Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can A Person Have Malabsorption/weight Loss Without Diarrhea?


breakaway

Recommended Posts

breakaway Newbie

It seems that most people with Celiacs have diarrhea. I was wondering because I don't really have diarrhea...and yet I mysteriously lost 20 lbs and I used to get lots of weird symptoms that seemed related to food. If anything, I actually get constipated about once a week.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It seems that most people with Celiacs have diarrhea. I was wondering because I don't really have diarrhea...and yet I mysteriously lost 20 lbs and I used to get lots of weird symptoms that seemed related to food. If anything, I actually get constipated about once a week.

Thanks

While diarrhea predominates the symptoms, constipation runs a close second. And some people alternate between the two. It is not necessary to have diarrhea to suffer from malabsorption; in fact, many people have silent celiac where they suffer no self-reported symptoms. So do not be surprised that you can lose weight without having diarrhea. Do be aware though that with food malabsorption and weight loss you will not be getting the essential nutrients you need.

I see that your endoscopy was negative. Did you have positive celiac blood testing? Or are you left in no-man's land with negative everything? From your previous topic you asked a question - I am not sure if this is the answer, but you can have a pill-cam test where you actually swallow a mini-cam and it takes pictures throughtout your digestive tract, and then is recovered at the end. But a doctor may not be willing to order that if your other testing has been negative.

Some of us will never pass the tests, yet are non-celiac gluten intolerant with many of the same symptoms and complaints as celiacs. We also need a gluten free diet. We just don't have doctors telling us (well most of us don't) that that is what we should do. We have to take the initiative ourselves.

burdee Enthusiast

It seems that most people with Celiacs have diarrhea. I was wondering because I don't really have diarrhea...and yet I mysteriously lost 20 lbs and I used to get lots of weird symptoms that seemed related to food. If anything, I actually get constipated about once a week.

Thanks

Some celiacs (including me) had constipation, rather than diarrhea, as their chronic symptom. I also had cramping pain and bloating. 4 years after I was dx'd with celiac, I was dx'd w/ Hashimoto's hypothyroidism, which commonly occurs among people w/ gluten intolerance. Because my doctor rigidly used the classic profile for celiac (diarrhea, short, thin and fatigued), she dismissed my last 3 symptoms, because I didn't have diarrhea. Hashimoto's often causes constipation and weight gain, because it slows metabolism. So the same doc dismissed my other Hashimoto's symptoms, because I didn't have a weight problem (I was underweight because of celiac disease). Symptoms of one disease masked the other disease. SIGH So I learned that you don't need ALL the classic symptoms to have a disease like celiac disease or Hashimoto's thyroiditis. I wonder how long doctors will continue to hold rigid views of (and profiles for) various autoimmune diseases.

So you could have celiac disease even w/o diarrhea or other 'classic' symptoms.

adab8ca Enthusiast

I had neither diarrhea NOR constipation but had maladsoprtion AND weight loss (30 pounds in 5 months)...That was a big part of diagnosis, because I didn't have THOSE symptoms.

ndw3363 Contributor

I was the same way - I was losing weight so fast (and I DON'T have the weight to lose). All my tests came back "normal" or negative. But once I cut out gluten (and most carbs), started eating better, and religiously taking my supplements, the weight started to come back. I never really had a lot of digestive trouble - mostly just bloating and gas. But I had classic neurological symptoms - I can tell almost instantly if I've been glutened because the headache I get from it is unlike any other that I've had. A couple days later, I will be angry and anxious.

mommida Enthusiast

Yes a person can have a nutritional defiency without having "D".

Katrala Contributor

I didn't have diarrhea but lost 70 pounds over a 9 month period. Constipation was more common for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



health nut Newbie

I had lost weight years ago (probably when I first developed celiac, although I just got diagnosed last summer) but was then stuck at a very thin weight and couldn't gain a pound to save my life. I was starving all the time and ate like 4000+ calories a day, but did not have any bowel issues. When I finally had an endoscopy it showed complete villous atrophy so I was clearly malabsorbing, but no diarrhea. The portion of the GI tract that is not damaged does have an amazing way of compensating (to an extent) for the damaged portion by taking on more absorbtion capabilities- which is also why many people diagnosed with celiac can also be overweight, when you would assume they would all be underweight.

BabsV Enthusiast

I had neither C or D but loosing 20+ lbs in less than a month is what finally got my doctors worried and got them to move away from the "it's all in her head" diagnosis!

beebs Enthusiast

I lost weight without D as well. And like the above posters no one would consider celiac because of it even though my mother was diagnosed :angry:

And now I don't lost weight anymore - I put it on instead - doh! :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    2. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    3. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    4. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    5. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.