Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hard Alcohol


ERR

Recommended Posts

ERR Apprentice

Hi All. I am a guy that got diagnosed with Celiac about 3 years ago. I went gluten free got tested and have never looked back. I have thought that I am not particularly sensitive as I have only glutened myself 4 or 5 times in 3 years. However, I have had a problem now for 6 months. I have been having what feels like a urinary tract infection (burning, itching, difficulty emptying bladder completely) that can sometimes seem like it radiates up into my intestines. I have been from doctor to doctor (PCP, Urologist, GI) and have been tested for the basics: UTI, Bladder infections, STDs, even HIV. I took two spearate courses for

Prostatisis but the antibiotics weren't effective.

But I have a theory. The symptoms come and go. Some weeks symptom free. I drink a fair amount (usually wine). My theory is that this is a Celiac response to bourbon. It seems like about 24 hours after I drink bourbon I get the symptoms.

So my question is this -- anyone ever have similar symptoms? I never got the GI symptoms of Celiac, so I realize I may just react differently to different things. Any advice, input, experiences greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stanleymonkey Explorer

bourbon is made from corn or more usually, maybe you have a corn sensitivity, or the bourbon is cross contaminated

the gluten is supposed to be removed during distillation, but who knows.

also is caramel colour added? caramel in alcohol is usually from malt

Lisa Mentor

caramel in alcohol is usually from malt

Nawl...that's outdated information. ;) Caramel Color is no longer considers a gluten concern.

ERR Apprentice

bourbon is made from corn or more usually, maybe you have a corn sensitivity, or the bourbon is cross contaminated

the gluten is supposed to be removed during distillation, but who knows.

also is caramel colour added? caramel in alcohol is usually from malt

To tell you the truth I don't know. I have never really paid much attention to the particulars of the bourbon I have been drinking. I searched the archives here and noticed that Jack Daniels is gluten free. So it would be easy enough just to stick to that (although I would miss my Woodford Reserve). Most recently I was drinking Jim Beam.

Separate from the specific cause, has anyone ever experienced UTI type symptoms from glutening?

Jenniferxgfx Contributor

I have similar urinary symptoms, but I'm a girl. The doctors think it's interstitial cystitis, which isn't actually a bladder infection but feels like one. It feels like I can't empty my bladder fully (even though it's empty when it feels like this), aching, throbbing, and like my bladder is full of broken glass. I'm new to this and waiting on a biopsy, so I'm still eating gluten, and now I see it always flares up on days after pizza or wheat pasta. I never saw it sooner because its usually 24hrs (or more) after I've been on a "gluten bender." it's my least favorite gluten pain.

For what it's worth. Azo tablets are really good for my bladder pains, although it turns your pee orange and I don't know if it's gluten-free. I really hope it is, although I guess I won't need it when I quit eating my trigger! Bleh.

I really sympathize. :/

Korwyn Explorer
But I have a theory. The symptoms come and go. Some weeks symptom free. I drink a fair amount (usually wine). My theory is that this is a Celiac response to bourbon. It seems like about 24 hours after I drink bourbon I get the symptoms.

I have problems with one particular Scotch (Bowmore). No other Scotch I've had affects me but this one. So it could be something during the ageing process, perhaps the paste they seal the barrels with. I haven't been able to find out particulars on what they use, which is frustrating because I like this one.

...it's my least favorite gluten pain....

Ok, I have to ask....what is your favorite gluten pain? :D

ERR Apprentice

Thanks guys. I am meeting with the very smart doctor who first diagnosed my Celiac later this week. If he has insight I will bring it back. For right now I think I am going to stick to wine. Meh.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I have problems with one particular Scotch (Bowmore). No other Scotch I've had affects me but this one. So it could be something during the ageing process, perhaps the paste they seal the barrels with. I haven't been able to find out particulars on what they use, which is frustrating because I like this one.

That's interesting. I thought I reacted to Redbreast the time I tried it. Other Irish and Scotch whiskies haven't bothered me. I was wondering if it was in my head. :lol:

Hawthorn Rookie

From a non Gluten viewpoint, are you drinking plenty of water? Alchohol is really dehydrating and I know if I have too much I tend to get cystitis like symptoms. If I take a pint of water before sleeping, not so much of a problem, although i tend to drink water like it's going out of fashion the morning after anyway because I get so thirsty.

It would be a shame to give up your favourite tipple if it's something as simple as needing more water :)

notme Experienced

taking tylenol makes me have all kinds of urinary tract pain. i was skipping ibuprofen for awhile trying to avoid iodine - anything to help make skin clear up. does your bourbon give you a headache? ;) i think this website recommends maker's mark? i use it in recipes as i am not a bourbon drinker.

ERR Apprentice

From a non Gluten viewpoint, are you drinking plenty of water? Alchohol is really dehydrating and I know if I have too much I tend to get cystitis like symptoms. If I take a pint of water before sleeping, not so much of a problem, although i tend to drink water like it's going out of fashion the morning after anyway because I get so thirsty.

It would be a shame to give up your favourite tipple if it's something as simple as needing more water :)

Definitely good advice.

Korwyn Explorer
From a non Gluten viewpoint....

*GASP*

:lol::ph34r::lol::ph34r::lol: BLASPHEMY :lol::ph34r::lol::ph34r::lol:

Don't you know that EVERYTHING revolves around gluten?!?!?!?!?

:D

Jenniferxgfx Contributor

Ok, I have to ask....what is your favorite gluten pain? :D

Gut pain. It makes me feel "normal" after all my reactions that doctors won't link with gluten!

(is that weird? Oh well.)

ndw3363 Contributor

Bladder pain was one of my first symptoms. It lead me to a doctor who put me on two rounds of antibiotics. Which gave me candida problems for 3 years (still fighting it, but winning a little at a time). What worked for me was cutting out starches and sugar for awhile and drink A LOT of water. I try not to drink much - it seems to bring it back every time (although not as severe anymore). I was tested for everything under the sun as well, and was diagnosed with interstitial cystitis. Once I changed my diet a bit, my "condition" went away. I know doctors are just trying to help, but until they get on board with dietary/lifestyle changes and natural ways to heal your body, I won't be going to a traditional doctor again (unless an emergency). I was actually told that what I ate would have no effect on my symptoms - seriously?

Korwyn Explorer

Gut pain. It makes me feel "normal" after all my reactions that doctors won't link with gluten!

(is that weird? Oh well.)

:lol: Define: weird! :)

eatmeat4good Enthusiast

Gluten definitely caused my interstitial cystitis. I was treated for years with antibiotics and always felt I had a bladder infection but it didn't test positive for bacteria. This problem plagued me for years. I thought it was always going to be there. When I went gluten free to deal with muscle weakness and migraines, I was absolutely shocked to have solved the bladder infection problem accidentally.

I have not had one single episode in the 9 months I have been gluten free.

I don't know about the alcohol issue, but I can positively affirm your theory that gluten can cause bladder infection-like symptoms. It was an unbelievable relief to me to be rid of that problem.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.