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Blood In Stools And Coeliacs


Bex1391

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Bex1391 Newbie

I began with rather abit of blood coating my stools about 4 months ago, it was only that much once and since then its only been a small bit. I spoke to my doctor who sent me for blood tests straight away 3 months ago. I tested positive for coeliacs. Still waiting for results from endoscopy but dr said my small intestines look fine. (not had biopsies back yet). Regardless of this he says because of highly positive blood test he will be diagnosing me with coeliacs. I have been gluten free for 2 weeks and am still having a small amouny of blood on the surface of my stools every other day, like a small line. My GP is still saying this coeliacs. But should it still be happening every other day after 2 weeks?! Has anyone else had anything like this? Or blood in stools at all. Im only 20 and very worried so would be nice to hear if anyone has had anything like this.


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beachbirdie Contributor

I began with rather abit of blood coating my stools about 4 months ago, it was only that much once and since then its only been a small bit. I spoke to my doctor who sent me for blood tests straight away 3 months ago. I tested positive for coeliacs. Still waiting for results from endoscopy but dr said my small intestines look fine. (not had biopsies back yet). Regardless of this he says because of highly positive blood test he will be diagnosing me with coeliacs. I have been gluten free for 2 weeks and am still having a small amouny of blood on the surface of my stools every other day, like a small line. My GP is still saying this coeliacs. But should it still be happening every other day after 2 weeks?! Has anyone else had anything like this? Or blood in stools at all. Im only 20 and very worried so would be nice to hear if anyone has had anything like this.

Is the blood fresh and bright?

Has anyone told you whether you have perhaps a hemorrhoid or fissure or possibly diverticulosis? I have experienced the stripe of blood, never been sure if it's the little internal hemorrhoid they found, or related to diverticulosis. Are you getting plenty of fiber/fresh fruits and veggies? Not necessarily saying that is what you have, it is just one possibility. I'm definitely not a medical professional, just offering one more thing to think about.

beachbirdie

maximoo Enthusiast

Have you had a colonscopy? if you haven't had one I would ask Dr to order one.

ravenwoodglass Mentor

Have you had a colonscopy? if you haven't had one I would ask Dr to order one.

I agree strongly with this. Chances are it is hemmies but you really want to find out for sure.

GFinDC Veteran

I had blood in the stool also. It stopped after I Was gluten free a while. I also had black stool which is said to be caused by blood.

Since you have only been gluten free for 2 weeks it is not surprising that you aren't completely healed. Especially since it is fairly common for people new to the diet to make mistakes and not realize they are eating gluten. Gluten can be found in lots of processed foods and is not always easy to identify. It is good to stick with a whole foods diet when starting out, and also to drop dairy and soy for a few months.

Bex1391 Newbie

It is fresh and bright, im trying to eat more fibre now as i have suffered with constipation for a long time. What exactly is a whole foods diet? Im going to ask for a colonoscopy too I think! Thanks for everyones input :)

ravenwoodglass Mentor

It is fresh and bright, im trying to eat more fibre now as i have suffered with constipation for a long time. What exactly is a whole foods diet? Im going to ask for a colonoscopy too I think! Thanks for everyones input :)

Whole foods are simply foods that have not been processed or single ingredient foods. Fresh meats, fish, chicken, eggs, fresh or single ingredient frozen fruits and veggies, potatoes, plain and wild rice are examples of whole foods.

Your tummy may tolerate cooked veggies and fruits the easiest at first and if you haven't been eating a lot of fruits and veggies increase them slowly. Sweet potatoes are an excellent source of both soluable and insoluable fiber if you like them.


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Bex1391 Newbie

Thank you I will try that, if im completely honest the blood started about 9 years ago but used to just be on the tissue now and again when i wiped, got worse over the years not sure if its the same thing though

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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