Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Deployed In Afghan With Celiac


mike10217

Recommended Posts

rosetapper23 Explorer

I know that I mentioned this possibility above....but it bears repeating. With regard to the brain fog, it can also be caused by malabsorption of certain vitamins, most notably Vitamin B12 and Folic Acid. These can easily be checked by your doctor there (I assume?). If not, ask if you can be given sublingual Vitamin B12 tablets to suck on. If Vitamin B12 is the issue, you'll start feeling better within a day or two. If these tablets aren't available, ask a family member to send you a bottle. Being low in Vitamin B12 can be dangerous, especially if your body isn't absorbing it at all. It's common for people with celiac to sometimes have to get injections of B12. Another possibility is a thyroid condition, which celiac tends to spawn. If you haven't already done so, you should ask that your thyroid be checked.

I'm so very glad to hear that following a gluten-free diet is helping to resolve your symptoms. It sounds as though you have your answer!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

My aunt has been sending me gluten free packages, like gluten free bread,peanut butter and jelly, just stuff like that, and I have bene eating salads, and meats mainly , I only have a month left here in afghanistan so im not to far away from home, I just really want this brain fog to go away it sucks! Everything else feels amazing, I have never felt so good and its only been a week and a half, if it wasnt for this brain fog I would feel perfect. Just wanted to see if it was part of the celiac disease.Also I know a lot of people are wondering if its possible to be in the military and deploy with celiac disease... and I strongly suggest finding another career path, military does not cater to celiac at ALL...

Yes brain fog is often part of celiac. As was mentioned sublingual B12 tablets may help with that. While I am glad the diet is helping you please be aware that if you need to be diagnosed when you get back to the states you will need to get back on gluten for about 3 months or so first. Please stay safe and let us know that you have come home safely. We worry about all you guys and gals even when we don't know you personally. Take Care and thank you for the tough job you are doing.

rosetapper23 Explorer

Mike,

One more thing--you mentioned that you're at the end of your Afghan tour; however, will you be in the service much longer? My understanding (and if anyone knows that this has changed, please jump in) is that celiacs may not serve in the military...and they are honorably discharged. If this is something that you DON'T want, you may wish to seek a diagnosis after your military service has been completed. Obviously, the reason for banning celiacs is that they can't feed us properly. I met a retired U.S. marine at a celiac conference a few years back, and he told me how difficult it was for him to hide his celiac symptoms. A military doctor was kind enough to prescribe him Dapsone for his Dermatitis Herpetiformis (which is a skin condition caused by celiac) so that there were no obvious, outward signs of his disease. For those already in the military, a celiac diagnosis can ruin their future plans.

mike10217 Newbie

I have 2 years left on this contract, I was already planning on getting out after the 2 years even before this celiac problem kicked in, so I think they will more than likely let me finish my contract then get an honorable discharge.Like you said about the marine, it is definately hard to hide having celiac disease haha...But anyways I just wanted to do one deployment and get out of the military, that was my plan from the very begining and its almost complete !

Jenniferxgfx Contributor

I have nothing to value to add except cheerleading: that's great you're figuring this out. I hope this last month passes quick for you. Thanks again for all you're doing out there. I love our troops for the hard work you do, but to also do that in the midst of your health troubles, I think that's pretty tough. It doesn't go unnoticed.

ravenwoodglass Mentor

I have 2 years left on this contract, I was already planning on getting out after the 2 years even before this celiac problem kicked in, so I think they will more than likely let me finish my contract then get an honorable discharge.Like you said about the marine, it is definately hard to hide having celiac disease haha...But anyways I just wanted to do one deployment and get out of the military, that was my plan from the very begining and its almost complete !

There is a chance you may be redeployed. There are folks who have been deployed multiple times into war zones. When you get back to the states you may want to go back on gluten and get diagnosed. Some branches of the service will keep you but not deploy you to areas where gluten-free food is not available some will discharge you. Hiding the symptoms can be very difficult if not impossible at times and your symptoms may get much worse as time goes on. I hope things work out for you whether you want to stay in or get out.

mike10217 Newbie

Just wanted to let you guys know, its super weird to be able to eat a sandwich and not get sick from it haha. Like I said before my aunt sent me a bunch of gluten free stuff, she sent me gluten free bread, and peanut butter and jelly, so I have been makin sandwiches over here, and im so used to being sick after eating bread, it just doesn't seem normal to me! Once this brain fog goes away, ill be feeling so good, its awesome that I finally found out what is wrong with me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Just wanted to let you guys know, its super weird to be able to eat a sandwich and not get sick from it haha. Like I said before my aunt sent me a bunch of gluten free stuff, she sent me gluten free bread, and peanut butter and jelly, so I have been makin sandwiches over here, and im so used to being sick after eating bread, it just doesn't seem normal to me! Once this brain fog goes away, ill be feeling so good, its awesome that I finally found out what is wrong with me

