Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Has Anyone Had These Symptoms?


AndreaMarie

Recommended Posts

AndreaMarie Newbie

I'm hoping someone can help, I feel so sick and nothing seems to make it better.

Some of these symptoms I have had before but for the past month and a half it's increased, now it's daily. It all seemed to get worse after taking predisone and augmentum for a sinus infection, and stuffy ears... Which I've suffered from since high school. I had taken both in combination before but this time I had an allergic reaction to augmentum which included 6 days of diarhea. Then they put me on biactin. My stomach has been increasingly worse since and for the past 2 going on 3 weeks every single time I eat I get sick. Here are my symptoms:

Nauseau

Vomiting frothy white foam

Feeling like I have an air bubble stuck in my esophagus

Shooting pain in my back as soon as I eat, which stays for hours and is extremely painful. Usually in mid back, or between shoulder blades. Also ache in lower back, feels like my muscles are trying to suffocate me. Sometimes this also happens in my stomach muscles and it feels like I am being sat on. Hurts to breath and can't take deep breaths

Severe migraine like headaches as soon as I eat, it's like I can feel the pain go up my spine to my head. Nothing relieves the headaches. They are gone in the morning but as soon as I eat the return.

Pain in my stomach like cramping or burning and pressure, it's hard to tell but very uncomfortable. Radiates through to my lower abdomen. Feels like toxins are filling my entire abdominal cavity. It feels like pressure but my stomach does not look swollen.

I've lost 12 lbs in 3 weeks, I just look boney

The pain in my stomach slowly morphs into the kind of pain you get when you get really really hungry as if I haven't eaten in a week and my stomach feels like it's eating itself.

It makes me want to gorge so that pain stops but then when I eat I get a different pain.

I also often feel dizzy, shaky. And my limbs feel heavy and weak. I've lost strength


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaMarie Newbie

my bm are also unpredictable I'll go days without any than have diarhea, or have days when it's relatively normal but has mucus in it, or days when it seems pale. My abdomen is sensitive to touch too.

I went to the er last week on Tuesday. They told me I had a uti/kidney infection, though I had no obvious symptoms, they just saw the bacteria in my urine. I They put me on cipro. 2 days later the pain had only gotten worse. Went back to er. They had no clue. Said blood work was normal and only remnants of infection left. Suggested I see a GI.

The GI said they didn't have any opening till Jan but asked me my symptoms then fit me on for tomorrow. I'm scared I dont know what's wrong with me. My stomach seems to react the same no matter how mild the food is I put in it. I'm cranky and irritable and weak and frustrated.

It seems weird to have all this medical stuff go on t once. I asked an er doc if it could be all related bit he said no way. I feel like it has to be. I've never even had a uti before and now with all this I get one. Everything I eat I literally feel like I am poisoning my whole body. Can celiac do all this to you? Could that be the connection w all of this?

Booghead Contributor

Yea it could all be connected. Good Luck at the Dr. B)

mushroom Proficient

Make sure that he runs a celiac blood panel on you!

Roda Rising Star

Definately ask for the blood tests for celiac. You probably would benefit from a good probiotic to replace the good bacteria that the antibiotics killed off.

AndreaMarie Newbie

I just had my visit with the GI. I went through all my symptoms with the first doctor. Then another doctor came in and was like well most likely you have IBS because it's very common in women your age (29) and since I've had these symptoms all my life. I reminded him, though I did often vomit as a child, these symptoms have def had an acute onset (since antibiotics 6 wks ago) and have progressively gotten worse. And he said well IbS is the only thing that can cause both constipation and diarhea. I said would that also explain the headaches, knife stabbing pain on btw my shoulder blades that comes on directly after eating? He said well everyone has different symptoms. I reminded him I also had a uti/ kidney infection last week. He said probably just a coincidence. I felt like he was only focusing on the abdominal symptoms, age, and gender. And not really looking at the whole thing. I asked about gall stones he told me I was top young. I know this is not just IBS I feel like I'm poisoning myself everytime I eat. I feel like there are toxins spreading throughput my abdomen , and every skeletal muscle in my body. I don't feel like I'm being take seriously. Regardless they are running a celiac panel, thyroid screening, and h pylori. And I have an endoscopy next wk. Ibs just doesn't seem to fit all my symptoms, does ibs come on suddenly and make your whole body hurt even when you just eat something as simple as plain whole wheat bread?

Also I'm really worried about a lump that is very painful on the back outer side of my lower leg bone about two inches below tge knee. I rubbed it a little yesterday trying to feel how big it was, it was very painful to touch and now it really really hurts to walk. I did mention this to the GI just in case it might be related, but he was like Um let's focus on ur stomach. Has anyone had anything like this?

Celtic Queen Explorer
I felt like he was only focusing on the abdominal symptoms, age, and gender. And not really looking at the whole thing.

This is one thing I hate about American convential medicine. This need to focus on one thing and not take the entire body into account. I think this is also one of the reasons why Celiac and Gluten Intolerance are so hard to diagnose. They affect more than just one part of the body.

And he said well IbS is the only thing that can cause both constipation and diarhea

Well, I can tell you from my personal experience that Celiac can cause both.

I know this is not just IBS I feel like I'm poisoning myself everytime I eat. I feel like there are toxins spreading throughput my abdomen , and every skeletal muscle in my body.

Trust your instincts. You know your body better than any doctor. Unfortunately, since you're having your endo next week, you'll need to stay on gluten until that's done so you don't mess up your test results. After that, try the diet and see if it helps. After all, what do you have to lose. All you have to do is change your food for a little bit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hurray for you, for sticking to your guns and getting the testing ordered. Major achievement :) No, I'm pretty sure it's not IBS ;)

AndreaMarie Newbie

One last thing, the GI put me on amitriptyline for the "IBS" , it's an antidepressant I guess but I guess used to treat ibs, he put me on 10mg. I reminded him I take 15mg daily of lexapro for anxiety and if I should worry about a drug interaction. He said no. But I looked it up on line and it said major drug interactions, and can cause serotonin syndrome. Any thoughts? I'm really not rusting thus guy!!!

mushroom Proficient

One last thing, the GI put me on amitriptyline for the "IBS" , it's an antidepressant I guess but I guess used to treat ibs, he put me on 10mg. I reminded him I take 15mg daily of lexapro for anxiety and if I should worry about a drug interaction. He said no. But I looked it up on line and it said major drug interactions, and can cause serotonin syndrome. Any thoughts? I'm really not rusting thus guy!!!

Again, good for you for looking it up. It is a good idea, too, to get all your prescriptions filled at the same pharmacy - that way the pharmacy can check for drug interactions too. I think I might be inclined to wait for my results and take them some place else, if he wouldn't even check for drug interactions when you raised the subject.

unknown Apprentice

I asked about gall stones he told me I was top young.

You are NOT too young for gallstones. I had my gallbladder removed in June (28 years old at the time) and had 20 gallstones. You could have gallstones and your doctor should have sent you to get an ultrasound. My GI said that no doctor is supposed to diagnose IBS until everything else is ruled out. He immediately sent me to get the ultrasound, put me on heartburn meds to see if the pain went away and set up an upper endoscope (that was canceled since I was getting surgery) before he'd say it's IBS. I must admit that he did say that it probably was IBS and he didn't think it was gallstones or anything else, but the tests are what prove things, not a doctor's thoughts. It was gallstones. I seriously can't stand doctors like this. It's so frustrating!

Good luck and I hope you find a new doctor that actually knows what he or she is talking about and doesn't just go by his or her feelings.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.