Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Missed?

dreamfish

Recommended Posts

dreamfish Newbie
dreamfish
Posted

Hi, I've been on gluten-free diet for 1 month now. had very bad blister all over my back, butt, legs for 2 months; 2 weeks after I started gluten-free diet, it slowly healed. I would say that now, I don't have any open sores just scars from the lesion.

I've been pretty careful with gluten-free + Iodine free with food and products. Last night, went to a Chinese restaurant, brought my own soy sauce and iodine free salt for them to cook my meal. This morning, I found a huge blister on my leg where one of the old lesion use to be. as you can see on the picture, the skin over the blister is thicker so it didn't break yet. but it is still filled with fluid (i can feel it) and it's very itchy. My question is "what did I missed?" is it just because I went to a restaurant? or maybe there're still gluten left in my body and just acting up. I know this form of blister is already much better than the ones I've got before, small and easily breaks/spread. I'm just very frustrated. any thought/comment would be greatly appreciated. Thanks. -Megan

DSC04883.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Asian cuisine is always risky. I ate an Asian-fusion restaurant that has a celiac menu and had some hand swelling the next day.

It's just a tough cuisine. Good news is you can make basic dishes safely at home. Maybe wait til you've been gluten-free longer before trying again, or try a different restaurant.

rosetapper23 Explorer
rosetapper23
Posted

I NEVER eat in a Chinese or Japanese restaurant (except PF Chang's), because I always get sick afterwards. I assume it's because they're cooking the food in a pan that had regular soy sauce in it earlier or the grill wasn't cleaned. Oftentimes, there's a language problem, and I assume that they truly don't understand how sensitive a person with celiac can be.

cyberprof Enthusiast
cyberprof
Posted

I NEVER eat in a Chinese or Japanese restaurant (except PF Chang's), because I always get sick afterwards. I assume it's because they're cooking the food in a pan that had regular soy sauce in it earlier or the grill wasn't cleaned. Oftentimes, there's a language problem, and I assume that they truly don't understand how sensitive a person with celiac can be.

Same here. Exactly.

dreamfish Newbie
dreamfish
Posted
  • Author

Thanks for the replies. Since the beginning of my gluten-free diet, I've always thought that Asian restaurant would be safer choice for me, since there's always plain rice and stir fry vegetables. I agree that language is a huge problem. I had to explain to the waitress many time why I had to bring my own soy sauce and salt. also have a friend who is Cantonese to translate for me, so I thought I was safe. oh well.

My lesion this time is different. the bubble just store a massive amount of fluid inside, without bursting. does anyone knows why or what to do? it's been 2 days.

Megan

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748
    Mary Pack
    Newest Member
    Mary Pack
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.