Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Report

RVluvin

By RVluvin
in Coping with Celiac Disease

Recommended Posts

RVluvin Apprentice
RVluvin
Posted

Went to the follow up visit today since my biopsy was done. Maybe an advanced member will understand it more than what I can make from it:

Diagnosis: Features suggestive of celiac disease, Marsh Type IIIB.

Microscopic description: The sections through the duodenal biopsy show fragments of ducdenal mucosa with marked villous atrophy. There is crypt hyperplasia and an intraepitheial lymphocytosis that measures greater then 40 intraepithelial lymphocytes per 100 enterocytes. The lamina propria contains an increase in the number of mononuclear cells, particularly lymphocytes and plasma cells. There is no evidence of neoplasia associated with these changes. There is no evidence of peptic duodenitis or microorganisms.

Doctor wants to do an other biopsy in 6 months. I'm not so sure I'll go along with that. What do you think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Booghead Contributor
Booghead
Posted

The sections through the duodenal biopsy show fragments of ducdenal mucosa with marked villous atrophy. I believe this means you have blunting of the villi. Congrats sounds like you have Celiacs! Go off gluten. I think the second biopsy is to prove that your celiacs has started to heal. I read bout how they used to diagnose celiacs: positive biopsy on gluten, negative biospy off gluten(6 months later), reintroduce gluten and have another positive biopsy 6 months later. Sounds like your doctors are either old school or I am misunderstanding what they want to do.

If you are out of high school and out of college you don't need a diagnosis. If you already have one then you don't need one.

Either way go off gluten and if you feel better stay off gluten. Might need to go off dairy for a while to. (I am currently struggling with this one).

If you trust your doctors then do it. The biopsys aren't too bad (though I was in pain the next day after mine). The cost is what hurts.

Your decision. This is just my knowledge. B) Good Luck

RVluvin Apprentice
RVluvin
Posted
  • Author

My biopsy was 2 mo ago, I just now got around to doing the follow up. I've been both gluten and latoce free since the day after the biopsy. Doctor wants to do another biopsy to see a healed small intestine. I think he wants another $185 from me and what ever the insurance give him.

I was hoping all that jipperish ment more than I have the celiac disease.

Booghead Contributor
Booghead
Posted

Celiacs isn't simple or small. It's not just celaics. Don't do that negative thinking to yourself, what do want? Stomach Cancer? :ph34r: I only know the top part of the report you posted. Whatever else is on there I have no clue.

mushroom Proficient
mushroom
Posted

You don't have cancer, you don't have a duodenal ulcer, you don't have an overgrowth of bad microorganisms. (My best interpretation :) )

rosetapper23 Explorer
rosetapper23
Posted

Looks like you have bonafide celiac. With regard to the future biopsy, personally I would take a pass on that. No reason...unless you're not feeling any better or are feeling worse. If you're feeling pretty good, then I see no reason for repeating the biopsy. Case closed.

Di2011 Enthusiast
Di2011
Posted

Diagnosis: Features suggestive of celiac disease, Marsh Type IIIB.

Microscopic description: marked villous atrophy.

There is crypt hyperplasia and an intraepitheial lymphocytosis that measures greater then 40 intraepithelial lymphocytes per 100 enterocytes. The lamina propria contains an increase in the number of mononuclear cells, particularly lymphocytes and plasma cells. There is no evidence of neoplasia associated with these changes. There is no evidence of peptic duodenitis or microorganisms.

Open Original Shared Link

Try having a read through these. It might help you make sense of the lingo.

I'm no guru ((someone please confirm or advise?)) but it seems to me that "marked villious atrophy" doesn't mean nil or mild villious atrophy ie you have "marked" damage to your villi therefore you have Celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I think the doctor wants to do the follow-up biopsy for his own curiosity (and enrichment). It is up to you whether you want to pay $185 to satisfy it. If you heal when off gluten, you KNOW what your problem is. You don't really need him to see for himself. Your report says that you have celiac disease, and that there is nothing else going on in there that is detectable by the biopsy. :)

psawyer Proficient
psawyer
Posted

Your results indicate Marsh IIIB. The Marsh scale measures the degree of damage to the villi. It ranges from I (minimal damage) to IV (total destruction). You have (or had) severe damage to your villi. The probable cause is celiac disease.

RVluvin Apprentice
RVluvin
Posted
  • Author

I thought that maybe there was an explaination to what degree of damage I had incured, or various degrees of celiacs. By the 3rd day of being gluten free, I knew this was the cure I had been searching for most of my life.

I'm glad to see that others agree with me that a second biopsy in 6 mo was in his best interest, not mine. Thanks!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,777
    • Most Online (within 30 mins)
      7,748
    Sandra Carter
    Newest Member
    Sandra Carter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.