Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recent Lab Work - Most Tests Low


stilltired07

Recommended Posts

stilltired07 Rookie

Hi everyone. I was diagnosed with Celiac Disease a couple years ago and in May of this year I was diagnosed with autoimmune adrenal insufficiency. I recently saw my Endocrinologist due to feeling weak and tired. He sent me for a whole wack of blood work to make sure my adrenal insufficiency was under controls and to check my thyroid/pituitary glands or any other cause for the way I feel. Here they are below. My endocrinologist told me everything looks great and he didn't think there was anything else wrong. He increased my Florinef medication and said maybe that will help. I have highlighted some lines that are low or are on the low end. My concerns are:

- TSH is normal but why are free`s on the low end. I have two autoimmune diseases, so I always worry about Thyroid issues.

- How can LH be low and FSH be borderline low, yet he says it is great, why bother checking then. I am a 25 year old male, I`d think my LH FSH would be higher.

- My RBC and WBC are both low which worries me. Again how is this normal?

Anyways, I know nobody here is a doctor, but I just wondered if anybody else experienced results like these. Thanks a lot!

Thyroid

-------

TSH - 1.4 (range 0.35 - 5.00)

Free T4 - 15 (range 12 - 22) <-- LOWISH

Free T3 - 3.7 (range 2.6 - 5.7) <-- LOWISH

Thyroid Antibodies - all came back negative (ones for hashi, graves)

Hormone - Adrenal/Pituitary

----------

LH - 1 (range 2 - 10) <-- LOW

FSH - 3 (range 2 - 12) <-- LOWISH

Cortisol - 238 (range 80 - 600)

Prolactin - 6 (range < 18)

Free Test: Pending...not complete yet

Hematology

------------

Hemoglobin: 120 (range 140 - 170) <-- LOW

Hematocrit: 0.36 (range 0.39 - 0.49) <-- LOW

RBC: 3.99 (range 4.30 - 5.70) <-- LOW

MCV: 89 (range 80-97)

MCH: 30 (range 27-32)

MCHC: 342 (range 320 - 360)

RDW: 12 (range 11.5 - 15)

WBC: 3.8 (4.2 - 11.0) <-- LOW

Platelets: 170 (range 150 -400) <-- LOWISH

MPV: 9 (7 - 11)

ABS Neutrophils: 2.09 (range 1.80 - 7.00)

ABS LYmphocytes: 0.99 (range 1.00 - 4.00) <-- LOW

ABS Monocytes: 0.42 (range 0.00 - 0.80)

ABS Eosinophils: 0.27 (range 0.00 - 0.40)

ABS BAsophils: 0.04 (range 0.00 - 0.20)

Chemistry

-------------

Fasting Glucose: 3.9 (range 3.6 - 6.0) <-- LOWISH

Calcium: 2.31 (range 2.20 - 2.65) <-- LOWISH

Sodium: 136 (range 135 - 145) <-- LOWISH

Potasium: 4.5 (range 3.3 - 5.1)

Alkaline Phosphatase: 40 (range 40 -120) <-- LOWISH

B12: 148 (range 150 - 900) <-- LOW

Ferritin: 45 (range 16 - 300)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am not a medical professional but it does look like you are anemic. Your B12 is also low so you may want to supplement the B12 with some gluten-free sublinguals and prehaps do a multi with iron for a bit and then get the iron levels rechecked as you don't want the iron to get to high. It also might be a good idea to take copies of your labs and get a second opinion from your GP or another endocrinologist to find out for sure what you should be supplementing. Hopefully someone who is more knowledgeable about the thyroid will chime in on those results.

stilltired07 Rookie

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

ravenwoodglass Mentor

Thanks for the response Ravenwood.

I have been supplementing with B12 for the last couple years, with no luck unfortunately. I'm going to do what you said and bring my lab results to my GP, to get her opinion. Thanks for the help, I appreciate it!

If the B12 isn't sublingual then your body wouldn't be able to absorb it. Glad to hear you are going to follow up with your GP.

Gemini Experienced

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

stilltired07 Rookie

All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot.

I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including Celiac. White cell counts have never risen into the normal range but I am NEVER sick any more so don't give it a second thought.

