Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Report

RVluvin

By RVluvin
in Coping with Celiac Disease

Recommended Posts

RVluvin Apprentice
RVluvin
Posted

Went to the follow up visit today since my biopsy was done. Maybe an advanced member will understand it more than what I can make from it:

Diagnosis: Features suggestive of celiac disease, Marsh Type IIIB.

Microscopic description: The sections through the duodenal biopsy show fragments of ducdenal mucosa with marked villous atrophy. There is crypt hyperplasia and an intraepitheial lymphocytosis that measures greater then 40 intraepithelial lymphocytes per 100 enterocytes. The lamina propria contains an increase in the number of mononuclear cells, particularly lymphocytes and plasma cells. There is no evidence of neoplasia associated with these changes. There is no evidence of peptic duodenitis or microorganisms.

Doctor wants to do an other biopsy in 6 months. I'm not so sure I'll go along with that. What do you think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Booghead Contributor
Booghead
Posted

The sections through the duodenal biopsy show fragments of ducdenal mucosa with marked villous atrophy. I believe this means you have blunting of the villi. Congrats sounds like you have Celiacs! Go off gluten. I think the second biopsy is to prove that your celiacs has started to heal. I read bout how they used to diagnose celiacs: positive biopsy on gluten, negative biospy off gluten(6 months later), reintroduce gluten and have another positive biopsy 6 months later. Sounds like your doctors are either old school or I am misunderstanding what they want to do.

If you are out of high school and out of college you don't need a diagnosis. If you already have one then you don't need one.

Either way go off gluten and if you feel better stay off gluten. Might need to go off dairy for a while to. (I am currently struggling with this one).

If you trust your doctors then do it. The biopsys aren't too bad (though I was in pain the next day after mine). The cost is what hurts.

Your decision. This is just my knowledge. B) Good Luck

RVluvin Apprentice
RVluvin
Posted
  • Author

My biopsy was 2 mo ago, I just now got around to doing the follow up. I've been both gluten and latoce free since the day after the biopsy. Doctor wants to do another biopsy to see a healed small intestine. I think he wants another $185 from me and what ever the insurance give him.

I was hoping all that jipperish ment more than I have the celiac disease.

Booghead Contributor
Booghead
Posted

Celiacs isn't simple or small. It's not just celaics. Don't do that negative thinking to yourself, what do want? Stomach Cancer? :ph34r: I only know the top part of the report you posted. Whatever else is on there I have no clue.

mushroom Proficient
mushroom
Posted

You don't have cancer, you don't have a duodenal ulcer, you don't have an overgrowth of bad microorganisms. (My best interpretation :) )

rosetapper23 Explorer
rosetapper23
Posted

Looks like you have bonafide celiac. With regard to the future biopsy, personally I would take a pass on that. No reason...unless you're not feeling any better or are feeling worse. If you're feeling pretty good, then I see no reason for repeating the biopsy. Case closed.

Di2011 Enthusiast
Di2011
Posted

Diagnosis: Features suggestive of celiac disease, Marsh Type IIIB.

Microscopic description: marked villous atrophy.

There is crypt hyperplasia and an intraepitheial lymphocytosis that measures greater then 40 intraepithelial lymphocytes per 100 enterocytes. The lamina propria contains an increase in the number of mononuclear cells, particularly lymphocytes and plasma cells. There is no evidence of neoplasia associated with these changes. There is no evidence of peptic duodenitis or microorganisms.

Open Original Shared Link

Try having a read through these. It might help you make sense of the lingo.

I'm no guru ((someone please confirm or advise?)) but it seems to me that "marked villious atrophy" doesn't mean nil or mild villious atrophy ie you have "marked" damage to your villi therefore you have Celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I think the doctor wants to do the follow-up biopsy for his own curiosity (and enrichment). It is up to you whether you want to pay $185 to satisfy it. If you heal when off gluten, you KNOW what your problem is. You don't really need him to see for himself. Your report says that you have celiac disease, and that there is nothing else going on in there that is detectable by the biopsy. :)

psawyer Proficient
psawyer
Posted

Your results indicate Marsh IIIB. The Marsh scale measures the degree of damage to the villi. It ranges from I (minimal damage) to IV (total destruction). You have (or had) severe damage to your villi. The probable cause is celiac disease.

RVluvin Apprentice
RVluvin
Posted
  • Author

I thought that maybe there was an explaination to what degree of damage I had incured, or various degrees of celiacs. By the 3rd day of being gluten free, I knew this was the cure I had been searching for most of my life.

I'm glad to see that others agree with me that a second biopsy in 6 mo was in his best interest, not mine. Thanks!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,597
    • Most Online (within 30 mins)
      7,748
    JosiePosey
    Newest Member
    JosiePosey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.