Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Can You Educate Me?

Marilyn R

By Marilyn R
in Dermatitis Herpetiformis

Recommended Posts

Marilyn R Community Regular
Marilyn R
Posted

I think I've had every symptom possibly connected to celiac disease. The latest is a patch of dry scaly skin on my ear lobe. It itches the bejesus out of me. I saw a dermatoligist about it. He ignored my question and focused on a red spot on my nose which he said looked cancerous. That was a month ago. The nose biopsy is benign. My ear still itches, and I look like Rudolph. I wash my face with Cetaphil and use a locally available cream which includes: aloe vera gel, saflower oil, purified water, Vitamin E, Vitamin A Pro-Vitamin B, Ginseng, Native American Herbal Mixture.

Or I use Vanicream from Wallgreens.

I'd be so greatful if anyone has a suggestion about that scaly, itchy skin on my ear. It is driving me cookoo.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

I have something similar. I have a dry scaly patch just under my eyebrow. It will itch, get dry and scaly, slough off and the skin be red. Then the process starts all over again. I also get red and irritated behind my ear in the crease and on the back of the earlobe. It will do the same thing as the patch on my face. I tried everything immaginable to get it to clear up. One day the itching was driving me crazy so I put some anti-itch cream on it. It happened to be benedryl cream. I noticed that it was helping, so I continued to apply it. It went away! It works for the area behind my ear too. So I think in my case that it is some kind of allergy, but to what I do not know. For now it seems to be staying away, but when it does flare back up I just put benedryl cream on it for a few days and it takes care of it.

mushroom Proficient
mushroom
Posted

For me, scaling, flaking, itchy ears that are red are psoriasis.

Jestgar Rising Star
Jestgar
Posted

For me, scaling, flaking, itchy ears that are red are psoriasis.

me too.

GFinDC Veteran
GFinDC
Posted

I have a dry, itchy, scaly spot on the front of my right ankle. Slightly raised elevation and oval shaped. I got the idea to try putting triple ani-bacterial ointment on it the other day. One brand name is Neosporin. It is too early to tell if it will go away, But it feels better, less itchy and looks better with the ointment on it.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

So why is it that the guy gets it on his ankle and the girl gets it on her ear and nose? Thanks for your advice. I bought some benadryl cream today, had been using triple antibiotic ointment on the nose. I really appreciate your advice. And I bought some silicone anti scar stuff for my cheek. That's where the derm biopsied me 2 years ago and I developed an open wound bed. I went to a plastic surgeon, and his work hasn't healed either. (That's been a year, so I'm not optimistic.) All of the sites show white flakes and redness. I set an appointment with a new derm last week. His office called and told me they were very sorry but the biopsy done on by leg was positive for squamous cell skin cancer. I asked what number they were trying to call, and they gave me me cell number. I told them I merely had an appt. and hadn't actually seen the Dr. yet.

They asked me if I was sure. Can you imagine? So I went sort of quiet and then said, if you'll tell me where on the leg that biopsy was done, I'll check my leg if I won't have to take my pants off while driving.

I called to confirm my appt two days later because I didn't receive a reminder call. They told me I had no appt, but they'd make me one. I declined.

That's when I decided to do a free consult with the forum. Thanks, everybody! Better advice, no wait, no co-pay. I'm happy!

celiac-mommy Collaborator
celiac-mommy
Posted

me too.

Me 3 <_<

I'm using an apple cider vinegar rinse once a day for my scalp. Works WONDERS!!

Last I looked, Cetaphil had gluten...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

my sister and one of my boys had a weird scaly itchy place on their arms. Athletes foot spray worked for one and Head and Shoulders for another. I think you have to see if something works,& if it doesn't, try something else.

eatmeat4good Enthusiast
eatmeat4good
Posted

I think I've had every symptom possibly connected to celiac disease. The latest is a patch of dry scaly skin on my ear lobe. It itches the bejesus out of me. I saw a dermatoligist about it. He ignored my question and focused on a red spot on my nose which he said looked cancerous. That was a month ago. The nose biopsy is benign. My ear still itches, and I look like Rudolph. I wash my face with Cetaphil and use a locally available cream which includes: aloe vera gel, saflower oil, purified water, Vitamin E, Vitamin A Pro-Vitamin B, Ginseng, Native American Herbal Mixture.

