Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Have Soy If You Are Gluten Free?


quiltmom

Recommended Posts

quiltmom Newbie

I am now gluten intolerant. I am a little confused. Do you have to eliminate soy too? Lots of things are wheat free but then it has soy. Can we have soy?

Sue


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Soy is gluten-free. Some people with celiac disease are also intolerant to soy, but certainly not all of us. I have no trouble with soy.

quiltmom Newbie

Soy is gluten-free. Some people with celiac disease are also intolerant to soy, but certainly not all of us. I have no trouble with soy.

Thank you. I think I am getting the gluten free part. But still have confusion over things that are ingredients in products. I guess it is the wording that gets me.

I also have a burning in my mouth and gums. Could this be from being gluten intolerant?

Sue

Ellie84 Apprentice

I also have a burning in my mouth and gums. Could this be from being gluten intolerant?

Gum/enamel problems and sores are relatively common with people who have celiac disease, because most of us have some kind of vitamin deficiency. Smoking makes dental problems worse. Consult your dentist for advice on how to address these problems.

Reba32 Rookie

everyone has different symptoms, it's hard to say if yours are specifically from gluten intolerance or from something else. Burning sensations in the mouth I think are more common with allergic reactions rather than an auto-immune reaction. When do you notice the burning? All the time, or only with certain foods?

Chad Sines Rising Star

Many at least start off with issues to common allergens, soy, dairy, etc until things heal up. Dairy and soy get me bad. Heck, it seems like my GI accepts and rejects things at will with no rhyme or reason.

mamaw Community Regular

Just a side note! Some products are wheat free but not gluten free, you will want to look for products that are labeled gluten free therefore making them wheat free...Wheat free means no wheat but could have rye or barley....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katrala Contributor

1. Look for "gluten-free" label ("a naturally gluten-free food" doesn't always mean the product is gluten-free; three cheers for Wal-Mart brand, which likes to screw up "naturally gluten-free foods" by adding "may contain wheat" disclaimers.) If it is certified gluten-free, stick it in your buggy and move on to the next aisle.

2. Look for wheat listed (I tend to look at 2 products from same brand - one of which I am certain has wheat in it - and compare how they list their ingredients.)

3. Look for barley, rye, malt (not maltodextrose - that is safe) in the ingredients list - this will not usually be listed in the allergens, etc. area.

P.S. - Yes, soy is safe in terms of being gluten-free.

While I am not condoning this practice, my allergy testing revealed both a soy and tomato allergy (some time before any celiac-related problems arose, etc.) I don't pay attention to either, only focusing on the gluten-free side of things.

quiltmom Newbie

Just a side note! Some products are wheat free but not gluten free, you will want to look for products that are labeled gluten free therefore making them wheat free...Wheat free means no wheat but could have rye or barley....

This is good to note. I found some products at Walmart that are gluten free. Watching for the barley and rye too

quiltmom Newbie

everyone has different symptoms, it's hard to say if yours are specifically from gluten intolerance or from something else. Burning sensations in the mouth I think are more common with allergic reactions rather than an auto-immune reaction. When do you notice the burning? All the time, or only with certain foods?

I have the burning most of the time. I don't know of a certain food that causes it. I don't eat things that are acid.

Katrala Contributor

This is good to note. I found some products at Walmart that are gluten free. Watching for the barley and rye too

Be careful of Wal-Mart brands. Wal-Mart has done a better job at labeling their products, but they still sometimes have gluten in products that most other brands don't (canned vegetables, for example.)

  • 3 years later...
Drifter60 Newbie

I have just found out i am gluten intolerant and these posts have been very helpful in finding answers. And in one article (not on this site) said that soy is gluten free. I was excited cuz there is a lot  of soy in most everything it seems. But i also saw an article in "about Health" that says, 

 

Pure soybeans do not have gluten in them, Open Original Shared Link responsible for reactions in Open Original Shared Link andOpen Original Shared Link only occurs in the grains wheat, barley and rye.

But unfortunately, that's not the end of the story for soy and gluten.

Soybeans commonly are grown in rotation with wheat crops. That means the farmers use the same fields to grow soy and wheat, along with the same combines to harvest them, the same storage facilities to keep them and the same trucks to transport them to market. As a result, soy can be subject to Open Original Shared Link — in some cases, lots of gluten cross-contamination.

For example, a 2010 study by celiac dietitian Tricia Thompson on Open Original Shared Link found that soy was one of the worst offenders — in fact, one sample of soy flour contained a whopping 2,925 parts per million of gluten (for comparison, Open Original Shared Link generally is considered "gluten-free," although many people react to even Open Original Shared Link than that). This gluten free living is very confusing. So i guess its back to no soy again.  :(

Jays911 Contributor

Soy sauce caN be an issue. Most has gluten, but gluten free versions are available, and most good sushi joints now carry them.

LauraTX Rising Star

Welcome to the forum, Drifter! :)  This thread is a few years old but it is always a good idea to make sure what we buy is truly gluten-free.  Soy, like anything else, can be CC'd when processed, especially when milled into a flour.  While most processed food containing soy has fairly small amounts of it and won't have much issue from field cc (like soy lecithin, etc), something like a soy flour (or any flour) definitely needs to be verified gluten-free before consumption, as it may be processed in a facility or on equipment with gluten containing grains.  This is why it is a best practice when buying gluten-free grains to get certified gluten-free or from a company that can verify its practices, since those are the most likely whole foods to be contaminated.  Now, whole soy things like edamame are an example of where CC isn't going to be as big of a deal.  But any processed food does need to be checked before we eat it.

Drifter60 Newbie

Welcome to the forum, Drifter!  :)  This thread is a few years old but it is always a good idea to make sure what we buy is truly gluten-free.  Soy, like anything else, can be CC'd when processed, especially when milled into a flour.  While most processed food containing soy has fairly small amounts of it and won't have much issue from field cc (like soy lecithin, etc), something like a soy flour (or any flour) definitely needs to be verified gluten-free before consumption, as it may be processed in a facility or on equipment with gluten containing grains.  This is why it is a best practice when buying gluten-free grains to get certified gluten-free or from a company that can verify its practices, since those are the most likely whole foods to be contaminated.  Now, whole soy things like edamame are an example of where CC isn't going to be as big of a deal.  But any processed food does need to be checked before we eat it.

 

Thank you Laura and this has been very helpful.  :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    2. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    3. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    4. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    5. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.