Did your dizziness go away with your other symptoms? The brain fog will go away too, it just takes awhile.

ravenwoodglass Mentor

Just wanted to let you guys know, its super weird to be able to eat a sandwich and not get sick from it haha. Like I said before my aunt sent me a bunch of gluten free stuff, she sent me gluten free bread, and peanut butter and jelly, so I have been makin sandwiches over here, and im so used to being sick after eating bread, it just doesn't seem normal to me! Once this brain fog goes away, ill be feeling so good, its awesome that I finally found out what is wrong with me

It's great you are feeling so much better. Your aunt deserves a big hug and a nice dinner out at a restaurant that has gluten free food when you get home. My personal favorites are PF Changs and Outback. Stay safe and let us know when you get back to the states.

catsmeow Contributor

I feel for you. What a rough time you must be having. Chow Halls are filled with wheat/gluten.

A while back I googled and studied the heck out of Celiac's in the military and came to the conclusion that you can be retained. There are other Celiacs serving on active duty. However, a person like me with a food allergy cannot stay active, too risky, we get medically booted (honorably).

They have an MRE line called "My Own Meals" that have a wide range of special diet meals. Most are for religious purposes. They have Gluten free, vegetarian, kosher, ones with no pork, and many others. The military has a contract with them to provide these special diet meals. I wonder if you would need a diagnoses to get those meals shipped in. I wonder if they exist on your base, along with where they keep the stockpile of MRE'S? It might pay to do some snooping. I also wonder if there are any religions that require gluten free food. If so, I would change my paperwork to that religion, then you would HAVE to be accommodated....LOL

I hope your month goes fast and safe, and like others have said, please give that sweet Auntie a big hug when you get back....

P.S. I just looked up those MOM meals and found that the the kosher meals are gluten free. They have 5 different ones. They must have some of them on the base for soldiers who require Kosher meals.

Open Original Shared Link

mike10217 Newbie

Well guys just another update on whats going on in case anyone was curious. First of all, thank you all SOOOOO much for the support, I couldn't thank you guys enough for all the advice and answers you have given me. I have never felt this good in my life, I am constantly full of energy and this brain fog seems like it is going away, I am going to the gym full time again and i've gained 8 pounds in the last 2 weeks,I have been completely gluten free for about 2 weeks now ( as far as I know that is... army food is sometimes hard to tell) But I havent been sick for about 2 weeks now. Its the best feeling in the world to feel like this, thats all I have to say. Only one more month left in afghanistan then im home!!! Can't wait :) Its going to be tough to adjust to this new diet at home, but its WELL worth it, I can definatel go without eating pizza and drinking beer for this . I've heard there is gluten free beer though, wonder if its any good! Definatel will have to try it, anyways just wanted to say thank you all for everything, I will write again soon... Hopefully I will be home the next time I write ;) Should be home a little after thanksgiving. For now bye guys and happy holidays!

Roda Rising Star

That sounds great! Have a wonderful holiday with with your family!

rosetapper23 Explorer

Such good news!!! And I'm so happy for you!!

By the way, Redbridge beer is excellent...and I also like Bard's Dragon's Tail beer. There are also quite a few pizza parlors that offer their pizzas with a gluten-free crust. The crust is provided by Still Riding Pizza, and places like BJ's Bar and Grill and other chain restaurants offer their pizzas on this crust. You'll see--there are lots of choices! Glutino and Against the Grain both make good frozen pizzas that can be found at stores like Whole Foods.

Best of luck to you!

Jenniferxgfx Contributor

New Grist is my favorite beer!

So good to hear things are going well :)

krystynycole Contributor

Glad to hear you're doing better! biggrin.gif

mike10217 Newbie

well... so much for feeling better. the army randomly decides now that im feeling good they want to take care of me, By the way army is really bad for taking care of medical problems apparently, anyways they want to send me to bagram now to do the colonoscopy, they told me this 3 days ago, so i was like oh crap i better start eatin gluten again so it comes up positive, because i was gluten-free for 2 weeks and if it came up negative the army wouldn't think I had it. So now for the last 3 days i've been back to eating gluten, and wow the symptoms took about 1 day to come back, its terrible...so now lets see how long they keep me hanging around before they want to send me to get the colonoscopy.

