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Brain Fog?


maisgf

Brain Fog  

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maisgf Newbie

Between myself and my family, we have a variety of problems that may be called brain fog. I'm trying to figure it all out. I'm self diagnosed because more then one Canadian doctor has said, "If you feel better without gluten, don't eat it."

In your experience, is brain fog due to gluten:

A) a wispy cloud that moves in when glutened

B) a growing storm that turns into a headache and/or migrane

C) a short term memory problem that is constant

D) a barrier that disables brain function and is seen as a learning disability

E) all of the above

F) a combination of the above

G) other, please explain

Thanks!


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Aly1 Contributor

It waxes and wanes but at its worst I can barely focus on reading a sentence and can't remember what happened an hour ago. It's just awful.

BabsV Enthusiast

For me it is a combination of "a wispy cloud that moves in when glutened" and "a short term memory problem that is constant" -- both of these symptoms fade away once I'm off gluten. When I was at my worst the couple of months before diagnosis I had absolutely no recollection of lots of things that were said to me. Scary to look back at that time (and it was only a few months ago!)

GottaSki Mentor

All of the above, except learning disabiliy (felt like I had learning disability, but no one saw me that way as I'm in my 40's) ~ mine was very severe and turns out was caused by than more than gluten. I was gluten free for over two years before I started elimination diet that revealed another 10 items causing problems.

Good news...it's been 4 months and my memory is returning very quickly now. It's a reverse of how the fog got worse over 10 years...I now have all my early memories and those of my children's early years...hoping to get some of the foggy years back too!

Skylark Collaborator

I use different words. It feels like someone replaced my brains with cotton and I can't think straight or remember anything.

domesticactivist Collaborator

I forget what I'm doing or thinking from one minute to the next. I can't put thoughts together or make sense of things. My son can't read when glutened ( he was severely 'dyslexic' before going gluten-free - went from barely kindy reading at age 10 to beyond grade level in 3 months!) I get very slow and miss details. The kids totally lose focus/exhibit ADD.

I do get severe migraine auras and sometimes migraines but that is separate from the brain fog. I also get verbal aphasia but I think of that as separate, too.

  • 3 months later...
grodeylocks Apprentice

Is it normal to feel like you're spaced out, feeling like you're living in a constant dream, almost like you are super stoned. I've felt like this constantly for over a year and have recently gone gluten free 3 months ago as I have been getting rashes that look like dermatitis herpetiformis. It seems a lot of my issues are lessened in intensity since this switch, but my question is is this a normal feeling for people with this disease and how long did it take to resolve?


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      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
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    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
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