Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Discrimination - Glutein-free


Dittenheim

Recommended Posts

Dittenheim Newbie

Is there a celiac lawyer out there????

I ran into a problem in a restaurant in Rhode Island - they refused to substitute rice or a baked potato for the pasta that came with a chicken dish. After patiently explaining that I cannot ingest wheat products to both the waitress and manager, I was still told their policy was absolutely "No Substitutions" and that nothing could be done for me.

I wound up choosing another, less appetizing selection (which had a fries or baked potato option!!).

I was frustrated and embarassed over this incident and later wrote a letter of complaint to the RI Board of Human Rights. The Board felt my compliant was sufficient for them to initiate a case of discrimination against the restaurant in question.

The restaurant's response to the suit was that they were within their rights in denying me the accommodation of rice or potato instead of pasta!!!!

If there is someone out there who might be willing to take up this gaunlet, I will provide details of the complaint and the (extremely mean-spirited) response.

This restaurant had a ramp for wheelchairs and grab-bars in the bathroom - all I wanted was a potato or rice - WHICH THEY HAD ON THE MENU!!!!!!

I cannot believe that such a small accommodation, due to medical necessity, could be denied. Can anyone help?? I need to respond within the next week or so, so please get back to me as quickly as you can.

Thank you,

Lauren in New Jersey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I think it's a really stupid policy, but if they uniformly apply no substitutes to everybody, I'm not sure you have a valid complaint. I am not a lawyer; this is just my opinion.

richard

Jnkmnky Collaborator

You do have a valid complaint. You should persue it. C.D. is listed under conditions protected by laws preventing discrimination to those with a disability. It is considered a disability. Good luck. I'm actually surprised the restaurant owners haven't realized how wrong they were.

astyanax Rookie

i'm in law school, and recently have been studying the americans with disabilities act for a paper i'm writing. from what i've read while researching my topic (which does NOT have to do with celiac) problems with food do not constitute disabilities under the ADA, which means there is no entitlement to reasonable accommodations. the size of the accommodation does not determine whether or not it's legally required.

i did a search on lexis (a legal database) and no state or federal cases came up on a search of both the ADA and celiac, or gluten intolerance.

VydorScope Proficient

I know your not gonna like this advice, but the best way to handle this is NOT a law suite. Its vai bad publicity, and telling ppl to stop eating there completely. We ppl stop eating there over it, they will change or go out of buisness. Thats how captialism is ment to work.

Jnkmnky Collaborator

Open Original Shared Link

You could email these folks and see what they say. Good luck.

Dittenheim Newbie
You do have a valid complaint.  You should persue it.  C.D. is listed under conditions protected by laws preventing discrimination to those with a disability.  It is considered a disability.  Good luck.  I'm actually surprised the restaurant owners haven't realized how wrong they were.

<{POST_SNAPBACK}>

Hi - Can you cite the reference to C.D.'s listing? I got another reply that says it isn't covered:

problems with food do not constitute disabilities under the ADA, which means there is no entitlement to reasonable accommodations.

I just seems to me that people who are in the business of serving the public would want to be as friendly and accommodating as reasonably possible. This restaurant is just driving people away!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

You have a valid complaint, and I'm thinking you're covered because of my experience with the schools. They are required to provide a gluten free meal to a child with c.d. if they're providing meals to other students. I used my local justice dept for a letter to a preschool that was trying to deny my son access to their school a few years back. They claimed they would be unable to assure he remained gluten free due to the school's homemade playdough, snacks, parties, unexpected treats. I checked with the Justice Dept through a phone call and was told my son was protected even if it was a privately run, church pre-school. The preschool relented as soon as I told them this. I was thinking you would be covered the same way. As usual...I could be wrong.

Jnkmnky Collaborator

Btw...regardless of rights, I'd write an opinion piece in the local paper telling of my experience. Their adherence to a "no substitutions" policy in the face of an actual disability is appalling.

KaitiUSA Enthusiast

I would pursue something like that if it happened to me.Whether it be a law suit or just writing in the newspaper about it I do not know but I would not let it go. I really think that they need to learn they can't do that and if they get enough negative publicity over that then they will change. Find out what your options are and what the best way is to approach it. What's the restaurants name? Any chance a bunch of us can call and complain about their lack of accomodation to celiacs?

