Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free For 10 Days, Good But Then Bad Day


researchmomma

Recommended Posts

researchmomma Contributor

My daughter went gluten-free 10 days ago. We did great but then she had a meal last night that wasn't whole foods which we have been trying to stick to. We went out to Pei Wei and she had the gluten free meal. My friend with a child that has Celiac goes there with no problems and he is super sensitive to gluten so we think that was not the culprit. I am not sure her rxn was gluten related but more just a "down' day in the ups and downs of going gluten-free?

Any thoughts? She ate 3 bites of PeiWeis gluten-free shrimp dish and said it made her stomach hurt and she was miserable all night.

Have your kids had slumps in the first few weeks?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

My daughter went gluten-free 10 days ago. We did great but then she had a meal last night that wasn't whole foods which we have been trying to stick to. We went out to Pei Wei and she had the gluten free meal. My friend with a child that has Celiac goes there with no problems and he is super sensitive to gluten so we think that was not the culprit. I am not sure her rxn was gluten related but more just a "down' day in the ups and downs of going gluten-free?

Any thoughts? She ate 3 bites of PeiWeis gluten-free shrimp dish and said it made her stomach hurt and she was miserable all night.

Have your kids had slumps in the first few weeks?

Thanks!

Ten days is so new to the gluten-free diet that anyone could have a reaction from eating something richer or just eating out that has absolutely nothing to do with a gluten hit. It may seem that a person is healing well after only 10 days but it takes a longish amount of time for the gut to heal. Be patient, but don't necessarily hold back and just give your daughter a whole foods diet unless she is OK with that. I ate certified gluten-free bread right away and did fine. As long as you choose certified stuff in the beginning, she should be alright, unless she has another food intolerance or allergy. She may have ingested some gluten but you just don't know as she is so new to the diet. This is normal for starters so keep track of things but don't get overly worried.

researchmomma Contributor

Ten days is so new to the gluten-free diet that anyone could have a reaction from eating something richer or just eating out that has absolutely nothing to do with a gluten hit. It may seem that a person is healing well after only 10 days but it takes a longish amount of time for the gut to heal. Be patient, but don't necessarily hold back and just give your daughter a whole foods diet unless she is OK with that. I ate certified gluten-free bread right away and did fine. As long as you choose certified stuff in the beginning, she should be alright, unless she has another food intolerance or allergy. She may have ingested some gluten but you just don't know as she is so new to the diet. This is normal for starters so keep track of things but don't get overly worried.

Thank you! Meal times are absolutely painful. I feel like we are on eggshells.

IrishHeart Veteran

Thank you! Meal times are absolutely painful. I feel like we are on eggshells.

C'mon now, Momma...what have we discussed so much the past 10 days?? :)

That's right. It's a steady, slow road.

Listen to my friend GEMINI here--she speaks the truth. She was/is my mentor from day 1--when I had symptoms galore and still felt wonky after MONTHS. She told me be patient.

Does J always eat shirmp, hon? Could have been spicy, could have been MSG, blah blah blah. Eating out can be tricky and one celiac's experience is not the same as another. I mean, I am uber-careful & I got whacked from CC last week. :rolleyes: It happens.

This is a glitch, nothing more.

You know, we all still get wonky tums--and it is not from gluten.

Don't get all scared on me now, kiddo--you're a trooper and you're an amazing MOM. PM me if you need me.

researchmomma Contributor

C'mon now, Momma...what have we discussed so much the past 10 days?? :)

That's right. It's a steady, slow road.

Listen to my friend GEMINI here--she speaks the truth. She was/is my mentor from day 1--when I had symptoms galore and still felt wonky after MONTHS. She told me be patient.

Does J always eat shirmp, hon? Could have been spicy, could have been MSG, blah blah blah. Eating out can be tricky and one celiac's experience is not the same as another. I mean, I am uber-careful & I got whacked from CC last week. :rolleyes: It happens.

This is a glitch, nothing more.

You know, we all still get wonky tums--and it is not from gluten.

Don't get all scared on me now, kiddo--you're a trooper and you're an amazing MOM. PM me if you need me.

lol! I know you are right.

My dog had surgery about 4 days before we went gluten free. He has been wearing that damn cone so he can't get through his doggy door and I am up every night at least twice to let him out. I haven't had a good nights sleep in 2 weeks. I am averaging about 4 hours per night and trying to work and get my kid healthy. Then to top it off my son got the stomach flu this week.

I am going to chalk up my emotions this week to lack of sleep. I am truly exhausted.

Oh! and J had been with my mom who gave her five candy canes and let her have two hot chocolates all in one day. Then we went to Pei Wei when I picked her up and that gluten-free meal turned out to be sweet. I think she was sugar loaded. Your post to me on the other thread said to avoid sugar. Well that didn't happen! We talked about it last night. You will laugh. I told her that a friend on the celiac forum said to avoid sugar while we making the transition. She said "what's your friend's name?". She thought I was making it up. Too funny.

She is on culturelle as well. Hopefully she starts seeing some improvement.

I am impressed by her friends and their willingness to help her. When she is over at their houses, they read ingredients and look online to see if items are gluten-free. If they can't find the info, they text me. Nice eh?

