Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Repair Kit ?


monika

Recommended Posts

monika Newbie

So I did the GI testing and I have alot of things I need to avoid. I was told that the GI repair kit would help repair my stomach and build my tollerance to the foods on my list. The only thing is... it is isn't covered by insurance :/ I cannot dish out $200 plus dollars for the first step so I was wondering if any of you would know if there was a substitute or side vitamins I can take? I've asled the doctor and they try to push the the repair kit on me and don't tell me anything else.

Gracia,

Monika


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

What's in it? Sounds like one of those things where the doc makes $125 on as profit.

Just curious - what type of doc is pushing products?

Korwyn Explorer

GI Repair Kit? Sounds questionable to me. The best 'GI Repair Kit' I found was a good probiotic and three months on the strict GAPS diet.

GlutenFreeManna Rising Star

I agree with the PP's. When a dr tries to push questionable products on you it's time to RUN in the opposite direction and find a new dr.

monika Newbie

What's in it? Sounds like one of those things where the doc makes $125 on as profit.

Just curious - what type of doc is pushing products?

It's just a regular Doctor and he told me that it was natural and it contained vitamins and I'm not sure what else.

It is 3 steps. The first is $200 some, Second $60 and the last step is $35ish

monika Newbie

I agree with the PP's. When a dr tries to push questionable products on you it's time to RUN in the opposite direction and find a new dr.

Hahah yeah I really want to get a second opinnion but just tired of the whole doctor thing hahah but oh well.

monika Newbie

GI Repair Kit? Sounds questionable to me. The best 'GI Repair Kit' I found was a good probiotic and three months on the strict GAPS diet.

What Probiotic did you use? I've heard of that before but I'm not sure what it is really. I just remember yogurt commercials.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Monika,

What is your diagnosis? How were you diagnosed? I can't remmeber if you said before. I have a hard enough time keeping track of myself! :blink:

Korwyn Explorer

My Dr. & my GI suggested PB8. I did quite a bit of research and started taking it. That plus three months - or maybe it was four - on the strictest GAPS diet did wonders. GAPS is based on research into 'Gut And Psychology Syndrome'. I'll oversimplify, but basically you remove all processed foods, grains, and sugars of all kinds and most dairy. Fermented foods (homemade yogurt, sauerkraut - both of which are very easy to make), full fat soups and soup stocks (also very easy to make), etc. I was really skeptical because a friend was really pushing it. Her husband has Celiac, she has multiple food intolerances, one of their kids has Celiac and other two have multiple other food allergies and intolerances as well. I got a book on it, read the book, read some of the other stuff I could find, read some papers on intestinal dysbiosis and leaky gut, some medical journal articles and some other research and decided to give it a shot. I was not healing up well at all and seemed to be developing more and more food issues with other foods by the day.

It helped tremendously. You'll find a lot of people talk about the SCD (Specific Carbohydrate Diet) and GAPS on here. They are very similar in many respects and I don't think either one would be a bad thing to try, though personally I prefer the GAPS. :)

monika Newbie

Monika,

What is your diagnosis? How were you diagnosed? I can't remmeber if you said before. I have a hard enough time keeping track of myself! :blink:

Hahah sorry I didn't say... oops.

I got a GI test done and they drew a bunch of blood and it took a me a while. I have food intolerances that cause my stomach linning to swell and I can't get nutrition and all that good stuff. This was causing me to be sick for a long time and it's slowly fixing itself but the doctor said that the repair kit would speed things up.

kareng Grand Master

Hahah sorry I didn't say... oops.

I got a GI test done and they drew a bunch of blood and it took a me a while. I have food intolerances that cause my stomach linning to swell and I can't get nutrition and all that good stuff. This was causing me to be sick for a long time and it's slowly fixing itself but the doctor said that the repair kit would speed things up.

Did they say Celiac? Is it your stomach or your small intestine? Probaly your intestine, I don't think much of anything is absorbed from the stomach into your blood stream.

You may have more issues with this doc than him trying to sell you products. I'm wondering about the diagnosis and what he did to get it.