AVR1962 Collaborator

well... so much for feeling better. the army randomly decides now that im feeling good they want to take care of me, By the way army is really bad for taking care of medical problems apparently, anyways they want to send me to bagram now to do the colonoscopy, they told me this 3 days ago, so i was like oh crap i better start eatin gluten again so it comes up positive, because i was gluten-free for 2 weeks and if it came up negative the army wouldn't think I had it. So now for the last 3 days i've been back to eating gluten, and wow the symptoms took about 1 day to come back, its terrible...so now lets see how long they keep me hanging around before they want to send me to get the colonoscopy.

Love it and know exactly what you mean. My husband was AF 27 years. We did have to depend on Army medical a couple times depending where we were stationed and I totally agree but I can't say AF is that much better unfortuantely! I am seen at Landstuhl, one of the biggest hospitals in Europe, and I find I get better care on the economy. The system is whacked. I person could easy dye before getting a diagnosis because of all the steps you have go thru, it's like jumping thru hoops.

Good luck with eating gluten again. I am sure you already know but make sure everything that you are dealing with is documented. If you cannot see the gluten thru make sure you go back to the doc before going off and make sure doc has it in your records what you are dealing with. Your sitaution is a little different as your career is pending on these results but many of us have not been able to go back onto glutens with success. I made it to day 12 and was so sick. I personally don't think it is the back-track in health but realize you have to go thru with it. Don't let it just go though.

Testing is not accurate in the first place and even if you do have celiac, it doesn't mean that your tests are going to show it. So you may go thru 2 months of misery to get negative tests results. Read on it and become informed. If you find your health becoming unbearable go back to your doc armed with info. This is what helped me with my diagnosis. I was one of those who had the nuero symptoms first, went on a gluten-free diet before I had the tests. Going back was impossible but with everything that was documented and I was not a regular doc visitor before but I wanted everything down and they were able to put the pieces together for my diagnosis.

Good luck with the rest of your tour. Husband is retired now, ina civilain job working for the AF now. We are in Germany, have been for 10 years. Visited US this past summer and was really amazed how many restaurants have gluten-free menus and how much is available there, you are going to love it!

Take care of yourself!

ravenwoodglass Mentor

well... so much for feeling better. the army randomly decides now that im feeling good they want to take care of me, By the way army is really bad for taking care of medical problems apparently, anyways they want to send me to bagram now to do the colonoscopy, they told me this 3 days ago, so i was like oh crap i better start eatin gluten again so it comes up positive, because i was gluten-free for 2 weeks and if it came up negative the army wouldn't think I had it. So now for the last 3 days i've been back to eating gluten, and wow the symptoms took about 1 day to come back, its terrible...so now lets see how long they keep me hanging around before they want to send me to get the colonoscopy.

To test for celiac they need to do an endoscopy rather than a colonscopy. Do be sure to tell the doctors how much being gluten free helped and insist that they do testing for celiac first not last. Good luck.

  • 4 weeks later...
cougie23 Explorer

Just wanted to let you guys know, its super weird to be able to eat a sandwich and not get sick from it haha. Like I said before my aunt sent me a bunch of gluten free stuff, she sent me gluten free bread, and peanut butter and jelly, so I have been makin sandwiches over here, and im so used to being sick after eating bread, it just doesn't seem normal to me! Once this brain fog goes away, ill be feeling so good, its awesome that I finally found out what is wrong with me

Hi mike,

Just want to mention...celiacs can't do dairy at first! due to damage of the villi in your intestinal lining...also a lot of us develope an intolerants as well. I noticed that when I stopped gluten and dairy the brain fog went away...but when I cheated and had some icecream...massive brain fog!!! not to mention severe diarhea and muscle pain,headache! just throwing that out there!

The last thing you need right now is brain fog!!! tell your superiors that.you can't be forgeting your orders or how to do something crucial in a clinch sittuation! I've personally had it so bad I can't remember what I was talking about in mid conversation! try explaining that to a higher up! not something to fool with...not to mention the blow to you self estem! Brain fog makes following instructions or remembering combinations allmost impossible! try cutting back/or out dairy. good luck

rosetapper23 Explorer

As the poster above indicated, a colonoscopy will show NOTHING related to celiac. Please ask them to do an endoscopy instead of, or in addition to, the colonoscopy. Regardless of the results, though, you should definitely go gluten free for life. I'm so glad that eating gluten free helps you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,250
    • Most Online (within 30 mins)
      7,748

    Kathlane
    Newest Member
    Kathlane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.