Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"it'll Be Ok She Will Outgrow It If You Give It To Her Each Day"


come dance with me

Recommended Posts

come dance with me Enthusiast

I took my daughter to work with me yesterday for the afternoon because my mum was in town so she gave her the day off school and I told work I can work longer if my mum could bring her out to me which made their day too.

Anyway I told them that she isn't to play with the playdough because it's made with wheat flour and with her autism she put things in her mouth like a toddler would. I explained to them that she has Coeliac disease and was basically told I'm making her worse by keeping her away from it and that she'll outgrow it if I let her have gluten each day without restricting her like I am now.

What made it worse is that they then agreed to not let her play with the playdough but then they let her and not only that but they watched as she ate some of it. I went to that side to find a water bottle belonging to one of the children in my group and saw her eating it with them at the table! I told them off for it and the response again was "It'll be ok she will outgrow it if you give it to her each day" she then went on about how her daughter was born with it but outgrew it by the time she was in primary school (5) because she made sure she gave it to her daughter every day.

I think she thinks it's something else because you cannot diagnose it in a BABY and they do NOT outgrow it!!!

I have a very sick little girl with me now :( It wasn't worth the extra bit of time. I should have got my mum to drop her to the daycare mum then worked until 5 like normal but no I took the oportunity to work more by having her with me. All for the sake of an extra 1 hour of work!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jungle Rookie

Would this not be a case of abuse, or assault?

Intentionally causing harm. You explained she couldn't have these things because it would hurt her and they then intentionally (although they agreed otherwise!) gave it to her. And now she is hurt!

I am so mad for you!! The mommma bear in me wants to go tear a strip off them and make them understand exactly what they have done. If they had said they weren't able to follow your instructions you wouldn't have left her there. Why do they think they know more than you about YOUR child?

love2travel Mentor

Talk about disturbing and incredibly frustrating. I really feel for you and empathize with your plight. I hope your precious little girl gets well very soon. Not sure what to do about that mortifying situation, though. :angry: I can only try to imagine how sickened you must feel. :(

come dance with me Enthusiast

They wonder why I don't like them on that side. No more will I offer to take her so I can work later for them. My poor boss was the one I took it out on the most but it wasn't her fault either.

Dave-KC Newbie

It's got to be tricky when dealing with family and any type of sickness or allergy. I'm glad that my mother-in-law is really good at not assuming that she knows the answers from when she raised my wife. That's a big, big help, except she almost goes the other way.

Having to deal with family though is reality, and as much as I'm sure all of us wish it would just go away, it doesn't. I wonder if there are good resources for extended family members about celiac? Some type of helpful pamphlet might be good (or if web savvy, send them to celiac.com).

Jestgar Rising Star

How much of a fuss do you want to raise? Write a letter stating that you informed these people that your child has Celiac disease, and specifically stated that she must be kept away from playdough. A short while later you discovered that not only had they given it to her to play with, but they were deliberately allowing her to eat it.

State that you will keep your child away from them to the best of your ability, but if you ever see them deliberately harming your, or any other child again, you'll file criminal charges. Ask to have a copy (signed by the offender(s) put into each of their employee records.

You will have done nothing directly to anyone, but you will have made the seriousness of their actions very clear.

come dance with me Enthusiast

Lucky for me they are not family nor will she have to be there anymore. It wasn't a normal occurance only that my mum was able to have her for that time then take her to my work before she went home so I was then able to work later to make it easier on my workplace. Normally she's with someone else in the afternoons not at my work. I will probably take it to the state level.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



melikamaui Explorer

I agree with the others who say this needs to be reported. You should also inundate them with material on celiac disease and insist they read it. How dare they do what they did to your poor child! Would they give a child with a peanut allergy just a little bit to get her over it? Why would they assume that they know better than you? That is maddening! They need to be reported. They're going to kill someone with attitudes like that.

come dance with me Enthusiast

I agree with the others who say this needs to be reported. You should also inundate them with material on celiac disease and insist they read it. How dare they do what they did to your poor child! Would they give a child with a peanut allergy just a little bit to get her over it? Why would they assume that they know better than you? That is maddening! They need to be reported. They're going to kill someone with attitudes like that.

That's a concern I have over it but then the entire centre is a nut-free centre even for staff.

Jungle Rookie

They could choose to do the same thing with dairy, or eggs. No child is safe with the attitudes they had shown.

I love your quote!

mommyto2kids Collaborator

Yesterday I read lots of things from an interesting site. Plug into your search engine "Dr. Alessio Fasano Articles and Publications". Then click on Youth Connection on the L. Then book mark this site. It will help you. The Celiac Spruce Foundation has a good letter for teachers also. I can relate to your story but on a smaller level. My son had a medical note turned in for behavior and food colorings form and signed by his Dr. His teacher tossed it aside. Said she did not believe in behavioral food allergies and fed him the food coloring treat 3/4ths the time. I could always tell on a day when she had. I'd say to my son, "They fed you red or blue cup cakes today didn't they?" He learned to beleive that his behavior is affected by what he eats when he could see that I could tell by how he was acting. I feel that the only kids to get real consideration are the ones with analphalactic issues. But what about the others?!

Brenna'sMom Newbie

This makes me very angry. How dare they go against your wishes in regard to a medical condition?! This should definitely be reported. Their job is to care for the child, not make medical decisions that go against every single piece of evidence related to her condition. That could cost the facility its license.

I'm sorry this happened to your sweet girl. I hope she's feeling better quickly.

PadmeMaster Apprentice

This makes me very angry. How dare they go against your wishes in regard to a medical condition?! This should definitely be reported. Their job is to care for the child, not make medical decisions that go against every single piece of evidence related to her condition. That could cost the facility its license.

In my opinion, that's needs more than just reporting. Does your job have a newsletter or something? Talk to the editor! Let everyone at your job find out how much they hurt your little girl! Personally, I'd be outraged too! That is like the daycare that BigBro (18m) is in saying "No, he'll outgrow his need for food. We aren't feeding him". Gluten Free is just as important to your little girl as eating is to any other child!

Also, no one suggested this, but if your daughter likes playdoh, you might try the Moondoh and Moonsand (when she's older, on that one). They are specifically labeled Gluten Free ;)

Edit: change some words :ph34r:

come dance with me Enthusiast

Yeah she wants moonsand for her birthday coming up and she'll be 8 then. I make it with the safe flour anyway.

domesticactivist Collaborator

With attitudes and practices like these, these people are going to kill a child someday. At the very least, this must be reported to the local agency regulating day cares.

frieze Community Regular

this is battery and willful child abuse, these workers should lose their ability'license to work in that venue, immediately.

come dance with me Enthusiast

Unfortunately it's not that easy.

domesticactivist Collaborator

What is the challenge? Why can't you report them?

come dance with me Enthusiast

I can report them. I can't explain more about it. I don't know how it works where you are but you can't report them then have them removed from their position. My word against theirs and all that.

domesticactivist Collaborator

I'd think whether they lose their job would be up to the manager, and whether the facility loses a license is up to the government. One report probably wouldnt do it. But complaints are important because the next time someone complains there will be a history which will make it be taken more seriously.

frieze Community Regular

I can report them. I can't explain more about it. I don't know how it works where you are but you can't report them then have them removed from their position. My word against theirs and all that.

I'm...thnking..you're..in..UK...but..why..can't..you..go..to..police..and..file..a..complaint...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

    2. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    5. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748

    TDeb
    Newest Member
    TDeb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.