Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Challenging Soy - Do I Have This Right?


sreese68

Recommended Posts

sreese68 Enthusiast

I've had soy out of my diet for 4 months at least. (removed it during a large elimination diet, not because I suspected problems) I want to test it, so I can increase my restaurant options since we're traveling a couple of times in the next month.

OK, so from reading here, I understand that people can have different reactions to different types of soy foods. Or react to one form and not another. So I should probably test soy 4 different ways(?):

soybean oil

gluten-free soy sauce (since it's fermented)

edamame

soy lecithin

And I do know that I need to space the tests out by a week give or take. :) Anyway, am I on the right track?

Thanks!

Sharon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I've had soy out of my diet for 4 months at least. (removed it during a large elimination diet, not because I suspected problems) I want to test it, so I can increase my restaurant options since we're traveling a couple of times in the next month.

OK, so from reading here, I understand that people can have different reactions to different types of soy foods. Or react to one form and not another. So I should probably test soy 4 different ways(?):

soybean oil

gluten-free soy sauce (since it's fermented)

edamame

soy lecithin

And I do know that I need to space the tests out by a week give or take. :) Anyway, am I on the right track?

Thanks!

Sharon

I don't know what the right answer is but sounds like a plan to me. If you do react, you may consider waiting a bit longer than a week, but see how it goes.

With any food, not just soy, it is possible to react to various forms/methods of preparation. For example cooked forms are generally tolerated better than raw but some people cannot have cooked either. I would not have thought that I react to the oils, my allergist said generally people tolerate the oils because they don't have the proteins, but I seem to be reacting to oils and found that expeller cold pressed oils are more problematic than those that are more processed or processed other ways. I avoided soy for ages(because of pos, allergy test), maybe a year and the did not do a re-introduction challenge but was low on groceries and had some salad dressing with soy oil on hand and thought won't hurt just a bit so had it for 2 days in a row and got unusual patches show up on my skin. Recently I figured out I react to sunflower in many forms including oil, who knew?

Marilyn R Community Regular

Here's my two cents. I've been soy free for over 18 months, except for an occasional dark chocolate. I don't crave soy, so I keep avoiding it. I think (but don't know) that it's related to thyroid disorders. It made me so sick before, and I like sticking with foods that didn't make me sick.

I used to wish I had soy sauce for stir fries. A reasonable substitute is the juice of a lime with a tsp. of fish sauce and a bit of agave syrup, or a tsp. of brown (or white) sugar or honey. Coconut amminos are ok, but not as good as the other substitute.'

Sometimes I miss the convenience of a prepared mayo. But I like eating purer foods, and that's kept my weight in check, along with my cholesterol levels.

Good luck, let us know how it goes with your soy challenge.

missy'smom Collaborator

Sometimes I miss the convenience of a prepared mayo.

I use Whole Foods 365 mayo. I also need mustard-free mayo and that's HARD to find but this one is free of soy and mustard.

Marilyn R Community Regular

I use Whole Foods 365 mayo. I also need mustard-free mayo and that's HARD to find but this one is free of soy and mustard.

Thank you. I had a problem with Spectrum canola oil mayo, and none of the other mayo's work. It's 30 miles to the nearest Whole Foods, maybe I'll make a road trip. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.