Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Survived Camping!


notme

Recommended Posts

notme Experienced

and didn't get glutened or anything! very very happy with this - last time (memorial day weekend) we camped out and i got sooo sick. i had to come home and eat, etc. i had no idea what i did wrong but i had a couple of ideas for making changes:

1. no more shared ice chest/cooler! i thought if everything was sealed up and packaged/labeled that everything would be ok in a cooler that had *regular* stuff in it. not so. got myself a dedicated one - LOL i thought i would have to put a lock on it but it turns out putting GLUTEN FREE on it is enough to scare anybody off. i don't think anyone even opened it!

2. no more hand sanitizer! walked the extra distance to running water n soap. even after wiping down things with clorox wipes, i went and washed my hands with water water water :)

3. anything i was remotely planning on eating was cooked on my dedicated grill also when reheating things, that way everybody knew not to "oops i stuck the gluten spoon into your food because it was right there with everything else" i separated out my salads and stuff before we went and all leftovers (for me) went right into my trusty cooler.

4. breakfast was home-made cereal bars (chex/cashews/craisins/choc chip/peanut butter) and greek yogurt instead of trying to eat a gluten-free version of what everybody else was having.

5. brought my own sugar for my tea! my kitchen is mainly gluten-free but when it wasn't i didn't think twice about sticking a spoon in the sugar that 'just had flour on it' - also brought my own lactaid (which is considered as horrid as gluten-free food evidently lol)

6. i had my own box for all the other stuff i didn't have to refrigerate and it contained ONLY gluten-free stuff and was well away from all the other rolls/breads/cookies, etc

anyway - the weekend went great and i don't have to be sick all week :) husband smoked some fish that was to *die* for - i marinated it in butter/lemon/fresh thyme salt n pepper. smoked with apple chips it was absolutely delicious. nom nom nommm i think that might be my Fourth Meal tonite. get it: 4th meal :D

i hope everybody had a safe and happy 4th!! if anybody has any good camping tips please DO share - thanx - after the last experience i was so nervous about this weekend.

arlene


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

That is great! Sounds like you did an excellent job of planning and preparing for this trip and your tips are so helpful to the rest of us. Thanks!

JoyVertz Rookie

awesome! your planning paid off. :)

love2travel Mentor

Great job! Now that you have that tackled I bet you will feel more confident with other situations, too! Things like that are truly empowering.

notme Experienced

Great job! Now that you have that tackled I bet you will feel more confident with other situations, too! Things like that are truly empowering.

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

RL2011 Rookie

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

Good for you! Glad to see you have not let your dietary issues restrict your lifestyle.

love2travel Mentor

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

See? That is wonderful! We went to Croatia/Italy in May without any celiac mishaps. Sure, the smells from the bakeries were insanely good but I did it! Trips can really give you a gigantic sense of accomplishment, can't they?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

LMAO :) "Gluten free is enough to scare anybody off I don't think anybody even opened it" with the cooler !

dws Contributor

and didn't get glutened or anything! very very happy with this - last time (memorial day weekend) we camped out and i got sooo sick. i had to come home and eat, etc. i had no idea what i did wrong but i had a couple of ideas for making changes:

1. no more shared ice chest/cooler! i thought if everything was sealed up and packaged/labeled that everything would be ok in a cooler that had *regular* stuff in it. not so. got myself a dedicated one - LOL i thought i would have to put a lock on it but it turns out putting GLUTEN FREE on it is enough to scare anybody off. i don't think anyone even opened it!

2. no more hand sanitizer! walked the extra distance to running water n soap. even after wiping down things with clorox wipes, i went and washed my hands with water water water :)

3. anything i was remotely planning on eating was cooked on my dedicated grill also when reheating things, that way everybody knew not to "oops i stuck the gluten spoon into your food because it was right there with everything else" i separated out my salads and stuff before we went and all leftovers (for me) went right into my trusty cooler.

4. breakfast was home-made cereal bars (chex/cashews/craisins/choc chip/peanut butter) and greek yogurt instead of trying to eat a gluten-free version of what everybody else was having.

