Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recent Lab Work - Most Tests Low


stilltired07

Recommended Posts

stilltired07 Rookie

Hi everyone. I was diagnosed with Celiac Disease a couple years ago and in May of this year I was diagnosed with autoimmune adrenal insufficiency. I recently saw my Endocrinologist due to feeling weak and tired. He sent me for a whole wack of blood work to make sure my adrenal insufficiency was under controls and to check my thyroid/pituitary glands or any other cause for the way I feel. Here they are below. My endocrinologist told me everything looks great and he didn't think there was anything else wrong. He increased my Florinef medication and said maybe that will help. I have highlighted some lines that are low or are on the low end. My concerns are:

- TSH is normal but why are free`s on the low end. I have two autoimmune diseases, so I always worry about Thyroid issues.

- How can LH be low and FSH be borderline low, yet he says it is great, why bother checking then. I am a 25 year old male, I`d think my LH FSH would be higher.

- My RBC and WBC are both low which worries me. Again how is this normal?

Anyways, I know nobody here is a doctor, but I just wondered if anybody else experienced results like these. Thanks a lot!

Thyroid

-------

TSH - 1.4 (range 0.35 - 5.00)

Free T4 - 15 (range 12 - 22) <-- LOWISH

Free T3 - 3.7 (range 2.6 - 5.7) <-- LOWISH

Thyroid Antibodies - all came back negative (ones for hashi, graves)

Hormone - Adrenal/Pituitary

----------

LH - 1 (range 2 - 10) <-- LOW

FSH - 3 (range 2 - 12) <-- LOWISH

Cortisol - 238 (range 80 - 600)

Prolactin - 6 (range < 18)

Free Test: Pending...not complete yet

Hematology

------------

Hemoglobin: 120 (range 140 - 170) <-- LOW

Hematocrit: 0.36 (range 0.39 - 0.49) <-- LOW

RBC: 3.99 (range 4.30 - 5.70) <-- LOW

MCV: 89 (range 80-97)

MCH: 30 (range 27-32)

MCHC: 342 (range 320 - 360)

RDW: 12 (range 11.5 - 15)

WBC: 3.8 (4.2 - 11.0) <-- LOW

Platelets: 170 (range 150 -400) <-- LOWISH

MPV: 9 (7 - 11)

ABS Neutrophils: 2.09 (range 1.80 - 7.00)

ABS LYmphocytes: 0.99 (range 1.00 - 4.00) <-- LOW

ABS Monocytes: 0.42 (range 0.00 - 0.80)

ABS Eosinophils: 0.27 (range 0.00 - 0.40)

ABS BAsophils: 0.04 (range 0.00 - 0.20)

Chemistry

-------------

Fasting Glucose: 3.9 (range 3.6 - 6.0) <-- LOWISH

Calcium: 2.31 (range 2.20 - 2.65) <-- LOWISH

Sodium: 136 (range 135 - 145) <-- LOWISH

Potasium: 4.5 (range 3.3 - 5.1)

Alkaline Phosphatase: 40 (range 40 -120) <-- LOWISH

B12: 148 (range 150 - 900) <-- LOW

Ferritin: 45 (range 16 - 300)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am not a medical professional but it does look like you are anemic. Your B12 is also low so you may want to supplement the B12 with some gluten-free sublinguals and prehaps do a multi with iron for a bit and then get the iron levels rechecked as you don't want the iron to get to high. It also might be a good idea to take copies of your labs and get a second opinion from your GP or another endocrinologist to find out for sure what you should be supplementing. Hopefully someone who is more knowledgeable about the thyroid will chime in on those results.

stilltired07 Rookie

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

ravenwoodglass Mentor

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

If the B12 isn't sublingual then your body wouldn't be able to absorb it. Glad to hear you are going to follow up with your GP.

Gemini Experienced

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

stilltired07 Rookie

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

Thanks to both of you!

Raven: I have been taking a double dose of B12 pills, but just regular ones. My Gastro said they were good enough, great advice lol Thanks for the help!

Gemini: Thanks for letting me know about the blood work. My doctor called me yesterday afternoon and let me know my Absolute Reticulocytes(red cells from bone marrow) were at 7 (range 25 - 85) and that it was concerning since my red cells were low. Who knows there, but Celiac has caused weird stuff with my before. She is trying to find me a hematologist now with little luck as most only take people diagnosed with Cancer.

My WBC has been around 2.5 - 5.0 since I was diagnosed, so I am used to it sitting low and I'm glad to know it is normal. I have Addison's Disease as well, so Thyroid was always a concern of mine. Fatigue has been my worst symtpom, but my ENdo always blames Addison's or Celiac. My low end Free T3/T4 do no concern him because my antibodies were negative. I'm worried it is a bad sign as over the last two years my Free's were always at top end of range. No point is worrying if my Endo isn't worried, so I'll just keep an eye on it.

Thanks again!!!

stilltired07 Rookie

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

Low Testosterone Causes

Low testosterone levels occur due to many reasons; major low testosterone causes are following:

Obesity

Testicle injury

Infectious diseases

Excess of blood iron

Inflammatory diseases

Natural process of aging

Chemo/radiation treatment

Performance boosting drugs

Pain or hormonal medication

Skylark Collaborator

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!

Are you on Lipitor, Crestor, or any other cholesterol-lowering drug?

stilltired07 Rookie

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

Thanks a lot.

frieze Community Regular

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

The cortisone may well be you issue, it is a hormone med.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.