Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question Survey

TTNOGluten

By TTNOGluten
in Coping with Celiac Disease

Recommended Posts

TTNOGluten Explorer
TTNOGluten
Posted

I know this question has probably been asked on numerous occasions, but am always curious to hear others response, as I continue to have persistent upper abdominal pain frequently radiating into my back that the docs all seem to link to my celiac, although, they are now questioning my gallbladder as being a coexisting issue. But with all that being said, how long did it take for folks to get rid of their abdominal pain after going gluten free? Mine seems to be relentless for 2 plus months now, never with a break, of a constant gnawing pain in upper abdomen slightly on the right as well with cramping/aching in my mid back, with currently no other symptoms.

I guess looking for some help as usual

And as always, thanks in advance for all the advice, I think it helps alot more to hear from patients who experience it, rather than a doctors textbook.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CR5442 Contributor
CR5442
Posted

Hi there, this is a really good question! I am dealing with this right now. Before you get any gallbladder surgery perhaps try and treat for congested liver. I have had this pain on and off for years but have it worse now as have kicked coffee out of my diet. Coffee was acting as my 'bitters' which in herbal/TCM terms help the flow of bile. Bea/Yolo on here suggested Dandelion, which I have tried and is awesome at getting things to flow. It is quite drying so I would suggest using it with a moistening herb - probably something like Licorice. Herbs take a while to work so start slowly and tweak to see if this makes a difference. What I do is take the dandelion root in tea form - powdered from a capsule is safest (must be the root) about 30 mins before eating. After eating I sit reclined in a chair and then after a while I start to feel the bile flowing and the pain under the right rib cage and to my right shoulder starts to dissappear! I guess it will take a while of treating to get things back to the way they should be. Celiacs probably have thickened bile because of the excess toxins and leaky gut allowing toxins and bile back to the liver in quantities that are higher than normal.

Hope you get some other suggestions too - there are some extremely knowledgeable people on here!

ravenwoodglass Mentor
ravenwoodglass
Posted

I would get that pain until I eliminated soy. Pepto Bismal would help with that for me.

If you haven't considered either dairy (casien) or soy as a possible issue you may want to eliminate them and see if it helps.

CR5442 Contributor
CR5442
Posted

I know this question has probably been asked on numerous occasions, but am always curious to hear others response, as I continue to have persistent upper abdominal pain frequently radiating into my back that the docs all seem to link to my celiac, although, they are now questioning my gallbladder as being a coexisting issue. But with all that being said, how long did it take for folks to get rid of their abdominal pain after going gluten free? Mine seems to be relentless for 2 plus months now, never with a break, of a constant gnawing pain in upper abdomen slightly on the right as well with cramping/aching in my mid back, with currently no other symptoms.

I guess looking for some help as usual

And as always, thanks in advance for all the advice, I think it helps alot more to hear from patients who experience it, rather than a doctors textbook.

Cramping aching in the mid-back sounds like spleen. Have you seen an acupuncturist? They may be able to help!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I've been having the gb-like pain in my upper right quadrant for months. It was one of my strongest symptoms before being DXed. I got a tingling sensation in my right shoulder blade quite often too, after eating. My Dr. said the pain and tingling in my back was most likely caused by my gb irritating a nerve that runs through that area. My issures haven't resolved yet. I've been gluten-free for about 3.5 months.

I've heard a lot of people with Celiac have gallbladder issues. If you can tolerate it just wait it out and see if it resolves on the gluten-free diet?

There's also a gall bladder friendly diet you could try?

Open Original Shared Link

I tried the beet sald recipe and I found it pretty tasty.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748
    Nina J
    Newest Member
    Nina J
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.