5. brought my own sugar for my tea! my kitchen is mainly gluten-free but when it wasn't i didn't think twice about sticking a spoon in the sugar that 'just had flour on it' - also brought my own lactaid (which is considered as horrid as gluten-free food evidently lol)

6. i had my own box for all the other stuff i didn't have to refrigerate and it contained ONLY gluten-free stuff and was well away from all the other rolls/breads/cookies, etc

anyway - the weekend went great and i don't have to be sick all week :) husband smoked some fish that was to *die* for - i marinated it in butter/lemon/fresh thyme salt n pepper. smoked with apple chips it was absolutely delicious. nom nom nommm i think that might be my Fourth Meal tonite. get it: 4th meal :D

i hope everybody had a safe and happy 4th!! if anybody has any good camping tips please DO share - thanx - after the last experience i was so nervous about this weekend.

arlene

I actually accidentally figured out some cc issues when I went camping for the first time in many years. I felt a lot better while camping and upon my return, tightened up on precautions in our gluten filled kitchen at home.
notme Experienced

Good for you! Glad to see you have not let your dietary issues restrict your lifestyle.

richard: the dietary issues, i am realizing more and more, are the *easy* part of celiac! because i can control this 'junk' body lol :D as my symptoms go away (YES it's really taking this long!!) my 'restrictions' are peeling away like layers. ie: we have a piece of property on the river we are planning to build a house on eventually. we have been camping there for a good 10 years and the cove is shallow water until you get out to the channel. a good place to float :) i never wanted to float very far from shore (just in case! keep that bathroom in sight!) never realized i was even doing that - sticking close - until this sunday when one of the two year olds wanted to swim ALL THE WAY ACROSS (he has little floaties and i was not three feet from him) and i just smiled and went along with him. very far from shore!

i think there are going to be alot more realizations like this - either deliberately or subconciously i have restricted myself.

notme Experienced

See? That is wonderful! We went to Croatia/Italy in May without any celiac mishaps. Sure, the smells from the bakeries were insanely good but I did it! Trips can really give you a gigantic sense of accomplishment, can't they?

you are gonna make me google 'croatia' lol i have no idea where that is. but i'ma find out :)

love2travel: i always love your posts! i love to cook, too, so you are very inspiring - i will never think of lemongrass again without thinking of you ;)

notme Experienced

LMAO :) "Gluten free is enough to scare anybody off I don't think anybody even opened it" with the cooler !

lol i'm thinking of marketing the phrase as a theft deterrent <sp? or smuggling diamonds hahahaha

notme Experienced

I actually accidentally figured out some cc issues when I went camping for the first time in many years. I felt a lot better while camping and upon my return, tightened up on precautions in our gluten filled kitchen at home.

if you have more advice, please do share!!

ugh. the first time was a *nightmare* - i honestly felt, by the end of the weekend, that there was NOTHING i could eat there at all. i went home because i was hungry and sick :(

love2travel Mentor

you are gonna make me google 'croatia' lol i have no idea where that is. but i'ma find out :)

love2travel: i always love your posts! i love to cook, too, so you are very inspiring - i will never think of lemongrass again without thinking of you ;)

Croatia is on the Mediterranean. The province where our house is called Istria which is a peninsula shaped like a cluster of grapes right across from Venice (2 1/2 hours by ferry or car). The country is very oddly shaped - probably the weirdest shape in the world. Much of it is very long and skinny - you must go through Slovenia when you drive from Italy and you go through a part of Bosnia further south. A incredibly beautiful country - parts remind me of Italy (it was under Venetian rule years ago) so many people in Istria speak Italian. Further south it hugs the coast for hundreds of miles (the skinny part of the country). So you get your ancient hilltop villages, tons of Roman ruins (i.e. an amphitheatre that was built the same time as the Coliseum in Rome), lovely coast and sea, tons of forest, gorgeous climate...I could go on for hours but won't. The people are amongst the friendliest I've encountered in any country. The culture and history are fascinating and the language is interesting (trying to learn it).

Thanks for the sweet words! I'm glad you'll never think of lemongrass the same. Speaking of which, I looked for it this morning and there was none. Darn it - will have to re-think a dessert. We are having company for the weekend.

notme Experienced

it looks very beautiful!! naturally, part of it borders hungary (i should know this stuff, my grammy was full on hungarian - just about born on the boat to america lol) hope to visit that area one day :)

love2travel Mentor

it looks very beautiful!! naturally, part of it borders hungary (i should know this stuff, my grammy was full on hungarian - just about born on the boat to america lol) hope to visit that area one day :)

It is simply stunning. You're right - it does border Hungary as well. As we go 2-3 times per year I think our next May trip will include a week in Hungary first. I truly do hope you are able to visit there, too! I could not begin to explain how wonderful most of Europe is - it defies words.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,127
    • Most Online (within 30 mins)
      7,748

    Steve715
    Newest Member
    Steve715
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.