Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pruritus Ani


ABQturkey

Recommended Posts

ABQturkey Rookie

This is utterly embarassing, but has anyone else suffered from this as a symptom of a food allergy? I've been tested for celiac disease twice (blood test - both negative) because my 9yo daugter was diagnosed with it 4 years ago. I went to a colo-rectal surgeon because I thought he would be able to help me, but he told me I had this condition and that it was probably the most common thing that he diagnoses, yet I had never heard of it. Then I went to an allergist who did the skin prick test, but apparently I'm not allergic to anything - I cried. I was hoping he would have an answer for me and I could go home and avoid this or that and it would clear up. I'm so miserable - this has been going on for a long time and it's ruining my life. I'm doing an elimination diet, but funnily enough, I can eat potatoes, tomatoes and peppers, which kind of surprised me. I haven't seen anyone mention this before, maybe because of the nature of the condition (look it up - I'm not going to go into the gorey details). Is there anyone else out there who knows what I'm going through? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Goddessheart Newbie

This is utterly embarassing, but has anyone else suffered from this as a symptom of a food allergy? I've been tested for celiac disease twice (blood test - both negative) because my 9yo daugter was diagnosed with it 4 years ago. I went to a colo-rectal surgeon because I thought he would be able to help me, but he told me I had this condition and that it was probably the most common thing that he diagnoses, yet I had never heard of it. Then I went to an allergist who did the skin prick test, but apparently I'm not allergic to anything - I cried. I was hoping he would have an answer for me and I could go home and avoid this or that and it would clear up. I'm so miserable - this has been going on for a long time and it's ruining my life. I'm doing an elimination diet, but funnily enough, I can eat potatoes, tomatoes and peppers, which kind of surprised me. I haven't seen anyone mention this before, maybe because of the nature of the condition (look it up - I'm not going to go into the gorey details). Is there anyone else out there who knows what I'm going through? :(

Yes, me. I had it from gluten. I kept thinking my kids had given me worms lol. Now I sometimes get a different version where.. um well it's like when I go to the toilet it feels like it's burning, and then later (I think because the irritation is healing) it itches. I am pretty sure that is a food reaction, but I don't know what to. I used to think casein but not so sure now.

txplowgirl Enthusiast

Yes. I get it when I've been glutened.

Korwyn Explorer

Yes, I used to suffer from this horribly. I didn't know it had a name until now and I never associated it with celiac disease or gluten!! When I read this I realized that I haven't experienced this is at least a year or more! I used to deal with it every few days and it has faded away!!! Wow! Another thing to chalk up to going gluten-free/CF that I didn't realize had changed.

jenngolightly Contributor

I had this for years and years. :(

It still bothered me even after I went gluten-free. However, it FINALLY cleared up when I went on an elimination diet and found I was allergic to tree-nuts and intolerant to corn. After removing these from my diet, the symptom cleared up.

I totally feel for your misery. I hope you feel better soon. Maybe you are intolerant to something else and can find what it is with an elimination diet? Is it constant? Have you kept a food diary?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748

    STy
    Newest Member
    STy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.