Korwyn Explorer

Hahah sorry I didn't say... oops.

I got a GI test done and they drew a bunch of blood and it took a me a while. I have food intolerances that cause my stomach linning to swell and I can't get nutrition and all that good stuff. This was causing me to be sick for a long time and it's slowly fixing itself but the doctor said that the repair kit would speed things up.

Umm....Are you not getting nutrition because your stomach isn't breaking foods down? Because your stomach doesn't actually absorb anything. Acid and enzymes in your stomach break down protein and fats and some carbs. Bacteria in your small intestine breaks down more carbs. Nutrients from the protein and fat, along with the bacterial waste (in the form of nutrients now) are absorbed through your small intestine (by the vilii). Undigested carbs, fiber, and some other undigested materials are passed to your large intestine where additional bacteria perform similar work.

Leaky gut: Is still under a lot of study and some medical professionals still don't believe it exists. However, research into it seems to indicate that many food intolerances develop when protein chains and other fragments that are not in proper nutrient form (i.e. bacterial waste or amino acid chains) pass through the small intestine wall into the blood stream and trigger immune system responses. So if your doctor said you aren't getting nutrition because your stomach lining is swelling and preventing production of acid, pepsin, and other enzymes, he may be correct. But from what little you've said, plus the fact that he is pushing a $300+ product really makes me slightly queasy. At least I hope that's what's making me queasy, not the chicken I ate for lunch. :)

* Edited for speeling and more better grammar

Korwyn Explorer

Doh! Sorry Karen, I didn't read your post first, I wasn't trying to upstage you :) As usual somebody else said in two sentences what it took me 20 to say. :lol:

monika Newbie

Did they say Celiac? Is it your stomach or your small intestine? Probaly your intestine, I don't think much of anything is absorbed from the stomach into your blood stream.

You may have more issues with this doc than him trying to sell you products. I'm wondering about the diagnosis and what he did to get it.

He told me I don't have Celiac. The problem is that I am sensitive to these foods and they are causeing by stomach linning to swell and the reason why I had been getting really sick for these past couple of years. Other than that I got no detail except to saty away from the foods on my list.

monika Newbie

Umm....Are you not getting nutrition because your stomach isn't breaking foods down? Because your stomach doesn't actually absorb anything. Acid and enzymes in your stomach break down protein and fats and some carbs. Bacteria in your small intestine breaks down more carbs. Nutrients from the protein and fat, along with the bacterial waste (in the form of nutrients now) are absorbed through your small intestine (by the vilii). Undigested carbs, fiber, and some other undigested materials are passed to your large intestine where additional bacteria perform similar work.

Leaky gut: Is still under a lot of study and some medical professionals still don't believe it exists. However, research into it seems to indicate that many food intolerances develop when protein chains and other fragments that are not in proper nutrient form (i.e. bacterial waste or amino acid chains) pass through the small intestine wall into the blood stream and trigger immune system responses. So if your doctor said you aren't getting nutrition because your stomach lining is swelling and preventing production of acid, pepsin, and other enzymes, he may be correct. But from what little you've said, plus the fact that he is pushing a $300+ product really makes me slightly queasy. At least I hope that's what's making me queasy, not the chicken I ate for lunch. :)

* Edited for speeling and more better grammar

I'm not sure anymore because I was just told that I have sensativities to the foods on my list and I should avoid them fro the rest of my life. He said the reaction to sensitivites was that my stomach linning was swelling and that was causing my problems. Other than that I was told nothing more. So I'm just like .... :/

kareng Grand Master

Monika- Are you in the US? I think you need to get a copy of all your medical records including any blood test, other tests procedures.

What tests did the doc do?

monika Newbie

Monika- Are you in the US? I think you need to get a copy of all your medical records including any blood test, other tests procedures.

What tests did the doc do?

Yeah I'm in the US.

My mom really wants me to get a second opinnion and I am thinking of getting my records and switching Doctors. All the blood test I have gotten come out with real bad Anemia. Other than that I am fine... minus the food thing.

kareng Grand Master

Yeah I'm in the US.

