Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Book To Teach Family About Cc?


Newtoitall

Recommended Posts

Newtoitall Enthusiast

Is there a good book, that's good at explaining CC to someone without Celiac disease?

something that would be good to take with me now and then in case I run into someone stubborn or curious?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I've never seen one, but I think we should start compiling one here of all the ways we have glutened ourselves accidentally or where we have found trace gluten. Good idea.

domesticactivist Collaborator

My son wanted to write a book when we first figured this all out. We should do it!

domesticactivist Collaborator

I like the idea of compiled examples. Going to put out a call for submissions?

Stormy Rookie

This idea is fantastic! Has anyone started it yet?

txplowgirl Enthusiast

I would love to be able to write one but have no idea how to get started.

domesticactivist Collaborator

Let's do it! What should the format be? 500 word essays? An intro explaining cc? Tips following each story with how to have avoided that particular problem?

I have a friend who edits novels and another who got gluten-free recipes published, maybe they can help us get it out there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Stormy Rookie

There should definitely be an intro explaining Celiac Disease. I'm not sure if we should put a number on how many words the person has to write, but maybe put a cap on how many they CAN write, just so one story doesn't become a book. :) Maybe have a section in there on different ways to get the point across without embarrassing yourself or others? Different ways to say that we can't eat gluten or have something with gluten touch our food.

txplowgirl Enthusiast

I'm in, of somebody can come up with how to get it started I'll definitly contribute. That is if I ever remember how to spell corectly. Lol. Oh brother, this may be even harder than I thought.

domesticactivist Collaborator

OK, this'll be fun! I'd be happy to take the lead on the project.

I think the ideal submission would be about 250-500 words. If we got lots of submissions, maybe they could be categorized by the type of cross-contamination, with a little tips section for each. Some ideas for the categories are eating out, holidays, potlucks, pots and pans, and school.

We could have an editorial team of people to choose the stories selected for the book. Oh, and we'd need somebody to figure out the cover art, too. I could write the tips sections and intro about celiac, and have you all review it, of course!

What do you all think?

love2travel Mentor

Perhaps I could also contribute. I have had complex recipes of my own creation published in national magazines. I have also worked as an editor. I am fanatical about correct spelling, grammar, punctuation and so on. You could call me a geek I suppose! :P

IrishHeart Veteran

Is there a good book, that's good at explaining CC to someone without Celiac disease?

something that would be good to take with me now and then in case I run into someone stubborn or curious?

Danna Korn's book Living gluten-free for Dummies is pretty good for introductory info on gluten intolerance/celiac and why we have to avoid gluten and CC. You could always photocopy the sections on CC .

OR --this link has a very good explanation about CC and what to do to avoid it--in products, at home, and at people's houses.

Open Original Shared Link

That will give you something to start with. I know my extended family does not get the CC issues just yet, but they are learning. I sent them info to try and get them to understand it better.

Hope that helps--while we await our book coming out, of course!! ;)

rosetapper23 Explorer

I'd love to help with a book, too! What a great idea! I've worked as an editor and have taught grammar, punctuation, spelling, and writing.....so feel free to call on me if you need any help.

It would be great if you could have separate chapters on cross-contamination at friends' homes, potlucks, restaurants, and one's own home. Also, it would be tremendously helpful to have a chapter with personal stories from DH sufferers' relating their experiences with simply touching gluten. Doctors need to see something in writing in order to understand how very sensitive people with celiac and DH can be.

I hope you run with this story!

domesticactivist Collaborator

OK, I'm going to start working on this project as a part of my business (linked from my profile). The goal will be a book about gluten cross-contamination and how to avoid it. If you want to be on the editing/publishing team, PM me with your email by Friday, July 15th.

Here is the call for submissions - feel free to send it on to your friends, family, and other lists and forums you are on!

*************************************************

The Liberated Kitchen, LLC, is now accepting submissions for a book explaining cross-contamination for friends and family of people with celiac disease or severe gluten sensitivity.

Submission Guidelines

Length: Between 300 and 600 words

Subject: Ideal submissions are true stories about personal experiences with cross-contamination from gluten. They may include (but are not limited to) physical symptoms, unexpected causes of cross-contamination, or the impact gluten has had on your family and friendships. The book will be divided into sections based on categories such as Home Cooking, Travel, Potlucks, School, and Eating Out, so each submission should focus on one type of cross-contamination.

Number of Submissions: You may submit up to 5 essays.

Compensation: There is no guarantee of compensation for your essay. If your essay is used in the book and you provide your mailing address, you will receive a free copy of the book.

Terms: By submitting your essay(s), you agree that

a) it may be published by The Liberated Kitchen, LLC, as part of a book, blog entry, or other publication.

B) you will be given credit for your work with your full name, unless you specify a pseudonym to be used.

c) your submission is true and accurate.

d) The Liberated Kitchen, LLC, may edit your submission prior to publishing it for spelling, grammar, clarity, or length.

Due Date: August 30, 2011

Email submissions to joy at theliberatedkitchenpdx dot com with "Gluten CC Book" in the subject line. Include your full name, best contact information, and a short bio. Pictures may be included.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.