I also have Hashi's thyroid disease and it's not uncommon to have a normal TSH and lower than optimal T3 and T4. You may see these rise as you heal but if not and you are symptomatic (fatigue especially), it might be prudent to supplement with thyroid hormone down the road.

Thanks to both of you!

Raven: I have been taking a double dose of B12 pills, but just regular ones. My Gastro said they were good enough, great advice lol Thanks for the help!

Gemini: Thanks for letting me know about the blood work. My doctor called me yesterday afternoon and let me know my Absolute Reticulocytes(red cells from bone marrow) were at 7 (range 25 - 85) and that it was concerning since my red cells were low. Who knows there, but Celiac has caused weird stuff with my before. She is trying to find me a hematologist now with little luck as most only take people diagnosed with Cancer.

My WBC has been around 2.5 - 5.0 since I was diagnosed, so I am used to it sitting low and I'm glad to know it is normal. I have Addison's Disease as well, so Thyroid was always a concern of mine. Fatigue has been my worst symtpom, but my ENdo always blames Addison's or Celiac. My low end Free T3/T4 do no concern him because my antibodies were negative. I'm worried it is a bad sign as over the last two years my Free's were always at top end of range. No point is worrying if my Endo isn't worried, so I'll just keep an eye on it.

Thanks again!!!

stilltired07 Rookie

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

Low Testosterone Causes

Low testosterone levels occur due to many reasons; major low testosterone causes are following:

Obesity

Testicle injury

Infectious diseases

Excess of blood iron

Inflammatory diseases

Natural process of aging

Chemo/radiation treatment

Performance boosting drugs

Pain or hormonal medication

Skylark Collaborator

Hi all.

My doctor just called me with the Free Testosterone results:

LH: 1 (range 1-9)

FSH: 3 (range 2 - 12)

Free Testosterone: 3 (range 50 - 200)

Looks like that explains why I am so tired. He has sent me a script for Androgel or something like that. He never said what would of caused this, does anybody have experience with this? He did say it was the lowest he has ever seen for man my age (so nice haha). Oh well, I hope this helps me feel better. Does anybody know if this is common with Celiac or Addison's, or should I have my pituitary checked out. Anyways, thanks to everyone for their help!

Are you on Lipitor, Crestor, or any other cholesterol-lowering drug?

stilltired07 Rookie

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

Thanks a lot.

frieze Community Regular

Thanks for the list, I called back the doctor and ask his assistant if she could talk to him for me. I'll probably get an answer of what can cause this next week. I just found out my insurance wont cover any Testosterone Therapy and it's $200 a month. He gave me a years worth, but I'm assuming I wont need to take it that long.

No, I am not on any medication like that. All I take is Cortisone and Florinef for my Addison's.

The cortisone may well be you issue, it is a hormone med.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      316

      Terrible Neurological Symptoms

    2. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      316

      Terrible Neurological Symptoms

    3. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      316

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,588
    • Most Online (within 30 mins)
      7,748

    FSteele
    Newest Member
    FSteele
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @HectorConvector, My blood glucose level would spike after I ate.  It wouldn't return to "normal" fasting blood glucose level for longer and longer.  Blood glucose level should return to normal an hour after eating.  Mine would take two hours, then three hours, then longer.  So over night fasting blood tests wouldn't necessarily be very high until they got really bad.  But the peripheral neuropathy would feel the worst while my glucose was too high.  My blood glucose meter confirmed this.   On top of all that, my Celiac disease was still undiagnosed at the time, and I was suffering from malabsorption and nutritional deficiencies.  The deficiencies in B vitamins affected not just insulin production in the pancreas, but also the nerves in my extremities.  Nerves need B vitamins to maintain the myelin sheath protecting the nerves (like the plastic coating on electrical wires) when they fire.  When the myelin sheath is not maintained, that "pins and needles" feeling starts and increases as more of the sheath is damaged.  My parathesia progressed until the "pins and needles" went from my toes all the way up to my thighs.   Without sufficient vitamins, I started slowly losing weight.  Our bodies will start using not only stored fat, but also tear down our own muscles to provide fuel for the body to stay functional.   I hope you don't have pre-diabetes or diabetes.  Most diabetics have a thiamine deficiency.   How much thiamine are you taking?  What form of Thiamine are you taking?  
    • HectorConvector
      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.