We pay them for the food and we should get what we want.

astyanax Rookie

i also think a lawsuit is a bad idea. first off, it's a private restaurant - they can serve to choose whatever food they want. and since you were able to eat there anyway i'm not sure exactly what your lawsuit would be based on, just that they wouldn't allow you to precisely order what you wanted? i'm not trying to be mean or insensitive (after all, i have celiac too) i'm just trying to give you a realistic legal perspective.

second reason i think a lawsuit is a bad idea, is that i don't belive every problem should be solved in courts. i wholeheartedly support boycotting, spreading negative publicity, etc.

lovegrov Collaborator

"You have a valid complaint, and I'm thinking you're covered because of my experience with the schools. They are required to provide a gluten free meal to a child with c.d. if they're providing meals to other students."

I really think you're comparing apples and oranges. Should a bakery be required to provide gluten-free desserts and breads? Should a pizza restaurant with nothing gluten-free be required to change its menu to offer gluten-free items? How about Long John Silver's? Should we force them to change their breading to corn?

A few of you here know that I'm one of those flaming (well, not really flaming) liberals, so it might surprise you to discover that I think this is one the market should decide, NOT the goverment. If people don't like the restaurant's policy and word gets around, they go out of business.

Nothing wrong, however, with a newspaper story to apply pressure -- if you can convince a reporter that it's a good story.

richard

jenvan Collaborator

Lauren-

I also wouldn't choose to respond with a lawsuit, first off b/c that is a lot of work for what is relatively speaking, a small offense. Secondly, for that sake of our own lives, we have to choose our battles, and I don't know if you are just beginning on the gluten-free diet or not, but I'm sure you have other negative experiences ahead of you as well. Is this a private or chain restaurant? Depending on which, I would write a formal letter to the corporate office, owner talking about the incident. Based on your response there, you could write an editorial, but I'd get all the facts straight before. Someone else posted on a similar incident in the past and it turned out the guy she dealt with was fired immediately afterwards b/c of other complaints. I honestly am not all up on the legal biz, but it would seem to me that a privately owned restaurant could serve what they wanted, period. I have never encountered a restaurant that wasn't accomodating, and if they weren't, I wouldn't care to be there anyway.

PS--What would you hope to acheive in a lawsuit? Just curious--like financially hurting the organization or trying to get publicity for Celiac? I am all about awareness--writing letters, phone calls, meetings, but not sure a lawsuit is the best way to do it. In this day-and-age, I personally think lawsuits are pursued far too much. Those are just my thoughts, good luck to you either way. I'll be curious to see what happens!

Dittenheim Newbie
Lauren-

I also wouldn't choose to respond with a lawsuit, first off b/c that is a lot of work for what is relatively speaking, a small offense.  Secondly, for that sake of our own lives, we have to choose our battles, and I don't know if you are just beginning on the gluten-free diet or not, but I'm sure you have other negative experiences ahead of you as well.  Is this a private or chain restaurant?  Depending on which, I would write a formal letter to the corporate office, owner talking about the incident.  Based on your response there, you could write an editorial, but I'd get all the facts straight before.  Someone else posted on a similar incident in the past and it turned out the guy she dealt with was fired immediately afterwards b/c of other complaints.  I honestly am not all up on the legal biz, but it would seem to me that a privately owned restaurant could serve what they wanted, period.  I have never encountered a restaurant that wasn't accomodating, and if they weren't, I wouldn't care to be there anyway. 

PS--What would you hope to acheive in a lawsuit?  Just curious--like financially hurting the organization or trying to get publicity for Celiac?  I am all about awareness--writing letters, phone calls, meetings, but not sure a lawsuit is the best way to do it.  In this day-and-age, I personally think lawsuits are pursued far too much.  Those are just my thoughts, good luck to you either way.  I'll be curious to see what happens!

<{POST_SNAPBACK}>

I didn't choose to sue the restaurant. I wrote a letter of complaint to the R.I. Commission for Human Rights in the hope that they would send a letter to the restaurant instructing them to be more sensitive and accommodating. It was the Commission that decided that this would make a good human rights suit and told me my complaint had been selected to go to suit.

My whole argument is that I was asking for a very minimal accommodation, not something that would in any way inconvenience them, and I was denied that.

I am hoping to get an opinion from a R.I. lawyer on this as they came back to me citing a refusal by the court to force a day care to accept a child with a severe food allergy when they said they couldn't guarantee the safety of the child.

It doesn't seem to me that one thing has much to do with the other, but I would really like to get a professional's opinion.

VegasCeliacBuckeye Collaborator

I am a lawyer, I don't think you have a complaint that can result in the relief you are seeking.

Having said that, some bad publicity for the restaurant can always effect change.

