Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow - gluten-free Really Makes A Difference!


AMom2010

Recommended Posts

AMom2010 Explorer

I have to say I am actually surprised at the results I've seen after being gluten-free for almost 2 weeks. I had a negative celiac panel, but was still convinced gluten was the culprit after reading so many of the topics on this forum and getting feedback from so many smarties on this board.

I started my gluten-free diet, but was eating non gluten-free oatmeal for breakfast (I was very skeptical that CC could be an issue). After 4 days, I began eating rice Chex for breakfast and about 36 hours later the joint pain in both my wrists vanished! I tried to eat oatmeal again after another 4 days and the wrist pain returned within an hour! I was honestly shocked. A couple of days after the latest oatmeal meal, I broke out with several pimples on my face (5 in a day) and the itchy armpits returned for a couple of hours.

I'll have to buy some gluten-free oatmeal as it has always been one of my favorite breakfasts (with brown sugar and toasted sliced almonds, yum!)

I am now very hopeful that the ataxia and anxiety will begin to subside as well. I am very encouraged to keep going! A very big, sincere thank you to everyone on this forum for sharing your knowledge with me!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Food for Life



Celiac.com Sponsor (A8-M):
Authentic Foods


gem75 Rookie

That's great news!

I've been gluten-free for almost a month and prior to going gluten-free i had a tooth that was bothering me. Anytime hot of cold would touch it I would have immense pain. I got the tooth filled but still had problems. I just simply couldn't eat food on that side. Well just recently I let cold touch it and it didn't bother me. I'm convinced going gluten-free has done this.

Now to get off zoloft, I'm on my way , and my BP meds:)

wheeleezdryver Community Regular

that's great!!! :)

T.H. Community Regular

COngrats on finding out what's working for you! Wishing you luck on feeling better again!! :D

GFinDC Veteran

There some people with celiac who react to oats like they react to other gluten grains. So it might be a better idea to stay off the oats , even gluten-free oats, for a month or two until you are better in tune with your body gluten free and know the diet better. There are other breakfast cereals you can eat, like BRM mighty tasty gluten-free hot cereal, or hot quinoa or hot rice too. Some people like corn grits for breakfast and there were a couple threads about how to fix/eat them not long ago.

I don't usually eat cereals anymore myself. I eat foods for breakfast that most people would consider dinner. It is not a bad idea to limit your carbs on gluten-free and also make sure you get some protein with every meal. Proteins keep your energy at a more even level than carbs do, and many grains are cc with gluten anyway.

I use to eat oatmeal every day myself but stopped when I found it caused me symptoms. They estimate 10 or more percent of people with celiac react to oats. So they just aren't safe for some people.

anabananakins Explorer

I have to say I am actually surprised at the results I've seen after being gluten-free for almost 2 weeks. I had a negative celiac panel, but was still convinced gluten was the culprit after reading so many of the topics on this forum and getting feedback from so many smarties on this board.

I started my gluten-free diet, but was eating non gluten-free oatmeal for breakfast (I was very skeptical that CC could be an issue). After 4 days, I began eating rice Chex for breakfast and about 36 hours later the joint pain in both my wrists vanished! I tried to eat oatmeal again after another 4 days and the wrist pain returned within an hour! I was honestly shocked. A couple of days after the latest oatmeal meal, I broke out with several pimples on my face (5 in a day) and the itchy armpits returned for a couple of hours.

I'll have to buy some gluten-free oatmeal as it has always been one of my favorite breakfasts (with brown sugar and toasted sliced almonds, yum!)

I am now very hopeful that the ataxia and anxiety will begin to subside as well. I am very encouraged to keep going! A very big, sincere thank you to everyone on this forum for sharing your knowledge with me!!

Yay! It's awesome, isn't it? For what it's worth (your experiences could be totally different but they sound similar so far), I felt great generally pretty fast but the neurological issues took longer to resolve. My ataxia started to seem a lot better from about 6 weeks, it probably took 3 months to be really good. I was unsure about the anxiety as 7 months in it nothing had changed and my doctor said it might be unrelated, but another 6 months has passed since then and I feel so much calmer, so it could be a coincidence or it might have taken that long.

AMom2010 Explorer

Oh no, I hope I don't have to give up oatmeal! Thanks for the tip though.

Ana, I feel so good I don't imagine I will ever go back to eating gluten again. Hopefully like you I will see the neuro symptoms improve at some point. `


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Authentic Foods
Food for Life



Celiac.com Sponsor (A8-M):
Food for Life


Jenniferxgfx Contributor

Omg you get itchy armpits too???? Mine have bothered me since I was a kid and now I get some relief! Unless cc'd :(

I'm a month into being gluten free after a negative biopsy and feel like a new person. screw the tests. :/

I glutened myself with oatmeal too, but it was Aveeno lotion. I though I'd be ok too. Live and learn I guess.

Yay you!

AMom2010 Explorer

Yes, Jennifer, isn't gluten intolerance glamorous?

Jenniferxgfx Contributor

I feel like a rock star ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,025
    • Most Online (within 30 mins)
      7,748

    kdking61
    Newest Member
    kdking61
    Joined

  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    NutHouse! Granola Co.



  • Upcoming Events

  • Posts

    • Diana Swales
      After years of living with Celiac Disease, learning through every bump and breakthrough, and guiding others through the gluten-free maze — I've officially qualified as a **Nutrition Coach** with Precision Nutrition. Now I’m ready to take this journey deeper… but I need your help. To complete my final certification hours, I’m offering **a limited number of FREE spots** (yes, completely free!) to work with me over the next few weeks. I’m looking for **5 people** who: Are newly diagnosed with Celiac Disease or gluten-intolerant Feel overwhelmed, confused, or frustrated with food Want support from someone who truly understands Are ready to build confidence and calm in their daily eating We’ll work together on what matters to *you*: Your food choices Your mindset Your kitchen habits Your ability to speak up for your needs This isn’t just about avoiding gluten — it’s about reclaiming ease, joy, and nourishment. If you're interested, comment below or DM me the word **"Ready"** and I’ll send you the info to get started. Let’s make food feel safe again. With care, **Diana**
    • Dora77
      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue), and the other hand to touch my gluten-free bread and plate. But today I accidentally touched the bread with the same hand I used to grab the cheese pack from the fridge. The fridge handle might also have traces of gluten since I live in a shared household where gluten is used. I’m worried this mistake could have contaminated my bread. There were no visible crumbs or flour, but I know even trace amounts can be a problem. Has anyone had similar experiences or symptoms from this level of contact? Could this kind of exposure be enough to trigger symptoms or cause intestinal damage? Thanks for reading.
    • Mswena
      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill certified gluten-free. Good luck everybody this autoimmune disease is wicked wicked
    • Mswena
      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
    • ShariW
      These look great!  I follow several people who frequently post gluten-free recipes online (plus they sell their cookbooks). "Gluten Free on a Shoestring" and "Erin's Meaningful Eats>"
×
×
  • Create New...