Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sciatic Nerve Pain


GlutenGladi8or

Recommended Posts

GlutenGladi8or Apprentice

Last week, I bought a "gluten-free" chicken sausage out of a full service meatcase. The next day, I was glutened beyond belief! Low and behold, I dug through the garbage and found the parchment paper wrapper... and there were bread crumbs in it. Shortly thereafter, I got Sciatic Nerve pain from my glute all the way down to my toe. It progressively got worse over the past 5 days. In fact, I just came from the doctor (it was THAT bad)

One of my near and dear friends (also a Celiac) just called me and asked how I was doing. When I "fessed up" about my ailment, he said that when he gets glutened he immediately gets sciatic issues that lasts for a week.

Does this happen to any of you? In the past, I just had the usually gluten symptoms (diarrhea, fatigue, etc.) NEVER pain. And, this is the most pain I have ever had in my life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGladi8or Apprentice

UPDATE: Thank goodness for my health insurance, as I have already been referred to a physical therapist at 9a.m. tomorrow. I told her about my "theory" and she substantiated it... even elaborated about how we Celiacs get so much more inflamed when we are glutened.

Just one more thing we Celiacs have to look forward to when we get glutened. :(

pricklypear1971 Community Regular

In my late teens/ 20's I would get lower back pain. To the point I couldn't lay flat. This coincides with when I had GI symptoms (probably from gluten).

I found a very good masseuse that worked me over, pressure points, stretching, etc. Felt like I'd been caned but it worked. She said my nerves were tangled in muscles, and there were giant knots (this is my best recall after 10+ years).

Good luck, I know it's terrible.

JillianLindsay Enthusiast

I have chronic knee pain from years of playing competitive soccer. With physio and strengthening exercises, the pain is greatly decreased, however if I get glutened the pain comes back in full force. I hope you called the place where you got the not-so-gluten-free sausage! Feel better soon

GlutenGladi8or Apprentice

Physically, I feel terrible right now. But, I feel GOOD knowing that there was a direct correlation between being glutened and the muscle pain.

And talk about a double whammy... trying to go to the bathroom with a leg that doesn't work. It isn't pretty. LOL.

GlutenGladi8or Apprentice

I had my first physical therapy session in my life this morning. My therapist was remarkable and her mother-in-law was a Celiac as well. The stories that she told of other Celiacs making a visit right after a gluten encounter! Just when I thought I saw the last of the side effects related to gluten, another issue rears its ugly head.

If you have the same issue, you can most likely related it back to being glutened.

kmag Rookie

I also experience joint pain after getting glutened. It always affects the knuckles in my left hand the worst and lasts about 10 days. It makes working really unpleasant since I'm a massage therapist. I haven't dared eat out since the last time a few months back, it's just way too iffy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenGladi8or Apprentice

I have learned SO much from this past gluten-ing experience. (As has my doctor, physical therapist, and massage therapist.)

All of this joint, nerve, and muscle pain can be directly related to gluten. And the more I look back at history, I remember sciatic pain just shortly after being glutened.

At least the above professionals, will be able to make un-diagnosed people aware that they might have a gluten intolerance.

GlutenGladi8or Apprentice

UPDATE: For the first time in my life, I went to an acupuncturist this morning for the pain. Literally, 80% of the pain is gone after just one 90 minutes session.

I have a follow up session on Monday. If you have ANY type of pain, you really should consider acupuncture as an option. I'm a believer.

  • 9 months later...
LauraB0927 Apprentice

Before I was diagnosed (which was recently), I always battled with sciatic pain and I saw a chiropractor for YEARS with little relief. I couldn't make long drives and had a hard time sitting through college classes. Since going gluten free, I haven't noticed any sciatic pain. Since swelling is a normal reaction for us when we get glutened, it doesn't sound far fetched that there could be some swelling in that area that could put pressure on the sciatic nerve - its a pretty large nerve after all!!

P.S. I am a HUGE fan of acupuncture - I had it done a couple of times and I never slept better in my life! If I wasn't on such a tight budget, that would be the first thing I'd be making appointments for again!!

Best of luck on your recovery from that unfortunate glutening experience...

Kate79 Apprentice

I had really bad sciatic pain that coincided with a glutening last winter/spring. Lasted for about a week. Only time I've had that symptom, so I don't know for sure if it was gluten or something else that just occurred at the same time. Glad the acupuncture is working and hope you're feeling better soon!

  • 1 month later...
kristenloeh Community Regular

Yep, my sciatica always gets worse when I get glutened. It's already pretty crappy on a regular basis, but it sure as hell gets about 10 times worse when I get contaminated. Glad to see you got into an acupuncturist and are feeling better :}

Celiac Ninja Enthusiast

Last week, I bought a "gluten-free" chicken sausage out of a full service meatcase. The next day, I was glutened beyond belief! Low and behold, I dug through the garbage and found the parchment paper wrapper... and there were bread crumbs in it. Shortly thereafter, I got Sciatic Nerve pain from my glute all the way down to my toe. It progressively got worse over the past 5 days. In fact, I just came from the doctor (it was THAT bad)

One of my near and dear friends (also a Celiac) just called me and asked how I was doing. When I "fessed up" about my ailment, he said that when he gets glutened he immediately gets sciatic issues that lasts for a week.

Does this happen to any of you? In the past, I just had the usually gluten symptoms (diarrhea, fatigue, etc.) NEVER pain. And, this is the most pain I have ever had in my life.

I've got celiac and am a licensed massage therapist for 6+ years with scoliosis. From your first post I can say muscles are affected by glutn reactins (spasms, cramps, locing up especially after work outs due to the lack of absorption of necessary nutrients, minerals and water absorption). Sometimes the stress (mentral and physical) of having a gluten reaction can trigger severe muscle cramps which obviously cramp nerve and blood flow. Gentle maasage/excersises (which ever you feel comfortable with) and tons of water (like 4x 32 oz.) will help flush the muscles and your body can begin recovery. This is based on my experience and clients experience, hope its helpful.

gatita Enthusiast

I know this is an old thread, but this is very helpful to me. I've been having all kinds of bad joint pains (Sciatica and shoulder/arm pain) that are even worse than the D.

My physical therapist looked at me like I was looney tunes when I mentioned I'd been diagnosed by my MD as gluten intolerant and I thought there might be a connection!

Sigh...Glad to hear I wasn't imagining it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    2. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,258
    • Most Online (within 30 mins)
      7,748

    TracyMc
    Newest Member
    TracyMc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.