Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 86 Of Going gluten-free And Not Feeling Good, Help?

KiwiBrit

Recommended Posts

KiwiBrit Rookie
KiwiBrit
Posted

Hello,

I am now on day 86 of being gluten-free and its been going ok. I have my up and down days, but I hear thats normal.

The past few days I have not been feeling well. I dont know whether its celiac related or im just getting sick.

I just spoke with my gastro (his assistant) she said it doesnt sound like anything celiac but she would ask him when he gets back, the end of this month. So I made an appt with my primary Dr today.

I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.

I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.

Im also 40, my Mum said she had the 'change' early.

I guess the main reason im writing this is to see if any other women have had this happen.

I otherwise feel ok. Just weird. Is it menstral related?

Thanks for any advice.

-Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KiwiBrit Rookie
KiwiBrit
Posted
  • Author

Anyone?

Di2011 Enthusiast
Di2011
Posted

Hi Kiwi Brit,

So are you a Kiwi in UK or Brit in NZ? :D

It does seem young for menopause but not unheard of.

I don't react to soy but I have read a lot~! Sounds a little similar to some peoples reaction to soy. Salicylates allergy symptoms might be worth checking too.

Perhaps you could test but be careful. I tend to wait until someone (or at least the phone) is around when I'm testing.

Do you avoid MSG?

You should talk to your mum and find out just how early she began noticing changes. The Doc needs to know and record that too.

Open Original Shared Link

Open Original Shared Link

Skylark Collaborator
Skylark
Posted

I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.

I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.

Im also 40, my Mum said she had the 'change' early.

If your mom went through menopause early, it sure sounds like you're having hot flashes. Those are absolutely classic symptoms with the flushing, heart pounding/racing, and feeling weird. I get oddly restless with mine and sometimes I break out in sweat. Once it's over I am often cold for a bit. I'm young for menopause too but it can happen early in us celiacs. The thing with hot flashes is that they're pretty fast and they can be intense. Mine come on fast and they can be over in 10-15 minutes. Putting my wrists under cool water or putting a cold cloth on my forehead helps a lot.

You can doublecheck with your Dr. that it's hot flashes and nothing more worrisome.

KiwiBrit Rookie
KiwiBrit
Posted
  • Author

Hi Kiwi Brit,

So are you a Kiwi in UK or Brit in NZ? :D

It does seem young for menopause but not unheard of.

I don't react to soy but I have read a lot~! Sounds a little similar to some peoples reaction to soy. Salicylates allergy symptoms might be worth checking too.

Perhaps you could test but be careful. I tend to wait until someone (or at least the phone) is around when I'm testing.

Do you avoid MSG?

You should talk to your mum and find out just how early she began noticing changes. The Doc needs to know and record that too.

Open Original Shared Link

Open Original Shared Link

I was born in the UK and grew up in NZ. :)

I looked at the soy allergy you posted and was surprised that that is a lot of what I have. Going to call my Dr on Monday and ask about being tested.

Thanks!

KiwiBrit Rookie
KiwiBrit
Posted
  • Author

Thanks Skylark. I mentioned early menopause to my Dr and she doesnt think so.

I just wish I was never sick again.

rosetapper23 Explorer
rosetapper23
Posted

Two possibilities: thyroid problem or B-12 deficiency. I have both problems, and when either gets out of hand, I end up with hot flashes and my heart pounds. These can both easily be tested for and are common in people with celiac, so perhaps your doctor would be willing to do them. Or....you could buy some sublingual Vitamin B-12 in the meantime and see if you start feeling better. Usually, my symptoms resolve after a day of taking the sublingual B-12. However, if you don't feel better, it might very well be your thyroid that is causing problems. When my Hashimoto's flares up, the hot flashes are acute and uncomfortable--bright, red face...and I feel as though I'm burning up. When I first started getting them, I thought it was menopausal because I'd just finished a round of chemo for breast cancer and could no longer menstruate. However, once I began taking thyroid medication, the hot flashes disappeared immediately.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Come to think of it, I haven't had any hot flashes since my Dr. upped my thyroid medicine a little.

heidi g. Contributor
heidi g.
Posted

anxiety?? That's how i feel when i start freaking out. Pounding heart and blood rushing especially. It feels like my blood is rushing and heart is pounding too. Especially with panich attacks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,777
    • Most Online (within 30 mins)
      7,748
    Sandra Carter
    Newest Member
    Sandra Carter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.