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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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nikky

Struggling To Cope With Boyfriend's Mother

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I'm slowly getting to the end of my teather with my boyfriend's mother. She shows no respect for my inability to consume anyting with gluten in it and whenever im at the house she tries to feed me bread, pastry, pizzas and gluten containing frozen foods including sausages and burgers that contain wheat flour. She also refuses to let me store food safely and whenever me and my boyfriend are trying to cook she will come into the kitchen and start telling me what I am and arent allowed, constantly giving me gluten containg options and getting agitated when I tell her that I'm unable to eat it because of the coeliac.

Both myself and my boyfriend have spoken to her on several ocasions, explaining to her foods that are/arent safe, why its easier for me to be allowed to look for things to eat and all about cross-contamination, but none of it seems to sink in. I've given her an official list of foods and ingredients that need to be avoided, and have even told her I'm prepared to supply some food myself provided i can store it safely when I'm staying.

Two weeks ago, she and her husband went on holiday,leaving me at the house with my boyfriend. Before she went, she promised to go shopping for food that we could both have. When we later looked, we found the fridge, freezer and cupboards full of sausage rolls, pies, pasties, wheat-flour containing soups, pizza, biscuits etc, and vertually nothing that was gluten - free.

I've also explained that I am not expecting specialist foods to be bought, but that just by changing brand a food can become safe or that life could be easier if i was allowed to sort it myself without interuption.

She has also said before that shes been tempted to 'experiement' with food for me and my boyfriend and last week my boyfriend told me to never leave her with anything I'm going to eat as he over heard her telling her best friend that she wanted to spread bread crumbs in my food. When the friend then raised the point that it would be harmful for me, she said 'I know, I dont care' :(.

I've tried several times to explain the seriousness of the condition, but she has convinced herself that I'll just get a 'bit of a bad stomach'. The last time i had gluten my lips were swelling up and it felt like there were knives in my throat and stomach.

Any advice???

(Just want to add, my boyfriend is completely supportive, and is constantly trying to learn about the condition and get his mum to listen.)

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This woman obviously hates you if she wants to deliberately make you sick and tells her friend "I know and I don't care." She is dangerous. You and your boyfriend need to get your own place and never ever go back to her house. Would she feed sugar to someone with diabetes? Or peanuts to someone with a peanut allergy? She is mentally ill or something. What is wrong with people like that? It's really quite horrifying. :(

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any suggestions ?

Bring another girlfriend along next time, and introduce her as your new Official Food Taster, since the Mum -in- Law from Hell

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Why are you in this evil person's house? If she told her friend she was going to stab you while you are sleeping, would you stay there? Would you even go for an hour visit?

Please do not have children with this guy. He may be OK but his mother isn't. And if she has a husband, he isn't good either. Your children would never be safe around her. Your life would be a constant battle with the kids father as he tries to take them to visit his mother. Or let's them be around her.

The fact is, she doesn't like you and she is a mean person. If it weren't gluten it would be something else. Be glad you found this out before you have her grandchildren or marry her son.

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I wouldn't even be cooking in her kitchen because it is likely a gluten minefield even if the food you are cooking is gluten free. The answer to the problem is to cook for yourself and your boyfreind at your home and to avoid hers like the plague. Eat your meals at home and just bring a wrapped snack with you. Why isn't your boyfreind laying down the law to her? If he isn't standing up firmly for you now for heavens sake don't even think of marrying or having children with him as it will only get worse.

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No offense but it sounds like this lady really does not like you and this is her passive-aggressive attempt to get rid of you.

I would no go to the woman's house. It's dangerous and you are clearly not welcome. I wouldn't want to be where I wasn't welcome.

Hopefully your boyfriend can come up with a solution to see you outside of his mom's home.

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I don't think it's so passive.

Geez. Get away from that woman, don't eat at her house, don't stay at her house.

And yes, if you have children with your boyfriend you will be stuck with that wacky woman for life.

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This woman obviously hates you if she wants to deliberately make you sick and tells her friend "I know and I don't care." She is dangerous. You and your boyfriend need to get your own place and never ever go back to her house. Would she feed sugar to someone with diabetes? Or peanuts to someone with a peanut allergy? She is mentally ill or something. What is wrong with people like that? It's really quite horrifying. :(

Thanks for your advice, happily we intend to get a place when we are able to afford it, although that may be around another year. Its funny you mention diabetes, she's actually diabetic herself and so should have an understanding of the difficulty these things create.

