Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Learning...

speedy2056

Recommended Posts

speedy2056 Apprentice
speedy2056
Posted

I've been moody in the past couple of days as well as feeling confused and today I've just made the discovery that the bottle of diet Pepsi that I have been consuming this week has barley gluten.

Man, this stuff is in everything!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Salax Contributor
Salax
Posted

Never heard of diet pepsi having malt barley??

love2travel Mentor
love2travel
Posted

Never heard of diet pepsi having malt barley??

Me, neither. In fact, it is certified gluten free (scroll down to the ingredients). Open Original Shared Link

Aspartame bothers me so I do not consume it any longer. Perhaps that could be an issue?

speedy2056 Apprentice
speedy2056
Posted
  • Author

It says on the bottle that it contains barley gluten in the allergy section on the label. It's a supermarket's own brand type. I can take a pic to prove it if you wish? I'll upload it to my photobucket.

speedy2056 Apprentice
speedy2056
Posted
  • Author

Pics:

http://s23.photobucket.com/albums/b361/Speedy2056/?action=view&current=DSCF5184.webp

http://s23.photobucket.com/albums/b361/Speedy2056/?action=view&current=DSCF5189.webp

Bubba's Mom Enthusiast
Bubba's Mom
Posted

OMG! Is nothing safe? :angry: Pour that poison down the drain..and drink lots of water.

I hope you feel better quickly now that you know what was getting you.

love2travel Mentor
love2travel
Posted

It says on the bottle that it contains barley gluten in the allergy section on the label. It's a supermarket's own brand type. I can take a pic to prove it if you wish? I'll upload it to my photobucket.

My apologies. I thought you were talking the original Diet Pepsi! How weird. I have never heard of gluten in pop aside from a root beer flavour (do not recall the brand). I am thoroughly disgusted and feel for you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

I would never have believed it if I hadn't seen it. I'm sorry you're feeling bad.

speedy2056 Apprentice
speedy2056
Posted
  • Author

Thanks for the well wishes, guys! I'm passing the bottle of Pepsi to friends of mine. There's still half left so there is no point in letting it go to waste. I'll be sure to read bottles of soda now in future, too.

I hope you guys have learnt from this for your own well being, too. :)

love2travel Mentor
love2travel
Posted

Thanks for the well wishes, guys! I'm passing the bottle of Pepsi to friends of mine. There's still half left so there is no point in letting it go to waste. I'll be sure to read bottles of soda now in future, too.

I hope you guys have learnt from this for your own well being, too. :)

I am very glad you posted this. It is very interesting but I am sorry you had to find it out the hard way.

Takala Enthusiast
Takala
Posted

The only quibble I have with your description is that in the first post you're calling it "Diet Pepsi" when it is actually a generic diet cola marketed in the UK, "Sainbury's," which contains the barley.

Not clear for what purpose, but when I compare the 2 ingredient lists it looks like the barley might be to make the caramel color.

Don't want to scare people here across the pond who are swilling the diet Pepsis.

Salax Contributor
Salax
Posted

My appologies as well, I thought it was the original Diet Pepsi as well. Weird that soda should have it, but then again other "weird" things have gluten and we all know how frustrating that can be.

I hope you feel better. :(

speedy2056 Apprentice
speedy2056
Posted
  • Author

Yes, I'm from the UK so it's a British version, but I did say it was the supermarket's own brand, not the proper brand of Pepsi.

There has been ONE good thing about this experience! At least now I know I'm definetely Celiac because my blood tests came back negative, so I didn't know whether I was just allergic to wheat itself. Now I know the test was definetely wrong because I have just isolated the gluten by mistake. Ha! :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.