Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Would You Take A Drug So You Can Eat Gluten?


GlutenDude

Recommended Posts

GlutenDude Newbie

I know the Pharma companies are working on a drug that will hopefully allow somebody with gluten issues to eat gluten safely. I'm curious...if/when this drug comes out, would you get it? Personally, I can't see myself ever eating gluten again (been five years), even with a pill. Too much history...too much pain associated with it. Your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

No, I avoid medications at all costs. Gluten isn't worth it, and I can't even imagine it ever being appetizing again (I

sa1937 Community Regular

No, although I think it would be nice to take if going out to dinner and be worried about CC. Otherwise there's no way I would ever think of eating gluten again.

Marilyn R Community Regular

I'd be more interested in a "morning after" recovery pill for when there are pitfalls, but I don't reckon that's going to happen. I associate gluten with poison, so I wouldn't be interested in taking a pill that will allow me to poison myself without side effects.

lucia Enthusiast

Yes. Absolutely. I could eat at potlucks again!?! Wonderful.

But, as "Looking for Answers" suggests, I find it highly unlikely that the drug wouldn't potentially have weird and unsavory side effects.

So I'd rather see the U.S. government pass a law requiring labeling of foods with allergy-producing ingredients, than see pharma develop a drug so I can eat gluten.

love2travel Mentor

100% YES. BUT only if it was guaranteed to work after a lot of research went into it first AND it was proven not to cause any other health issues.

saintmaybe Collaborator

I haven't been gluten free that long, but like you GlutenDude, I've lost nearly everything important to me as a result of gluten side effects. I really can't see wanting it-- I've been reading excerpts from "Wheat Belly," and there are such profound(ly bad) health consequences from eating wheat, aside from celiac disease....Why would you want to?

The only reason I ate wheat as long as I did was because it didn't occur to me that it could possibly be bad for you. The FDA says you HAVE to have it, for crying out loud. Who was I to argue with that? Now that I'm off it, and feel a million times better, nobody can make me eat it again, pill or no pill.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alicewa Contributor

I don't think I'd take the drug but I heard that a homeopathic remedy from Dr. Wise's along with his Glandular Calm made in Tulsa may be interesting to try out. I've heard some very good recounts of this online and they use enterolab testing.

Also, it seems as though we either have celiac or we don't. I'm still quite new but I think I'd be willing to try some of these products if I was convinced enough they'd work. It seems to be as if it's a on-off switch that can change.

Some also tell me that the autoimmunity is always there, even when we're gluten free. How does this go? I thought the gluten free diet got rid of the autoimmunity but then gluten was the ON switch.

mushroom Proficient

Drugs can be wondrous in their ability to do good when everything else fails, but are notorious for their adverse "side effects" which are always downplayed by pharma and the docs who prescribe them. I would not take a drug that would have potentially disastrous effects on my health just to avoid the chore of eating gluten free. I have already experienced too many adverse drug reactions to ever be seduced into that option. The fewer drugs you take the better. My docs this summer wanted me to take Pradaxa (an anti-clotting druglike Coumadin to avoid stroke) which I strenuously resisted. We now find that not only does it have serious adverse effects, but that they cannot reverse its anti-clotting mechanism so that if you were to bleed you could potentiallly bleed out :unsure: And I have seriously fragile skin :blink: Do these people even think????? or have the pharma companies seduced them?

So, the answer is NO!!!

Roda Rising Star

NOPE! I would not take it so I could deliberately eat gluten. If there was something to help in the event of accidental ingestion of gluten or CC, without horrible side effects, then maybe.

ravenwoodglass Mentor

No. For one thing I wouldn't trust it to really stop the autoimmune process without messing with the whole immune system. I wouldn't want to trade off having to be gluten free with picking up every virus or bacterial infection that I come into contact with. Being gluten free isn't that bad in the long run.

dilettantesteph Collaborator

It might be a nice way to avoid those accidental glutenings. I wonder if a drug created for the average celiac would work on a super sensitive celiac?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    3. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    4. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,242
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.