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No offense but it sounds like this lady really does not like you and this is her passive-aggressive attempt to get rid of you.

I would no go to the woman's house. It's dangerous and you are clearly not welcome. I wouldn't want to be where I wasn't welcome.

Hopefully your boyfriend can come up with a solution to see you outside of his mom's home.

Yeh its a horrible feeling. He tries his best to come see me here but its not always easy with money. Thankyou for your help :)

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Oh geez. You LIVE there?

Find second-hand fridge and put it on your room, store your stuff there.

I'd find another way to get out of that house...get a place with roomates???? Even a gluteny slob is better than someone who intends you harm.

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Why are you in this evil person's house? If she told her friend she was going to stab you while you are sleeping, would you stay there? Would you even go for an hour visit?

Please do not have children with this guy. He may be OK but his mother isn't. And if she has a husband, he isn't good either. Your children would never be safe around her. Your life would be a constant battle with the kids father as he tries to take them to visit his mother. Or let's them be around her.

The fact is, she doesn't like you and she is a mean person. If it weren't gluten it would be something else. Be glad you found this out before you have her grandchildren or marry her son.

Firstly, I havent been to the house since she said that.

secondly, it is not my boyfriend that is the issue, if he had the money hed be away from her by now. As it is we are moving next year for me to go to uni.

And if i had married him, would you suggest i divorce him? I dont think so..

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Oh geez. You LIVE there?

Find second-hand fridge and put it on your room, store your stuff there.

I'd find another way to get out of that house...get a place with roomates???? Even a gluteny slob is better than someone who intends you harm.

no i dont live there... i live with my parents, we dont have a place on our own because we cant afford it at the moment

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I wouldn't even be cooking in her kitchen because it is likely a gluten minefield even if the food you are cooking is gluten free. The answer to the problem is to cook for yourself and your boyfreind at your home and to avoid hers like the plague. Eat your meals at home and just bring a wrapped snack with you. Why isn't your boyfreind laying down the law to her? If he isn't standing up firmly for you now for heavens sake don't even think of marrying or having children with him as it will only get worse.

Thanks for your advice, yeah, the kitchen is a minefield, i go in and clean like crazy in there. I do want to point out though that he does stand up for me, they've had shouting matches over it, the week we were on our own, he went out and spent all the money he had to get me safe food, he is really good to me.

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Firstly, I havent been to the house since she said that.

secondly, it is not my boyfriend that is the issue, if he had the money hed be away from her by now. As it is we are moving next year for me to go to uni.

And if i had married him, would you suggest i divorce him? I dont think so..

Well, it appears you have it under control since you aren't visiting her house anymore.

You can't fix crazy. And while I wouldn't advise you to divorce your husband, or leave your boyfriend because he has a crazy mother...I can tell you from experience that if y'all have children together you will be bound to this woman and you WILL be forced into situations where she can attack you -with gluten or her new weapon of choice.

You can't fix VINDICTIVE crazy -which is what she is. She isn't eccentric, colorful, or quirky. Wack jobs like her are forever, and she will go after you for the rest of her life.

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Bring another girlfriend along next time, and introduce her as your new Official Food Taster, since the Mum -in- Law from Hell

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Thanks for your advice, yeah, the kitchen is a minefield, i go in and clean like crazy in there. I do want to point out though that he does stand up for me, they've had shouting matches over it, the week we were on our own, he went out and spent all the money he had to get me safe food, he is really good to me.

Glad to hear he is sticking up for you. This woman may find herself very lonely in her elderly years as if she keeps going like she is she will drive her son away from her forever whether he is with you or someone else.

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Firstly, I havent been to the house since she said that.

secondly, it is not my boyfriend that is the issue, if he had the money hed be away from her by now. As it is we are moving next year for me to go to uni.

And if i had married him, would you suggest i divorce him? I dont think so..

I think I said it a good thing you haven't married or had kids. Just like everyone else said. It's good you found this out now. You can make an informed decision.

And, if he expected you to visit a person who has said she will hurt you, I would suggest divorce. But sounds like he might be cool with cutting ties with her and keeping you safe. Or at least not letting her near you.

