Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question Survey


TTNOGluten

Recommended Posts

TTNOGluten Explorer

I know this question has probably been asked on numerous occasions, but am always curious to hear others response, as I continue to have persistent upper abdominal pain frequently radiating into my back that the docs all seem to link to my celiac, although, they are now questioning my gallbladder as being a coexisting issue. But with all that being said, how long did it take for folks to get rid of their abdominal pain after going gluten free? Mine seems to be relentless for 2 plus months now, never with a break, of a constant gnawing pain in upper abdomen slightly on the right as well with cramping/aching in my mid back, with currently no other symptoms.

I guess looking for some help as usual

And as always, thanks in advance for all the advice, I think it helps alot more to hear from patients who experience it, rather than a doctors textbook.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CR5442 Contributor

Hi there, this is a really good question! I am dealing with this right now. Before you get any gallbladder surgery perhaps try and treat for congested liver. I have had this pain on and off for years but have it worse now as have kicked coffee out of my diet. Coffee was acting as my 'bitters' which in herbal/TCM terms help the flow of bile. Bea/Yolo on here suggested Dandelion, which I have tried and is awesome at getting things to flow. It is quite drying so I would suggest using it with a moistening herb - probably something like Licorice. Herbs take a while to work so start slowly and tweak to see if this makes a difference. What I do is take the dandelion root in tea form - powdered from a capsule is safest (must be the root) about 30 mins before eating. After eating I sit reclined in a chair and then after a while I start to feel the bile flowing and the pain under the right rib cage and to my right shoulder starts to dissappear! I guess it will take a while of treating to get things back to the way they should be. Celiacs probably have thickened bile because of the excess toxins and leaky gut allowing toxins and bile back to the liver in quantities that are higher than normal.

Hope you get some other suggestions too - there are some extremely knowledgeable people on here!

ravenwoodglass Mentor

I would get that pain until I eliminated soy. Pepto Bismal would help with that for me.

If you haven't considered either dairy (casien) or soy as a possible issue you may want to eliminate them and see if it helps.

CR5442 Contributor

I know this question has probably been asked on numerous occasions, but am always curious to hear others response, as I continue to have persistent upper abdominal pain frequently radiating into my back that the docs all seem to link to my celiac, although, they are now questioning my gallbladder as being a coexisting issue. But with all that being said, how long did it take for folks to get rid of their abdominal pain after going gluten free? Mine seems to be relentless for 2 plus months now, never with a break, of a constant gnawing pain in upper abdomen slightly on the right as well with cramping/aching in my mid back, with currently no other symptoms.

I guess looking for some help as usual

And as always, thanks in advance for all the advice, I think it helps alot more to hear from patients who experience it, rather than a doctors textbook.

Cramping aching in the mid-back sounds like spleen. Have you seen an acupuncturist? They may be able to help!

Bubba's Mom Enthusiast

I've been having the gb-like pain in my upper right quadrant for months. It was one of my strongest symptoms before being DXed. I got a tingling sensation in my right shoulder blade quite often too, after eating. My Dr. said the pain and tingling in my back was most likely caused by my gb irritating a nerve that runs through that area. My issures haven't resolved yet. I've been gluten-free for about 3.5 months.

I've heard a lot of people with Celiac have gallbladder issues. If you can tolerate it just wait it out and see if it resolves on the gluten-free diet?

There's also a gall bladder friendly diet you could try?

Open Original Shared Link

I tried the beet sald recipe and I found it pretty tasty.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.