Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok. Help...


notme

Recommended Posts

notme Experienced

diagnosed 10 months ago and have been gluten free ever since. OH my gosh, what a huge difference in my quality of life! and put on 20 lbs so i don't look like skeletor anymore. i am still thin but putting on about 2 lbs a month so i'm feeling like i'm making progress. lately i have been just: TIRED. especially after eating? anyone experience this? i had been misdiagnosed for 25 years prior to getting celiac dx and going gluten-free. my thinking has been so much clearer (i actually did my taxes in one day this year lol) my digestion is continuing to improve. i have been cleaning (YAY!) could the cleaning solvents be affecting me? maybe i am over-doing it?? i am still tweaking my diet a little at a time (making minor adjustments, dealing with getting glutened/cc'd, going back to keeping a food journal if i can't figure something out) i have been trying to get to bed earlier but i still end up sleeping wayyy late and needing a nap after eating. i have been stressing about the almighty dollar since i am still not up to working. could stress be doing this to me? are my intestines taking up my energy to heal? also - the Wierdest Dreams Ever - could this be making me tired?? any help/experience(s) would be helpful. thank you all once again. husband is looking over my shoulder, saying "uh-oh" because i started a topic lol he knows i'm serious. he says "thank you" too.

ps - i totally hijacked somebody's thread the other day any i sincerely apologize. feel free to retaliate. i deserve it :( sorry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I've been suffering extreme fatigue for a year and a half with no answers so far. Most doctors immediately suggest my thyroid so that is something you should look into. Secondary food intolerances are another possibility since you get tired after eating. B12 levels are something else to look into. Also are there any other symptoms? Could you have a virus like mono?

bartfull Rising Star

This may not be related, but then again, maybe it is...I have only been gluten free for a couple of weeks now, and I have been having waves of fatigue wash over me, especially shortly after eating. A friend told me I should hold off on the fruit and carrots until later in the day because they make my sugar spike, followed by a steep fall.

So for the past couple of days I have been eating lots of protein for breakfast and lunch, then have my fruit in the evening. I am not so tired now, and after having a nice juicy peach after supper, I get so sleepy I go to bed and sleep like a baby. I thought maybe after I had healed i could go back to eating fruit any time, but maybe not?

notme Experienced

my dr checked all my levels last september (had to reschedule my check-up in may and the next appointment they had is for september) and they were all good, even my b-12 was good and iron was slightly elevated. i gave myself a little pat on the back for being strict with my diet (never thought i would be successful at it!) i took it as a good sign that i was finally absorbing nutrients. my skin (complexion) isn't blotchy like it used to be before dx and my muscles are gaining tone. i don't work out but i chase 2 two-yr olds and a 7 yr old for exercise lol. i skipped dairy for about 6 months and discovered that soy is not my friend so i avoid it. i am still not drinking regular milk (i use lactaid instead) and am only eating mostly hard cheeses and greek yogurt. recently i am giving peppers a rest unless i completely can't resist but they just make me uncomfortable - not like getting gluten: the gift that keeps on giving.... what are other symptoms of thyroid? i have had mono before but i had other symptoms other than exhaustion. blahhh i have a stack of recipes in front of me and beautiful peaches that are ready to be dessert. and no energy. :(

notme Experienced

hmmm. sugar spike. i never considered that at all! last night we had beet greens fresh from the garden for dinner. and i do like my fruit (and everything is coming into season so i have been trying to take advantage of that) strawberries were on sale so my son brought over about 4 qts and we pigged out on them the other night. i am not a 'sweet eater' a big splurge for me is 1/2 cup of ice cream or *one* andes candy lol. i was hoping the fruit would give me extra energy :) and vitamins :) but i suppose what goes up must come down. maybe i am bottoming out? i should know this stuff b/c my kid is type 1 diabetic lol...

txplowgirl Enthusiast

Hey hon, I have a feeling you need to drop ALL dairy for a while, it causes me fatigue. Also a side note. I have hauled strawberries and they are shipped in containers packed with wheat straw!. Unless you grow strawberries yourself or get them from an organic farmers market they are a big NO NO!.

notme Experienced

Hey hon, I have a feeling you need to drop ALL dairy for a while, it causes me fatigue. Also a side note. I have hauled strawberries and they are shipped in containers packed with wheat straw!. Unless you grow strawberries yourself or get them from an organic farmers market they are a big NO NO!.

i think you might be right. my energy levels have been off since i started back with dairy. ugh. i am the biggest cheese lover! well, i did it before; i can do it again. it's wierd because whatever i am eating it feels like it takes all my energy to digest?? stupid junk body... :/ back to the food journal.

o. my. gosh! wheat straw. who would think to ask that question :) i guess no strawberries for me - i was thinking of going to a berry farm to 'pick your own' but i think i might just try to grow them. that way i'll know :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.