Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upper Abdominal Pain - Under Ribcage

pondy

By pondy
in Coping with Celiac Disease

Recommended Posts

pondy Contributor
pondy
Posted

Hi Everyone,

A while back I posted about Upper GI/Ribcage Pain.

Just wanted to update that I had a follow-up Endoscopy (after 9 months gluten free) & the results are in.

It's the H. Pylori bacteria. :huh: Lo & behold, common to this infection is burning/gnawing upper abdominal pain - lots of times under/behind the left ribcage area. In other words, exactly what I've had.

G.I Doc said that my little villi are growing back, so the gluten free diet is working! There is hope! :D

Now I'm on Clarithromycin, Amoxcillin & Prilosec for treatment. Also, still taking the Culturelle probiotic & staying dairy free. I'm 3 days in & I do believe it's starting to work.

For those of you suffering from that crazy under-the-ribs pain, it might not be a bad idea to get tested for H. Pylori. I've read that it's very common.

All best to everyone. Happy New Year, by the way!

Pondy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TTNOGluten Explorer
TTNOGluten
Posted

Pondy

glad to hear everything is headed in the right direction, hopefully the tx for the H. Pylori gives you some relief, I am now 2 1/2 weeks out from gallbladder surgery, wish I could say the same, the ribcage pain continues as well as into my back, with no improvement, but what can you do. going for 2nd opinion next week with new gastro, hope he has some magic up his sleeve or is at least able to think outside the box, unlike the last one who basically told me that folks with celiac disease usually don't have much in the way of pain. I guess he has never had it to know, as that is by far and away my biggest symptom. I wish the best for you and the H.pylori quick eradication

IrishHeart Veteran
IrishHeart
Posted

Oh, Thank Goodness you found out!! :)

I am so sorry that in all the things I suggested, I never thought to suggest h. pylori to you (my Dad had that and I asked to be tested for it myself when I had this upper rib cage pain--but I was negative)

but I am so glad you took our advice to keep pressing for follow up testing!!

You kept saying you knew it had to be more than just CC issues--and you were right! I was so hoping the follow up care/consult would give you an answer.

(After all those ANTIbiotics you will definitely need the PRObiotics.)

I do hope you recover quickly.

Happy New Year, hon!!!

pondy Contributor
pondy
Posted
  • Author

TTNOGluten,

I forgot if you answered this already, but are you consuming dairy? My pain began to get better after I cut out all dairy products. I also noticed a correlation between major C and upper GI pain. Have you been checked for a kidney infection? Perhaps some other kind of gut infection/bacterial overgrowth?? I'm just grasping at staws here...

I'm very sorry that having your gallbladder removed didn't put an end to your ongoing pain. I know it's terrible not knowing what the hell is going on!

I don't know if having Celiac generally slows healing processes, but it took my body two full months to recover from an easy breezy knee arthrosopy! I felt like a 90 year old in a 41 year old body. I did eventually heal though - as you will. I know you're hurting, but try & think positively. Yeah, easier said than done - but as my new

GI said, where the mind goes the body tends to follow.

Hang in there! Thanks for your response!

Pondy

pondy Contributor
pondy
Posted
  • Author

Oh, Thank Goodness you found out!! :)

I am so sorry that in all the things I suggested, I never thought to suggest h. pylori to you (my Dad had that and I asked to be tested for it myself when I had this upper rib cage pain--but I was negative)

but I am so glad you took our advice to keep pressing for follow up testing!!

You kept saying you knew it had to be more than just CC issues--and you were right! I was so hoping the follow up care/consult would give you an answer.

(After all those ANTIbiotics you will definitely need the PRObiotics.)

I do hope you recover quickly.

Happy New Year, hon!!!

IR,

Oh yes, you are so right about the probiotics! The GI has me on a double dose while I'm taking all these antibiotics.

By the way, everything you suggested has been more than helpful! Especially during the time when I had my old GI who dismissed me completely! You've been a superb source of knowledge for me. So, thanks!