My mom really wants me to get a second opinnion and I am thinking of getting my records and switching Doctors. All the blood test I have gotten come out with real bad Anemia. Other than that I am fine... minus the food thing.

You need to find out what test he says he did that diagnosed all those food problems. They may not be legit. I would get the records and another doctor.

laura4669 Apprentice

GI Repair Kit? Sounds questionable to me. The best 'GI Repair Kit' I found was a good probiotic and three months on the strict GAPS diet.

I have the same issues with food sensitivities. Is the GAP diet the same as the Paleo diet? I have also heard of the SCD, but I am not sure what the differences are. I think they all basically take out grains, dairy and sugar, is that correct? Thanks.

Laura

domesticactivist Collaborator

Hi Laura,

My family also has benefited greatly from the GAPS diet and I've posted a lot about it on this site. I also have a blog post on here with recommended reading and a bit about the difference between GAPS and SCD.

GAPS is not the same as Paleo, but it has some things in common. Paleo is based on the idea that we should eat what humans evolved to eat. The dietary recommendations end up very similar to the GAPS full diet.

However, the GAPS diet is aimed at restoring healthy gut flora and detoxifying your system as well. It is based on the idea that grains and some other foods damage the gut, and that fungus and some bacteria also damage the gut, causing it to be leaky. Those tests that show IgG reactions to lots of foods are a result of the leaky gut. Simplistically, whatever you eat will end up showing an intolerance. By restoring the health of the gut, many intolerances can be reversed.

The GAPS diet has a series of stages that you go through as you heal. It starts out with homemade bone broths, cooked vegetables, and home-fermented foods, which become the basis of the diet as you add things in. On the blog linked above you can find a link to a full description of the intro diet.

It does take some doing. I'll be writing a post soon about how to get started.

domesticactivist Collaborator

OK, I did it! You can read my post about how to get started on the GAPS Diet here:

laura4669 Apprentice

Wow, thanks so much domesticactivist! I think I have seen some of your other posts. I have been doing mostly Paleo, but I really think I need to try GAPS. It just seems like so much work to make all of the homemade food, especially with traveling during the summer. I guess I will just do the best I can. I am so sick of being sick!!

jenngolightly Contributor

Wow, thanks so much domesticactivist! I think I have seen some of your other posts. I have been doing mostly Paleo, but I really think I need to try GAPS. It just seems like so much work to make all of the homemade food, especially with traveling during the summer. I guess I will just do the best I can. I am so sick of being sick!!

I hope you have good luck with GAPS! I definitely had a transformation on SCD and wouldn't trade the experience for the world. It was the toughest thing I've ever done, but well worth it. I have to warn you, it takes a lot of self-control and dedication to preparing proper meals to maintain a strict elimination diet for any length of time. It's not for the faint-of-heart. I hope you have a good support structure. I had some people who were on board, and others who kept trying to get me to stop.

Good luck!

domesticactivist Collaborator

You're welcome! I have a post coming up about traveling on GAPS (haven't finished it yet), and if you look on my archives I have some posts of what we brought to eat on short trips. I hope it helps! The most important thing with GAPS is to get in a rhythm of preparing the basics like stock, yogurt, sauerkraut, defrosting meat, soaking nuts, so that you'll have those things on hand when you need to use them in another recipe. Actually that's true for anyone who avoids packaged products.

laura4669 Apprentice

I hope you have good luck with GAPS! I definitely had a transformation on SCD and wouldn't trade the experience for the world. It was the toughest thing I've ever done, but well worth it. I have to warn you, it takes a lot of self-control and dedication to preparing proper meals to maintain a strict elimination diet for any length of time. It's not for the faint-of-heart. I hope you have a good support structure. I had some people who were on board, and others who kept trying to get me to stop.

Good luck!

Thanks Jenn! Yes, I am a little nervous about how much work this is going to be. I have two small children, and I spend most of my time taking care of their needs! I just feel so bad though, that I think I will be a better mom if I can heal my gut. I have NO energy, and my hair falling out in handfuls just puts me in a bad mood every day. My husband is supportive, even if he thinks I am a little nuts!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.