What is the name of the restaurant and the address? You have a few thousand people on this website that could drop them a letter/e-mail telling them how much we disapprove of their actions.

JMO

VegasCeliacBuckeye Collaborator

Also, the dish may be priced out because of the selections on the plate.

In restaurants, pasta is extremely cheap, potatoes are more expensive -- if this is the case, they do not HAVE to substitute items. It would be like going to Mc Donalds and telling them to substitute a milk shake for soda.

Having said that, I was suprised they did not offer an "upcharge" for the potato.

skbird Contributor

I think bad PR is the way to go. I'm a marketing person, so I know all about what PR does to a business.

Places with no-substitution rules are a pain. But I think most restaurants (and bars) usually have a "right to refuse service" policy, and maybe they could use that to back up their side. I've seen those signs hanging up in restaurants before.

Bad PR is cheap and easy. Probably the best way to go.

Stephanie

Dittenheim Newbie
I am a lawyer, I don't think you have a complaint that can result in the relief you are seeking.

Having said that, some bad publicity for the restaurant can always effect change.

What is the name of the restaurant and the address? You have a few thousand people on this website that could drop them a letter/e-mail telling them how much  we disapprove of their actions.

JMO

<{POST_SNAPBACK}>

Why do you suppose then the Commission for Human Rights choose my complaint to go to suit? I would have thought they they would have a pretty good handle on what is and isn't permitted and wouldn't choose something that didn't have a chance of succeeding.

I certainly would not have pressed the issue further than a complaint on my own.

jenvan Collaborator

PR is powerful as Steph said. I wrote a letter to a restaurant, now they have gluten-free menus in house and I got a $50 gift certificate too. However, it was a place I wanted to go back too, and it was a chain, so they benefit by responding to the 'power of the people.' In my letter to them, I didn't only discuss celiac, I also wrote about other populations with special diets--ie. the 11 million people in the country with food allergies... fyi... I think pooling efforts with other groups helps get us leverage too...

VegasCeliacBuckeye Collaborator

The commission may have taken the issue up to "pressure" the restaurant into changing their policy.

I just did a little legal research here in the office. I have been unable to find a law or case that would "force" the restaurant to offer substitute items. Restaurants can refuse service to anyone they desire as a private enterprise.

What is the name of the restaurant and the address? I'm sure a bunch of us will send them a message!

KaitiUSA Enthusiast

Yep, the best way to do it would be having a whole bunch of people call or write to them and let them know what we think. I'm sure if enough people said something that they would be more accomodating. After all, they do want people to come there.

tarnalberry Community Regular

As was mentioned, that's the rub - they're a private enterprise and do have the right to refuse service. Bad PR is worth much more than a lawsuit as well - bad PR can drive them out of business quicker.

Dittenheim Newbie

My first course of action was to write to the restaurant - Cap'n Jack's of Wakefield, RI - detailing my complaints.

They didn't respond after two months, so I resent the letter and sent a copy to the Commission for Human Rights. That's how this ball got rolling.

I would have expected, since I had eaten at that restaurant several times before my diagnosis, that they would have preferred to keep my business and at least respond with a modicum of civility, but no such luck.

The only communication I received from them was an extremely nasty letter in response to the Commission's notice.

In the three years I've been gluten-free I have never experienced such an uncompromising, intractible establishment.

mytummyhurts Contributor

I agree with everybody that says it is a private business and they can do what they want to in this regard. You don't have to eat there and their punishment will be losing your business. Really, if they don't care about your special diet do you want to eat there anyways? Although, I realize that this has turned into more than that and you probably wouldn't eat there again even if they changed their policy after all you've gone through. And I agree that bad publicity will be your best bet. Have you written your local newspaper?

debmidge Rising Star

This is an interesting topic but I think it boils down to revenue issues with restaurant. The subsitution had to do with their cost of pasta vs. potato.

The restaurant should adopt policy of "Substitutions due to allergies will be accomodated but will result in an additional charge of $1.00 for each substitution." for instance. There's also another way to show them how petty this is, go and order the meal you want, but tell them to hold the pasta - no pasta - and bring your own hot baked potato and see their reaction.

But it's hard to fight a restaurant and go back there to eat again. They may refuse to even let you in on their premises. You are morally right but they hold the upper hand to refuse you service on the premise that you are/were harrassing them (in their opinion).

Is this restaurant in an area where there's not much competition? Perhaps that's why they can afford to be mean.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,953
    • Most Online (within 30 mins)
      7,748

    ramonaja
    Newest Member
    ramonaja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.