Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dairy Do Damage?


luvs2eat

Recommended Posts

luvs2eat Collaborator

Gluten damages. But does dairy? It doesn't like me but there are some times when I'm willing to put up w/ the gas, belly noises, and bathroom issues for a good piece of cheese. Am I damaging anything other than my toilet/septic system?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bigbird16 Apprentice

I've heard that there can be. Pubmed may be a good place to look for more info. Here's one article: Open Original Shared Link

Yep, being dairy-free totally sucks worse than being gluten-free, but it hits me harder and faster than gluten. Sometimes I miss cheese so bad. Though it smells gross to me now.

psawyer Proficient

I do not believe that dairy in and of itself causes autoimmune damage. But if you are healing from damage caused by gluten, I can't imagine that it would help the process.

sandsurfgirl Collaborator

I wouldn't think it would do damage, but you never know about inflammation. The villi are damaged so they aren't able to produce lactase enzyme to digest dairy. When the villi heal many can eat dairy again, but not all. It's complicated unfortunately.

If you are newly gluten free, I would say going off dairy would help you heal and hopefully you can eat it again in the future.

saintmaybe Collaborator

The papers that are cited seem to indicate villous flattening in the presence of a lactose intolerance alone, but failed to separate the intestinal damage from the context of celiac disease. Does anyone know if milk intolerance BY ITSELF can cause intestinal damage via an immuno-response? The papers were also 20-30 years old. Any more recent info?

luvs2eat Collaborator

I wouldn't think it would do damage, but you never know about inflammation. The villi are damaged so they aren't able to produce lactase enzyme to digest dairy. When the villi heal many can eat dairy again, but not all. It's complicated unfortunately.

If you are newly gluten free, I would say going off dairy would help you heal and hopefully you can eat it again in the future.

I am SO not newly gluten-free. I've been gluten-free for TEN years. It's only in the last year that dairy doesn't seem to like me anymore. And I completely agree. Going gluten-free was way easier than going DF.

Strawberry-Jam Enthusiast

I tho't that lactose intolerance does not cause permanent damage, whereas a casein intolerance can act just like coeliac. If it is your autoimmune system that is producing antibodies and attacking casein in the same way it does for gluten, then I can totally see how that would be the case.

I don't have anything to back this up, only that I've heard this a couple times.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kwylee Apprentice

This is a great question and I've wondered about this myself. In addition to being gluten intolerant, I am intolerant to milk protein (casein) but not lactose, and I have ALWAYS reacted to dairy with intestinal trouble - even though my gluten reactions were strictly neuro only. With the stomach aches I've had all my life due to dairy, I can't believe it would not be doing me harm in some way to ingest it, although my intestinal villi have always tested as healthy. But if you do a dairy challenge in time and your body tells you something, probably best to listen. In my case, after over a year being gluten-free/DF I challenged a couple months ago with a handful of mozz cheese on a gluten-free pizza. I could usually tolerate that much cheese before and I had no tummy trouble, but I did get a slight weird feeling in my brain for a couple hours, so not sure I'll be going there soon.

Leper Messiah Apprentice

I think this depends on how long you went between it starting (for some very difficult to pinpoint) and beginning a strict gluten free diet.

After a long period my theory is that your GI tract tries to work out what's causing the inflammation itself and wrongly identifies a selection or one (if you're lucky) of the common allergens such as dairy, soy etc etc.

What I'm unclear on is if this is permanent or could be retrained over time.

Lisa Mentor

This is an article from 1996, but I believe and intolerance to cows milk protein can also cause villious atrophy, but it's not common.

https://www.celiac.com/articles/50/1/Main-Causes-of-Flattened-Villi/Page1.html

IrishHeart Veteran

This is an article from 1996, but I believe and intolerance to cows milk protein can also cause villious atrophy, but it's not common.

https://www.celiac.com/articles/50/1/Main-Causes-of-Flattened-Villi/Page1.html

That was an interesting article, even though the source of the info is from 1984.

I knew there were other reasons for villous damage, but from soy and milk proteins? hmm.... I also noticed it said that these cases were rare and more often in conjunction with celiac and if the villi did not heal after a total gluten-free diet, they should look for another reason why. Man, there's always more to learn with this "thing". :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.