Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Detective

notkuroda

By notkuroda
in Coping with Celiac Disease

Recommended Posts

notkuroda Apprentice
notkuroda
Posted

Hi there.

My wife has been gluten free for over 2 years now. Over the past week she has been getting contaminated by something, and we can't figure out what. She has DH, she's been having digestive problems, and is particularly tired and run down. We can't figure out what's getting her. She's stopped wearing makeup. She did start a progesterone cream over a week ago, and it's made by GNC and not "guaranteed" to be gluten free, even though it's manufactured to be so. She's stopped taking it just in case, but we kind of figure that's not it since she washed her hands after every application and she can't absorb it through the skin. My home is completely gluten free. We're at our wits end. Please help! If this keeps up I have some serious fears for her health.

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

are you doing any construction/remodeling? how about seasonal decorations? cookbooks from pre-gluten-free? grandma's cookie recipe?

notkuroda Apprentice
notkuroda
Posted
  • Author

are you doing any construction/remodeling? how about seasonal decorations? cookbooks from pre-gluten-free? grandma's cookie recipe?

we did put up the xmas decorations a week ago, but she hasn't eaten anything from pre gluten-free

mamaw Community Regular
mamaw
Posted

Does the cream contain a soy base? Any new pet foods?... sometimes we react to other things.. You didn't sayif the DH was acting up..

ciamarie Rookie
ciamarie
Posted

If she could absorb the progesterone through the skin, why not any possible gluten ingredients? Especially if she has DH, then I'd suspect that might be the issue. I know 'they' say that the gluten molecule or whatever it is, is too large to pass through the skin to cause problems, but we know 'they' aren't always right. It may be there are exceptions that haven't been accounted for in their calculations?

Otherwise, are there any new supplements, she's been taking? It might just be a new bottle of something she's taken before, but perhaps the new bottle has a new formula that used to be safe and now it's not? Or the same principle with food items?

notkuroda Apprentice
notkuroda
Posted
  • Author

My first suspicion was the cream too. She's stopped using it for a few days now, no real improvement. I do understand that the lingering effects can take a few days so she's totally off it(although she wishes she could find one that is certified gluten free). The DH has definitely flared up, usually she just gets a few bumps behind her ear or on her back, this time it's a major rash on her chest(which we haven't seen since pre-diagnosis)

I can't tell if it has a soy base but it doesn't say so in the ingredients. Pet food's been the same

mamaw Community Regular
mamaw
Posted

This may be a mystery ...anything even the slightest change that something came in to your home. Like a sample of soap , a new aftershave,candy, processed deli meats just look & think what recently maybe got it... recheck labels..

I suggest staying away from the cream since was purchased at a GNC I'm guessinig this wasn't prescribed by a doctor... It could be that she doesn't need it.. things like that can throw the body into havoc...

Also has there been any major issues in her life, death, accident of a loved one,& so on...

It could also be an allergy to a common food.. For instance I can eat a food but when I combine it with another food I react...But if I eat it alone no problems...

Sorry, can't think of anything else at present...

hope you feeel better soon..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

If she could absorb the progesterone through the skin, why not any possible gluten ingredients? Especially if she has DH, then I'd suspect that might be the issue. I know 'they' say that the gluten molecule or whatever it is, is too large to pass through the skin to cause problems, but we know 'they' aren't always right. It may be there are exceptions that haven't been accounted for in their calculations?

Otherwise, are there any new supplements, she's been taking? It might just be a new bottle of something she's taken before, but perhaps the new bottle has a new formula that used to be safe and now it's not? Or the same principle with food items?

It is correct that you cannot absorb gluten through the skin...doctors have that correct BUT a progesterone cream is formulated to BE absorbed through the skin. It might be something in the cream that is aggravating

her...especially since people with DH have additional skin sensitivities.

pricklypear1971 Community Regular
pricklypear1971
Posted

Is she eating a lot of iodine? Google "thyca" for a list of high iodone foods. Iodine can make DH flare.

Some people feel sick when DH breaks out, others not. It could be just the DH or some gluten sneaking in, or she could have developed a new food intolerance.

Double-check everything - just because a food has been safe doesn't mean it continues. Food companies do change formulations/processes.

I use Emerita progesterone cream and don't think I have a problem with it...But everyone is different.

Also, many people take a week or so to get over a glutening...

I hope she feels better soon.

notkuroda Apprentice
notkuroda
Posted
  • Author

thank you for all the feedback. She's pretty much eliminating everything and going to raw food then slowly adding things back in. we have been told that Celiac patients can develop sensitivities to many different things. Maybe this way we can figure out if that's the case. Such a frustrating disease, you change your whole life to take one thing out of your life, and then can fine that the same disease makes you more vunerable to other types of contamination.

Leper Messiah Apprentice
Leper Messiah
Posted

Yes I think this was the problem for me notkuroda, a lot of sensitivies to other foods, namely corn, soy, dairy, nightshades. As you can imagine this limits my food options considerably.

The good thing is that once I eliminated them all, I felt better within 1-3 days as opposed to 2 weeks with gluten.

Best of luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748
    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.