Back to whole foods and no eating out if it can be helped until I get the girl healthy.

I think my mind started playing the "maybe it isn't gluten trick". She hadn't had that reaction since we took her off and it was a bad one.

Thank you, thank you for all of the help.

IrishHeart Veteran

Then to top it off my son got the stomach flu this week.

Oh! and J had been with my mom who gave her five candy canes and let her have two hot chocolates all in one day. Then we went to Pei Wei when I picked her up and that gluten-free meal turned out to be sweet.

I am impressed by her friends and their willingness to help her. When she is over at their houses, they read ingredients and look online to see if items are gluten-free. If they can't find the info, they text me. Nice eh?

Well, see the more you tell us, the more we can speculate on what the heck happened!

J. could have some flu symptoms.

um, 5 candy canes and hot chocolate? and were they all gluten free?? (yes, those can have gluten in them)

Too much sugar can give ANY of us a stomach ache. Our guts are not equipped to digest that much at once. You should see me after a few chocolate chip cookies.... :blink: agitated and racy.

Friends are VERY nice to check labels for her :) and thank God they text you....watch for too much MSG and hidden gluten. It may be best to equip J. with a tote bag of safe snacks. (fruits, nuts, chips, cookies, candy--- if she wants)

You see, it's not about being "paranoid" about it ...but it is true that the more food you put in the mix, the less control factor you have to watch the effects on her and then, it is so easy for hubs or her to say, "see she feels crappy, so it's not gluten exclusion!!" because that may just not be true.

Sorry about the dog (hate those cones--we always said our Gracie looked like she was wearing a lampshade and I called her "the life of the party" :lol: )

and yes, all that stress is hard on you. This is why I said Take care of Momma, too! ;)

researchmomma Contributor

Well, see the more you tell us, the more we can speculate on what the heck happened!

J. could have some flu symptoms.

um, 5 candy canes and hot chocolate? and were they all gluten free?? (yes, those can have gluten in them)

Too much sugar can give ANY of us a stomach ache. Our guts are not equipped to digest that much at once. You should see me after a few chocolate chip cookies.... :blink: agitated and racy.

Friends are VERY nice to check labels for her :) and thank God they text you....watch for too much MSG and hidden gluten. It may be best to equip J. with a tote bag of safe snacks. (fruits, nuts, chips, cookies, candy--- if she wants)

You see, it's not about being "paranoid" about it ...but it is true that the more food you put in the mix, the less control factor you have to watch the effects on her and then, it is so easy for hubs or her to say, "see she feels crappy, so it's not gluten exclusion!!" because that may just not be true.

Sorry about the dog (hate those cones--we always said our Gracie looked like she was wearing a lampshade and I called her "the life of the party" :lol: )

and yes, all that stress is hard on you. This is why I said Take care of Momma, too! ;)

Life of the party! Exactly. He is bumping into walls with it and my legs....he is so tired of it! Me too! :P

Grandma did well with the gluten-free thing. My Mom is a super healthy eater and she had Jordan on a whole food diet for the two days she was there. She took bought gluten-free pasta and they had meats and veggies. However, I think she went a litte nuts on the candy! The candy canes were Bobs and the hot chocolate Nestle gluten free. So that was good. I don't think she was glutened. It think she was sugared up and beyond. Add to that the sprite with dinner. Holy Smokes!

I like the idea of a "snack bag" at her friends. The mom's of her to besties are on board and have been asking me what they can give her. So maybe I will make up a Jordan snack bag for each household.

After Christmas, I plan to chill out for a bit. I can't wait.

Wine and a bath will be calling my name!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Life of the party! Exactly. He is bumping into walls with it and my legs....he is so tired of it! Me too! :P

Grandma did well with the gluten-free thing. My Mom is a super healthy eater and she had Jordan on a whole food diet for the two days she was there. She took bought gluten-free pasta and they had meats and veggies. However, I think she went a litte nuts on the candy! The candy canes were Bobs and the hot chocolate Nestle gluten free. So that was good. I don't think she was glutened. It think she was sugared up and beyond. Add to that the sprite with dinner. Holy Smokes!

I like the idea of a "snack bag" at her friends. The mom's of her to besties are on board and have been asking me what they can give her. So maybe I will make up a Jordan snack bag for each household.

After Christmas, I plan to chill out for a bit. I can't wait.

Wine and a bath will be calling my name!

Sugar can do it, plus you said ....there's the flu in your house.

Anything can make for a wonky tum. I have one now and I haven't had gluten or sugar. :blink: I confess, I ate an outrageous mac and cheese at the gluten-free cafe near me and frankly, I was a pig about it:)

Glad you like the snack bag idea!!!. And you can provide enough for her besties, too--chips, goodies--no need to make them "only J's"--that way J will not feel isolated. :)

Glad you agree--time for Mommy. Bath, then wine,but not IN the tub---you could fall asleep and drown in there and I'd feel really bad... :lol:

((hugs)) you've had a rough 2 weeks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,974
    • Most Online (within 30 mins)
      7,748

    LRB
    Newest Member
    LRB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.