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This is ridiculous. Your boyfriend's mother is clearly a horrible person. Personally I would just stay away from here for good. It sounds as though you've done to best to explain things to her and she doesn't care. The solution is obvious...don't visit her. Why would you ever want to be around someone so nasty who is trying to make you sick!

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You can just keep your food issues away from your boyfriend's mother. Don't cook at her house or eat with her, and if she tries to bring up the subject of food just tell her you're not comfortable talking about your personal health issue and would rather keep it to yourself. If it's a holiday or something an you have to eat a family dinner with her, bring your own food. I find this whole thing easier to deal with if I don't expect other people to understand or try to accommodate me. You really don't ever need to talk about food with this woman at all. You also don't ever have to eat food that she touches.

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You can just keep your food issues away from your boyfriend's mother. Don't cook at her house or eat with her, and if she tries to bring up the subject of food just tell her you're not comfortable talking about your personal health issue and would rather keep it to yourself. If it's a holiday or something an you have to eat a family dinner with her, bring your own food. I find this whole thing easier to deal with if I don't expect other people to understand or try to accommodate me. You really don't ever need to talk about food with this woman at all. You also don't ever have to eat food that she touches.

TOTALLY agree. I never ever ever rely on anybody else to feed me no matter where I go (I mean at someone else's house). I bring my own food. If it's my parents (mom is gluten free so it's not a big deal there) or my in laws, all I ask is that I can go shopping for my own food as soon as I get there, and can I store it somewhere and can I cook my own food? Or...food for everyone if they'd like to eat yummy gluten free that night. I would NEVER expect someone who wasn't even related to me to accommodate me in any way.

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Oh, and re: spreading bread crumbs in your food? O.M.G. I wouldn't be in the same room with that witch. I'm assuming you are younger (sorry if you're not), but writing as a middle aged woman who has BTDT, I would seriously think about marrying into that family. Marriage and kids is a long and stressful marathon, and bad in-laws can make your life hell. I have several girl friends who are in therapy just because of dealing with terrible in-laws.

Good luck...

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Buy her a book abnout Celiac and ask her to read it so she can understand what you are dealing with.

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TOTALLY agree. I never ever ever rely on anybody else to feed me no matter where I go (I mean at someone else's house). I bring my own food. If it's my parents (mom is gluten free so it's not a big deal there) or my in laws, all I ask is that I can go shopping for my own food as soon as I get there, and can I store it somewhere and can I cook my own food? Or...food for everyone if they'd like to eat yummy gluten free that night. I would NEVER expect someone who wasn't even related to me to accommodate me in any way.

I DO cook for myself there, i dont expect anything like that. As i mentioned in my original post I have asked to be allowed to get food for myself and store it there but she always turns it away... At 18 years old its not always easy not to have anything to do with someone or let them near your food in their own house.

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I DO cook for myself there, i dont expect anything like that. As i mentioned in my original post I have asked to be allowed to get food for myself and store it there but she always turns it away... At 18 years old its not always easy not to have anything to do with someone or let them near your food in their own house.

Oh, Nikky, I am sorry. You're younger than I even realized. I know it's hard when everyone is still living with parents. Just be careful (I know you will be) and try and not eat anything she prepares. She sounds just abusive.

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My mother in law constantly comments that she truly believes that since my illness came on so suddenly, one day it will just as suddenly go away and I'll be cured. Oh yeah, and did I mention she's a doctor? No wonder we all have such bad experiences with doctors! My husband and I have politely told her on many occasions that it will never go away. But next time I don't think I will be so polite because I'm getting a bit tired of it. Having said this, she does cook gluten free for me when I'm over there.

