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My Newly Diagnosed 8 Year Old Son


vveloso75

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vveloso75 Newbie

My 8 year old son was just recently diagnosed for celiac disease and/or allergy to wheat. He loves asian food specifically filipino food, how can I safely prepare a gluten free filipino food? Help!!!


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seezee Explorer

You may want to see Ming tsai's website, Open Original Shared Link

He is very active with food allergy issues and cooking of course

You can get gluten-free soy sauce.

We just found a line of frozen gluten-free Chinese dumplings etc. I threw out the box, but they ave them at whole foods.

T.H. Community Regular

For soy sauce - there is gluten-free soy sauce or something called coconut aminos. gluten-free soy sauce is really just the traditional soy sauce that existed before wheat was used. It's a bit stronger than soy sauce we use now, so you want to use a little less, usually. Coconut aminos are a little sweeter and a little less salty, so you have to adjust that way.

Thai kitchen has a lot of gluten-free products, like their fish sauce, I believe, and some of their seasonings, too.

You might try the thai rice wraps for some things that need a wrap, like deep friend banana and mango - not sure if they'd fry well, but might be worth trying.

For something like siopao, you can either buy a gluten free mix version of all purpose flour and try that, or you can make your own from a mixture of gluten-free flours. There are many recipes for flour mixtures out there to choose from and see what works. I think something with rice flour and xanthan gum will likely work better, based on the elasticity you'd need for the buns, but I'm not certain. I imagine if you look for gluten free siopao, you might find something. :-)

One thing for gluten-free dough is that it is usually softer/goopier than normal doughs, if you want it to turn out the same way. So I'd cook something like siopao in a pan that can help it keep it's shape, like maybe a muffin pan, perhaps. Otherwise, it'll likely flatten out too much.

Calamansi juice and a few other foods imported from the Philippines, you'll have to check to make sure there's no gluten cc issues in any factories where they're made, or gluten derived flavorings and such. I am not certain if, for things like natural flavorings and caramel coloring, they are more like the USA and use corn derivatives, or more like Europe and use wheat derived flavorings and such. You'll probably need to either ask, or start finding ways to make your own flavorings/juices/etc...

We bought a calamansi tree to try and get our own juice that way. Fish sauce was a little more work than we were willing to do, though. ;-)

pricklypear1971 Community Regular

My 8 year old son was just recently diagnosed for celiac disease and/or allergy to wheat. He loves asian food specifically filipino food, how can I safely prepare a gluten free filipino food? Help!!!

I found these recipes the other day, and the siopao uses non-gluten rice flour. If you read the comments, some people go round and round with it but many have success. Open Original Shared Link

And this one: Open Original Shared Link

Most dishes are made as usual, if you can find the gluten-free ingredients mentioned above.

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    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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