Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee Ugh!

GFreeMO

By GFreeMO
in Super Sensitive People

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

After eliminating dairy, soy and most processed gluten free items, I am still feeling very gassy and uncomfortable. This morning I felt pretty good when I got up, that is until I had my cup of coffee. I am not tolerating coffee anymore. It leaves me feeling very similar to how I feel when I have been glutened. I don't get D with it but I get very bad gas pains and a trapped gas feeling. It's apparent that I need to go off coffee and switch to decaf tea now. I was just wondering if anyone else has similar issues with coffee.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Coffee is one of those things your body may "see" as gluten. Some people have the same issue with tea, or decaf tea. Try it and see.

I almost freaked giving up coffee (I was in the try anything stage). I dont think coffee is a problem, but strangely enough I lost my taste for it. But oh wow do I have a chai habit now!!

GFreeMO Proficient
GFreeMO
Posted
  • Author

I just read a few articles about how coffee can be cross reactive for celiacs. I think that means that the body will have a reaction because it is recognizing coffee (or soy, casein,) whatever it may be as gluten even though it's gluten free. Interesting.

AMom2010 Explorer
AMom2010
Posted

I have never been able to tolerate coffee. Even when I sneaked it when I was little it made me sick to my stomach. Now I feel terrible all over when I drink it.

T.H. Community Regular
T.H.
Posted

Do you have any issues with corn? I just found out the other day that coffee is often polished with cornstarch - wacky crazy stuff.

Poppi Enthusiast
Poppi
Posted

Pricklypear, I could have written your post!

When I have coffee now I feel glutened for a few hours. Brain fog, nausea, major fatigue and headaches. I was heartbroken to give up coffee, I love coffee.

I've replaced with with Chai. I drink a lot of it. I find it more satisfying than other teas because it has such a complex flavour. I have at least 6 varieties of chai in my cupboard.

pricklypear1971 Community Regular
pricklypear1971
Posted

Pricklypear, I could have written your post!

When I have coffee now I feel glutened for a few hours. Brain fog, nausea, major fatigue and headaches. I was heartbroken to give up coffee, I love coffee.

I've replaced with with Chai. I drink a lot of it. I find it more

satisfying than other teas because it has such a complex flavour. I have at least 6 varieties of chai in my cupboard.

It's so good, isn't it???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cait Apprentice
cait
Posted

Yes! I'd been off coffee for a bit, then started drinking it again recently. Can't tolerate it anymore. Am also a chai junkie now. What are your favorite kinds?

pricklypear1971 Community Regular
pricklypear1971
Posted

Yes! I'd been off coffee for a bit, then started drinking it again recently. Can't tolerate it anymore. Am also a chai junkie now. What are your favorite kinds?

I've tried Oregon Chai less sweet and Tazo. I prefer Tazo.

I like brewing by the bag, but it's only "tea" - not strong or spicy enough for milk. I'd love to maker own but have hesitated to commit with all the food weirdness.

RollingAlong Explorer
RollingAlong
Posted

Has anyone seen any research that supports the idea of coffee crossreacting with gluten. I've seen this idea, but not any research.

pricklypear1971 Community Regular
pricklypear1971
Posted

Has anyone seen any research that supports the idea of coffee crossreacting with gluten. I've seen this idea, but not any research.

Cyrex Labs is who I see referenced regarding this. I can't find the research, but there are articles EVERYWHERE. too many to sift through to find the research. I haven't worried much about it since I figured out it doesn't bother me, and developed the chai habit.

Here's a kink to the test:

Open Original Shared Link

pricklypear1971 Community Regular
pricklypear1971
Posted

This might be helpful.

Open Original Shared Link

dilettantesteph Collaborator
dilettantesteph
Posted

That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it.

I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans.

Coffee is one of my treats.

pricklypear1971 Community Regular
pricklypear1971
Posted

That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it.

I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans.

Coffee is one of my treats.

We always buy organic, too. Perhaps that helps. I've heard of people having coffee issues. - not gluten related, usually caffeine or chemical.

Poppi Enthusiast
Poppi
Posted

We always buy organic, too. Perhaps that helps. I've heard of people having coffee issues. - not gluten related, usually caffeine or chemical.

I have tried coffee from a variety of sources, caffienated, decaf, organic, regular, locally roasted, factory roasted... it all makes me feel like I've been glutened. I know that anectodes are not data but my experience is definitely that my body sees coffee, thinks gluten and takes a few hours to sort out the mistake.

thleensd Enthusiast
thleensd
Posted

Do you have any issues with corn? I just found out the other day that coffee is often polished with cornstarch - wacky crazy stuff.

Wait, what? Ugh, this is not good. Do you have a link or any more info? Would it rinse off?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,838
    • Most Online (within 30 mins)
      7,748
    Sarah C37
    Newest Member
    Sarah C37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.