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    WHY A GLUTEN-FREE DIET?
    Currently the only effective, medically approved treatment for celiac disease is a strict gluten-free diet. Following a gluten-free diet relieves symptoms, promotes gut healing, and prevents nearly all celiac-related complications. 
    A gluten-free diet means avoiding all products that contain wheat, rye and barley, or any of their derivatives. This is a difficult task as there are many hidden sources of gluten found in the ingredients of many processed foods. Still, with effort, most people with celiac disease manage to make the transition. The vast majority of celiac disease patients who follow a gluten-free diet see symptom relief and experience gut healing within two years.
    For these reasons, a gluten-free diet remains the only effective, medically proven treatment for celiac disease.
    WHAT ABOUT ENZYMES, VACCINES, ETC.?
    There is currently no enzyme or vaccine that can replace a gluten-free diet for people with celiac disease.
    There are enzyme supplements currently available, such as AN-PEP, Latiglutetenase, GluteGuard, and KumaMax, which may help to mitigate accidental gluten ingestion by celiacs. KumaMax, has been shown to survive the stomach, and to break down gluten in the small intestine. Latiglutenase, formerly known as ALV003, is an enzyme therapy designed to be taken with meals. GluteGuard has been shown to significantly protect celiac patients from the serious symptoms they would normally experience after gluten ingestion. There are other enzymes, including those based on papaya enzymes.

    Additionally, there are many celiac disease drugs, enzymes, and therapies in various stages of development by pharmaceutical companies, including at least one vaccine that has received financial backing. At some point in the not too distant future there will likely be new treatments available for those who seek an alternative to a lifelong gluten-free diet. 

    For now though, there are no products on the market that can take the place of a gluten-free diet. Any enzyme or other treatment for celiac disease is intended to be used in conjunction with a gluten-free diet, not as a replacement.

    ASSOCIATED DISEASES
    The most common disorders associated with celiac disease are thyroid disease and Type 1 Diabetes, however, celiac disease is associated with many other conditions, including but not limited to the following autoimmune conditions:
    Type 1 Diabetes Mellitus: 2.4-16.4% Multiple Sclerosis (MS): 11% Hashimoto’s thyroiditis: 4-6% Autoimmune hepatitis: 6-15% Addison disease: 6% Arthritis: 1.5-7.5% Sjögren’s syndrome: 2-15% Idiopathic dilated cardiomyopathy: 5.7% IgA Nephropathy (Berger’s Disease): 3.6% Other celiac co-morditities include:
    Crohn’s Disease; Inflammatory Bowel Disease Chronic Pancreatitis Down Syndrome Irritable Bowel Syndrome (IBS) Lupus Multiple Sclerosis Primary Biliary Cirrhosis Primary Sclerosing Cholangitis Psoriasis Rheumatoid Arthritis Scleroderma Turner Syndrome Ulcerative Colitis; Inflammatory Bowel Disease Williams Syndrome Cancers:
    Non-Hodgkin lymphoma (intestinal and extra-intestinal, T- and B-cell types) Small intestinal adenocarcinoma Esophageal carcinoma Papillary thyroid cancer Melanoma CELIAC DISEASE REFERENCES:
    Celiac Disease Center, Columbia University
    Gluten Intolerance Group
    National Institutes of Health
    U.S. National Library of Medicine
    Mayo Clinic
    University of Chicago Celiac Disease Center

    Jefferson Adams
    Celiac.com 04/17/2018 - Could the holy grail of gluten-free food lie in special strains of wheat that lack “bad glutens” that trigger the celiac disease, but include the “good glutens” that make bread and other products chewy, spongey and delicious? Such products would include all of the good things about wheat, but none of the bad things that might trigger celiac disease.
    A team of researchers in Spain is creating strains of wheat that lack the “bad glutens” that trigger the autoimmune disorder celiac disease. The team, based at the Institute for Sustainable Agriculture in Cordoba, Spain, is making use of the new and highly effective CRISPR gene editing to eliminate the majority of the gliadins in wheat.
    Gliadins are the gluten proteins that trigger the majority of symptoms for people with celiac disease.
    As part of their efforts, the team has conducted a small study on 20 people with “gluten sensitivity.” That study showed that test subjects can tolerate bread made with this special wheat, says team member Francisco Barro. However, the team has yet to publish the results.
    Clearly, more comprehensive testing would be needed to determine if such a product is safely tolerated by people with celiac disease. Still, with these efforts, along with efforts to develop vaccines, enzymes, and other treatments making steady progress, we are living in exciting times for people with celiac disease.
    It is entirely conceivable that in the not-so-distant future we will see safe, viable treatments for celiac disease that do not require a strict gluten-free diet.
    Read more at Digitaltrends.com , and at Newscientist.com

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    • Can't help you with your questions. Make sure you keep eating gluten until all testing is done. I would recommend that you get the full celiac panel done so you can get quick answers. The full celiac panel is: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA
    • Retarted....The Kite Hill Ricotta is like $9 for 8oz.  Their little thing of tuffle is the same, Miyoko Mozz is like $7.42 8oz last I checked. Leaf Cuisine is cheap at like $4 for a 8oz tub of the spread. I love it mixed up and thinned down into a almond milk sauce over stuff, or spread on Mikey english muffins or my own paleo breads. Daiya is pretty cheap, it honestly taste pretty bad raw and cold but great in cooked foods....but xantham gum, canola oils, various starches....you pay for it in the processed department lol.

