Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recent Lab Work - Most Tests Low


stilltired07

Recommended Posts

stilltired07 Rookie

Hi everyone. I was diagnosed with Celiac Disease a couple years ago and in May of this year I was diagnosed with autoimmune adrenal insufficiency. I recently saw my Endocrinologist due to feeling weak and tired. He sent me for a whole wack of blood work to make sure my adrenal insufficiency was under controls and to check my thyroid/pituitary glands or any other cause for the way I feel. Here they are below. My endocrinologist told me everything looks great and he didn't think there was anything else wrong. He increased my Florinef medication and said maybe that will help. I have highlighted some lines that are low or are on the low end. My concerns are:

- TSH is normal but why are free`s on the low end. I have two autoimmune diseases, so I always worry about Thyroid issues.

- How can LH be low and FSH be borderline low, yet he says it is great, why bother checking then. I am a 25 year old male, I`d think my LH FSH would be higher.

- My RBC and WBC are both low which worries me. Again how is this normal?

Anyways, I know nobody here is a doctor, but I just wondered if anybody else experienced results like these. Thanks a lot!

Thyroid

-------

TSH - 1.4 (range 0.35 - 5.00)

Free T4 - 15 (range 12 - 22) <-- LOWISH

Free T3 - 3.7 (range 2.6 - 5.7) <-- LOWISH

Thyroid Antibodies - all came back negative (ones for hashi, graves)

Hormone - Adrenal/Pituitary

----------

LH - 1 (range 2 - 10) <-- LOW

FSH - 3 (range 2 - 12) <-- LOWISH

Cortisol - 238 (range 80 - 600)

Prolactin - 6 (range < 18)

Free Test: Pending...not complete yet

Hematology

------------

Hemoglobin: 120 (range 140 - 170) <-- LOW

Hematocrit: 0.36 (range 0.39 - 0.49) <-- LOW

RBC: 3.99 (range 4.30 - 5.70) <-- LOW

MCV: 89 (range 80-97)

MCH: 30 (range 27-32)

MCHC: 342 (range 320 - 360)

RDW: 12 (range 11.5 - 15)

WBC: 3.8 (4.2 - 11.0) <-- LOW

Platelets: 170 (range 150 -400) <-- LOWISH

MPV: 9 (7 - 11)

ABS Neutrophils: 2.09 (range 1.80 - 7.00)

ABS LYmphocytes: 0.99 (range 1.00 - 4.00) <-- LOW

ABS Monocytes: 0.42 (range 0.00 - 0.80)

ABS Eosinophils: 0.27 (range 0.00 - 0.40)

ABS BAsophils: 0.04 (range 0.00 - 0.20)

Chemistry

-------------

Fasting Glucose: 3.9 (range 3.6 - 6.0) <-- LOWISH

Calcium: 2.31 (range 2.20 - 2.65) <-- LOWISH

Sodium: 136 (range 135 - 145) <-- LOWISH

Potasium: 4.5 (range 3.3 - 5.1)

Alkaline Phosphatase: 40 (range 40 -120) <-- LOWISH

B12: 148 (range 150 - 900) <-- LOW

Ferritin: 45 (range 16 - 300)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am not a medical professional but it does look like you are anemic. Your B12 is also low so you may want to supplement the B12 with some gluten-free sublinguals and prehaps do a multi with iron for a bit and then get the iron levels rechecked as you don't want the iron to get to high. It also might be a good idea to take copies of your labs and get a second opinion from your GP or another endocrinologist to find out for sure what you should be supplementing. Hopefully someone who is more knowledgeable about the thyroid will chime in on those results.

stilltired07 Rookie

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

ravenwoodglass Mentor

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

If the B12 isn't sublingual then your body wouldn't be able to absorb it. Glad to hear you are going to follow up with your GP.

Gemini Experienced

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

stilltired07 Rookie

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

Thanks to both of you!

Raven: I have been taking a double dose of B12 pills, but just regular ones. My Gastro said they were good enough, great advice lol Thanks for the help!

Gemini: Thanks for letting me know about the blood work. My doctor called me yesterday afternoon and let me know my Absolute Reticulocytes(red cells from bone marrow) were at 7 (range 25 - 85) and that it was concerning since my red cells were low. Who knows there, but Celiac has caused weird stuff with my before. She is trying to find me a hematologist now with little luck as most only take people diagnosed with Cancer.

My WBC has been around 2.5 - 5.0 since I was diagnosed, so I am used to it sitting low and I'm glad to know it is normal. I have Addison's Disease as well, so Thyroid was always a concern of mine. Fatigue has been my worst symtpom, but my ENdo always blames Addison's or Celiac. My low end Free T3/T4 do no concern him because my antibodies were negative. I'm worried it is a bad sign as over the last two years my Free's were always at top end of range. No point is worrying if my Endo isn't worried, so I'll just keep an eye on it.

Thanks again!!!

stilltired07 Rookie

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

Low Testosterone Causes

Low testosterone levels occur due to many reasons; major low testosterone causes are following:

Obesity

Testicle injury

Infectious diseases

Excess of blood iron

Inflammatory diseases

Natural process of aging

Chemo/radiation treatment

Performance boosting drugs

Pain or hormonal medication

Skylark Collaborator

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!

Are you on Lipitor, Crestor, or any other cholesterol-lowering drug?

stilltired07 Rookie

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

Thanks a lot.

frieze Community Regular

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

The cortisone may well be you issue, it is a hormone med.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,601
    • Most Online (within 30 mins)
      7,748

    Dale S
    Newest Member
    Dale S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.