Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Else Have Heat Intolerance?(Can't Stand A Shower)


LOWNskater52

Recommended Posts

LOWNskater52 Apprentice

Even with a very very mild shower, I get this uneasy feeling in my chest and I notice all of the blue veins in my hands and arms become more prominent. I have had a complete heart work up and everything is good there. I also have adrenal fatigue that I suspect that I got from gluten intolerance.

Anybody else have this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I don't know if it has anything to do with food intolerances, but I can't stand too much heat. I THINK it all started with the hot flashes I used to get though. :lol:

I have kept my thermostat set at 60 for years now because any warmer than that made me sweat. But it's funny, now that I'm off gluten (and corn, etc.) I seem to get chilly at 60. I find myself nudging it up to 65 sometimes.

As far as the shower, I can't tell. Because of my psoriasis, I try to keep the water lukewarm because psoriasis hurts when it gets into hot water.

pricklypear1971 Community Regular

I had a hard time with heat (and I live in AZ) while still on gluten... but that is better now.

I did have a HORRIBLE time taking a shower after they gave me steroids... I couldn't handle the feeling of the water on my skin and the sound of the water at the same time. My adrenals were over stimulated. I was so whigged out by that I didn't notice if heat bothered me.... Also walked around feeling drunk and couldn't do two things at once - loud noises and a conversation made me nuts. Anything and a loud noise made me nuts...

Tarantula44 Apprentice

Yes! I have heat intolerance too, I have a hard time taking a shower too. I have adrenal issues (low cortisol) and this is a symptom from that I am pretty sure...which is hopefully all coming from gluten. I am new to this whole gluten intolerance thing, still trying to figure things out. I have blood sugar issues and I know when I am getting hot (too much clothing, hot shower, etc) the low blood sugar shaky feelings and anxiety get worse, I also see stars sometimes from heat. I'm thinking (hoping!) this all gets better off gluten. I have only been gluten-free for 3 weeks.

Mikael Newbie

Even with a very very mild shower, I get this uneasy feeling in my chest and I notice all of the blue veins in my hands and arms become more prominent. I have had a complete heart work up and everything is good there. I also have adrenal fatigue that I suspect that I got from gluten intolerance.

Anybody else have this?

The vein thing, I get that as well. Kinda freaks me out. Funny thing is, my new doctor suggested I may have Raynaud's Disease/Phenomenon, which, as far as I can tell, is an intolerance to cold. I did try cold showers, but they just cause me to shiver incessantly, basically rendering me unable to move. So, I'm doing lukewarm showers these days. Like you, the issue still occurs even in a mild shower, but not as badly as it did when I was still taking hot showers. Any shower-related unease has been minimized since eliminating hot showers. There were times when I would get nauseous to the point of nearly passing out, but I was probably taking showers that were way too hot. Just couldn't help myself.

burdee Enthusiast

Even with a very very mild shower, I get this uneasy feeling in my chest and I notice all of the blue veins in my hands and arms become more prominent. I have had a complete heart work up and everything is good there. I also have adrenal fatigue that I suspect that I got from gluten intolerance.

Anybody else have this?

I had just the opposite (low core body temperature) for years. I froze all the time. Eventually a naturopath gave me a complete panel of thyroid hormone tests and found I had Hashimoto's hypothyrodism. Hashimoto's is highlly correlated with gluten intolerance (I've been diagnosed with celiac disease). Hyperthyroidism can cause the opposite symptoms (feeling overheated all the time). So I wonder whether your doc has given you a complete thyroid panel of tests (TSH, free t3, free t4, TPOab (thyroid antibodies))?

  • 3 weeks later...
cassP Contributor

i second Burdee above... have u had a complete thyroid checkup???

and actually- u can also have heat intolerance with Hashimoto's hypothyroid alone. not everyone gets cold... or feels cold. maybe that's because hypothyroid can exhaust the adrenals... or maybe its because some of us with hashimotos dont sweat like normal people so then we just feel hot and suffocated...

make sure you get all those tests above- and cross all your ts- get checked for both Hashi and graves, as you can have both (which i do). im very intolerant to heat...

**i DO also have to add- that when i went gluten free (even before my thyroid dx & meds)- i became less hot, and didnt have to put my ac down so much... gluten DEFINITELY can make u feel more intolerant to heat...

but i never felt intolerant in the shower... i like really hot showers and baths, but then get real lightheaded... it's the hot humid air that i cannot take at all.... and even tho i like hot water- when im just out and about during the day- i do NOTTTTTTTT like to wash my hands in hot water EVER!!!!! everytime i go to wash my hands and the previous customer used hot water- it sends a jolt of adrenaline thru me, i hate it... ALWAYS like to wash my hands with cold water.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748

    ashleyturner3696
    Newest Member
    ashleyturner3696
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.