      To be honest I often make my own cheese sauce...most good ones rely on blended nuts....again gets expensive. I invented what I call "Poor Mans Cheese" where I use coconut flour in them with a nut milk to thicken up.....honestly it is a bit gritty and you have to boil it to thicken and soften it stiring like crazy. But while not really dead on it does work..... I used to have some good recipes based off of a Indian restaurants baba ghanoush using egg plant....but some other guy says I plagiarized him and made us take it down.
    • Hi there! Brand new here. Little background - 32 yr old, female. About 2 weeks ago, I developed massive diarrhea and horrible stomach cramps. It’s been constant, daily since. I’ve always dealt with headaches, most of my life and I have noticed that since 2 weeks ago, I’ve gotten them almost daily.  My doc is having me come in for blood work (specially a tTG-IgA) to check for celiac. As I started to research what it was, I was blown away by some of the symptoms that can accompany celiac (many of which I’ve been diagnosed with for years, without explaination: stomach often upset and bloating, anemia, depression, anxiety, bad knee joints, headaches, etc).   Here (finally) is my question: I’ve always had a lactose sensitivity but have noticed since this “flare up” 2 weeks ago when my symptoms escalated like crazy, my body’s response to dairy has also gotten extreme. Is this normal or typical with a possible celiac diagnosis? I hope that made sense...?  Thanks in advance. This site has been so informative. Trying not to “webmd” myself like crazy until the blood work get done - but it’s nice to begin to prepare myself, in the event the blood work leans toward celiac.  PS: has anyone ever experienced their face getting really red and hot to the touch (flush) after eating gluten? My face has done this since I was a kid and I always just thought it was something quirky about myself haha  
    • And xanthan-free! I just found something new I am happy about, so I wanted to share with everyone.  Larabars are gluten-free and also no corn, soy, or oats.  At least in the "original" bars anyway (they have different bars and bites that I have not checked out yet).  They have flavors like chocolate chip cookie dough,  banana chocolate chip, carrot cake, cashew cookie, cherry pie, apple pie, blueberry muffin, coconut, etc.   I wish my local store carried all the flavors, but so far I tried the cashew cookie and I love it. It was so good with an ice coffee.   I also tried the blueberry muffin, which did actually have a sort of muffin-like taste to it.  The chocolate chip cookie dough didn't taste like cookie dough or a cookie to me - it tasted like dates and chocolate, but was still good.  I really LOVE the cashew cookie.  My daughter tried a coconut cream pie one and liked it.  They were on sale in Market Basket, five for $5, although seeing boxes of them online they seem to average close to a dollar a piece or so in general.  They make a nice little treat just once in a while.  I have missed having something with coffee or tea sometimes. I used to like to have a biscotti or ginger snap or a few fig newtons every now and then with a cup of something hot, and I miss that. So I am really happy to stumble upon these bars.  No corn, soy, or oats, yay! No xanthan gum either.  Seems so many gluten-free products I find have at least one or more of those in it.  I bet kids might likes these too.  Just a fun little treat. They seem to be available at many grocery stores (not sure about drugstores), but also Walmart online and amazon sell them.  I look forward to trying more flavors.  https://www.larabar.com/our-products/larabar/pecan-pie  
    • I have no idea.  I tried looking online too.  I did see this, a Walmart page that is suppose to be gluten-free.  I was excited at first, but then realize most seem to have corn in them so I can't eat them. But other people here might find some use from this link below. I do not see the Sazon on here though, so either Walmart doesn't carry it, or it's perhaps not gluten-free after all?  I don't know.  I hope you can find a better, definitive answer.  https://www.walmart.com/browse/food/gluten-free-foods/goya-food/976759_1228023/YnJhbmQ6R295YSBGb29k
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