:)

IrishHeart Veteran
IrishHeart
Posted

IR,

Oh yes, you are so right about the probiotics! The GI has me on a double dose while I'm taking all these antibiotics.

By the way, everything you suggested has been more than helpful! Especially during the time when I had my old GI who dismissed me completely! You've been a superb source of knowledge for me. So, thanks!

:)

You're welcome. I am just sooooooo glad you found the culprit and that now you can heal up and get on with it. yaaay!!! Be well, hon!! ;)

jeanniek Newbie
jeanniek
Posted

I had stomach pain and gas for years after I went gluten free. I had been told to eat five small meals a day; but when you work full-time, that is not possible. Finally, I found that eating my breakfast slowly solved both of those problems. Every day I make Cream of Rice and pour about 1/4 of it in a bowl and 3/4 of it in a travel mug, adding vanilla almond milk to each. I eat the bowl of Cream of Rice, one vanilla Kinnikinnick donut, and a cup of warm vanilla almond milk for breakfast. I take the mug of Cream of Rice to work and sip it throughout the morning. Then I try stretching my lunch out throughout the afternoon. I am feeing much better - both physically and emotionally - no more gas, stomach pain, or bloating!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pondy Contributor
pondy
Posted
  • Author

I agree that eatiing frequent small meals throughout the day is easier on the g.i system. I've gotten into this habit recently & have found it helpful too. Now that I am taking massive quantities of antibiotics for the H Pylori, I have severe burning & indigestion... Eating a little snack always remedies the situation.

Thanks for the input!

IrishHeart Veteran
IrishHeart
Posted

Pondy, Thought of you when I saw this and wondered how you are doing???

Open Original Shared Link

GFinDC Veteran
GFinDC
Posted

Mastic gum is the way to go. It kills the h.pylori bacteria.

IrishHeart Veteran
IrishHeart
Posted

Mastic gum is the way to go. It kills the h.pylori bacteria.

One study from 1998 says it does:

Open Original Shared Link

One study from 2003 says it does NOT:

Open Original Shared Link

GFinDC Veteran
GFinDC
Posted

I think I'll go with the first study then. And with my stomach which says yes, it does kill it. My tummie's opinion has a lot of weight in the argument from my personal perspective. :) Thanks for the links

IH.

IrishHeart Veteran
IrishHeart
Posted

I think I'll go with the first study then. And with my stomach which says yes, it does kill it. My tummie's opinion has a lot of weight in the argument from my personal perspective. :) Thanks for the links

IH.

I'm with you. :)

The human body has an amazing capacity to heal--given the right circumstances. I am often told (about my symptoms and my recovery) " well, that's not possible!" and "I have never seen THAT before in my 30- something years!" blah blah blah ....and so, I just listen to my body and my brain now---they are (almost) always right! ;)

Whatever works...works! ;)

pondy Contributor
pondy
Posted
  • Author

Update here...

I am on day 12 of 2 different antibiotics for H Pylori. I've been extremely nauseous - only really able to eat plain bread & water. Thank goodness I only have 2 days of meds to go.

Came down with stomach flu - everyone at work had it. No D, just vomit, abdominal pain... the usual suspects. Today I had D twice - how, I don't know since there is virtually nothing in my stomach.

Enough of the gross stuff! There is good news too!

Burning pain in upper left abdominal quad has gone away! It feels too good to be true. Perhaps these crazy meds with all the crazy side effects are working!!

I follow up with my GI on the 19th.

Best,

Pondy :)

IrishHeart Veteran
IrishHeart
Posted

Antibiotics kill my stomach, too :blink: --sorry, kiddo

Keep the probiotics on board. Drink as much water as you can stand so you do not get dehydrated and hang in there.

That is good news that the awful pain has stopped.

I had a"bug" this week too...ugh! But I fought it off pretty good--could have been worse! ah well, as my Dad used to say "This Too Shall Pass." :)

Geesh, you have had quite a run. Hopefully, you will be right as rain soon.

My best, IH

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.