Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now?


rachbomb

Recommended Posts

rachbomb Rookie

Hi everyone,

I'm hoping for some "veteran" advice here. I have been gluten free since Jan. and dairy and soy free since Feb. After making slow progress I added probiotics (per my doc) and by May was starting to feel about 80-90%. The past few weeks have been bad - and seem to be different than my gluten symptoms. Over a week ago I got some moderate gas pain on the right side for a few days and then about a week of D. Then for the last 4 days I haven't had a bowel movement but have a lot of gas. WHAT IS GOING ON? I called my doc after the first few days of D (because that is an unusual symptom for me) and he had me switch probiotics and said to wait it out a week or two. I just want to feel normal again. I don't care about what I can't eat but if I have to avoid my favorite foods I just want to feel good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



organicmama Contributor

Are you sure the probiotics are dairy free?

Marilyn R Community Regular

What are you eating besides the suspected probiotics?

rachbomb Rookie

They are definitely dairy free (I made that mistake a few months ago). I am eating the exact same that I have been eating for the past few months - very little processed food and I don't eat out besides the occasional trip to Chipotle.

  • 2 weeks later...
rachbomb Rookie

Does anyone have any ideas? I just went to see my Doc and she said "well, you might have IBS too". ARG! I'm willing to do another elimination diet if needed but I barely even know where to start. Plus, I need to stop losing weight (I was finally stabalizing after 4-5 months of being gluten-free but the past month has been bad again).

Reba32 Rookie

did the new symptoms start immediately after starting the pro-biotics, or sometime after?

It could be additional food intolerances, or it could be a virus, or it could be a low grade bacterial food poisoning even. Something you're eating is not agreeing with you. Take a good look at everything, re-read labels, and maybe initially just stay away from the "usual suspects" like dairy, soy, peanuts and nuts for about a week and see what happens.

notme Experienced

are the probiotics in a capsule? i have to empty the contents of my blood pressure meds out of the capsule when i take them b/c i get a reaction from the capsule - it's made from 'starch' (unspecified) and it contains dye. something in that capsule makes me sick, though. that was a tough one to figure out :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,806
    • Most Online (within 30 mins)
      7,748

    MoonBear
    Newest Member
    MoonBear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
    • Colleen H
      I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
    • wellthatsfun
      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.