsy results however my family dr gave me a printout of the endoscopy procedure. It stated "loss of folds, nodular mucosa and scalloping in the first and second portion of the duodenum." Is that normal for celiac patients? is it any sign of severity or what marsh score it correlates with?????

As I have posted previously, I have been gluten free since April 20th and my symptoms have gotten much worse! <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I don't know what kind of damage correlates with what Marsh score, but I do believe that regardless of the severity of the damage to your intestine your recovery time will depend on

1. How strictly you conform to the diet

2. How strictly you refrain from lactose during the recovery period

3. How many other (if any) intolerances you have and how quickly (if any) you find them out.

You seem to be a candidate for a strictly whole foods diet of meat, veggies, fruit, rice, nuts until you get a stable diet that you tolerate. Then add foods back in one at a time, avoiding the top eight allergens such as corn, peanuts, eggs, fish,soy, etc. Cook your vegetables, peel the skins off apples, pears, tomatoes, all those tough hard to digest skins, and let your GI system settle down for a little bit. :)

sb2178 Enthusiast
sb2178
Posted

That sounds like pretty severe loss, but I don't think you can directly tell a Marsh score from that macro-level description (which would be based on photos/doctor's view).

Edit: Yes, that is a typical assessment for celiac disease. Anecdotally, when an MD sees that even when endo'ing for another reason, they know to take biopsies for the micro (villi) view of celiac disease damage.

milkmommy Apprentice
milkmommy
Posted
  • Author

Thank for responding

How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thank for responding

How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.

The whole food diet we speak of is simply food in it's natural form. Meat, chicken, fish, eggs, veggies and fruits, potatos and rice etc. that are not processed or premade. If stuff is in it's natural form when we cook it then the risk of cross contamination from food processing is pretty low.

Do make sure you have changed out stuff like your toaster, wooden cutting boards and utensils and scratched non stick pans as gluten can get us from stuff that has been used for gluten foods.

Dee777 Rookie
Dee777
Posted

Thank for responding

How can I get more info on the "Whole food diet" that is mentioned? Maybe I need to do it because I am getting worse despite a gluten free diet.

Hello!

I am new here too, diagnosed January 25/11. I am going through a rather nasty period of illness right now going on 7 weeks with a so far accumulated weight loss of over thirty pounds. I believe this happened because I seem to not be responding to the gluten free diet. That, or I am doing something wrong or getting cross contaminated in some way... I seem to be on the upward swing of things now thank goodness, and thanks to those here who have given me sound advice and their shoulders to cry on! I just wanted to let you know that I am following the "whole foods" diet myself and that along with some excellent probiotics appears to be turning things around for me. Good luck to you, the whole foods is a great idea until you get a handle on the whole thing!

Dee

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748
    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.