Or I use Vanicream from Wallgreens.

I'd be so greatful if anyone has a suggestion about that scaly, itchy skin on my ear. It is driving me cookoo.

Oh dear, I didn't see your post until now.

Cetaphil is not gluten free.

If your rash is related to gluten or is actually DH it might be the Cetaphil.

There are posts on here discussing Cetaphil by others who thought it was for sensitive skin and liked it...but it isn't safe for Celiacs.

The have one product that is ok, but it isn't the regular Cetaphil.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

Yikes.

I'm just using the cetaphil gentle cleanser soap, which I thought was safe. Should I 86 the cetaphil?

The derm. told me I didn't have DH, and mentioned he's only seen it about four times. Thanks for all of the great advice.

IfI shouldn't use cetaphil as a facial cleanser, I'd be grateful for recommendations on something safer.

Thanks eb.

eatmeat4good Enthusiast
eatmeat4good
Posted

This post is old but it says the gentle cleanser is the one that is gluten free.

Perhaps that is the one you are using??

pricklypear1971 Community Regular
pricklypear1971
Posted

I use Vanicream. I usually find their products next to Cetaphil.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

I checked every ingredient in the Cetaphil Gentle Cleanser again today and it appears to be gluten-free.

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Cetaphil makes me break out in the same way gluten does. I'm not convinced it's gluten-free enough for me.

Marilyn R Community Regular
Marilyn R
Posted
  • Author

Cetaphil makes me break out in the same way gluten does. I'm not convinced it's gluten-free enough for me.

Thanks for letting me know. Do you recommend anyting for a mild facial wash?

(When I researched the ingredients in Cetaphil, I was kind of surprised.)

Jenniferxgfx Contributor
Jenniferxgfx
Posted

I use really dilute Dr. Bronner's liquid baby soap On my face if I feel greasy but mostly I just use lots and lots of water. I try not to use much because I'm so sensitive and do better without it. I use the dr b's as a body wash, too. Sorry I don't have better suggestions!

GFinDC Veteran
GFinDC
Posted

I use real home made soap that my cousin makes for me. Real soap doesn't have detergent in it so it is not as harsh on your skin. It's just nicer IMHO. Plus my cousin made it so that's a plus. She's a nut job and like to do that stuff. :D

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Oh I Forgot! I also like Queen Helene's Mint Julep face masque once in awhile. :)

Marilyn R Community Regular
Marilyn R
Posted
  • Author

So I switched to Vanicream soap (have used Dr. Bonner's in the past, great product, but I'm older and need something with an emmolient for my skin, and don't have any soap making cousins) and it's been amazing. Not necessarily with my skin yet, but I used to have a runny nose and my eyes would tear up after washing my face and taking a shower. I bouoght the benadryl cream too, and have used it. I do believe I'll re-coop the extra cost of the soap with the savings in facial tissues used. :D

Using the Vanicream soap has improved my mornings immensely. Thanks again for your words of wisdom...

M

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      My dad had an Abdominal Aortic Aneurysm. Fortunately, it was discovered during an exam. The doctor could feel my dad's heart beating in his stomach. The aneurysm burst when the doctor first touched it in surgery. Since he was already hooked up to the bypass machine, my dad survived ten more years. Close call! Triple A's can press on the nerves in...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and...
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes...
    4. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      361

      Terrible Neurological Symptoms

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    5. AutomatedGlutenEjector
      - AutomatedGlutenEjector commented on Scott Adams's article in Latest Research
      71

      COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk

      This hypothesis certainly lines up with my experience. Avoided getting Covid until August 2022. Celiac diagnosis three months later, and they think they caught it early (not a ton of damage in my EGD). I'd suspected the connection before, so it's nice to see researchers are interested in this question.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442
    Juls9503
    Newest Member
    Juls9503
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
    • akebog
      Fusilli Pizzeria, Miller Place, NY

      By akebog · Posted

      Very good pizzeria with small dining room in back of the restaurant. The owner's daughter has celiac & they have gluten free pizza & a gluten free menu. Some items from the regular menu can be made gluten free also. They have a lunch menu which we ordered from & my chicken with spinach & mozzarella over gluten-free penne was delicious. They also have Tuesday night pasta specials & Thursday night chicken pasta specials. We plan on going back for dinner soon.
×
×
  • Create New...