Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet Another "gluten Or Sickness?" Thread


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

Okay, here's the scoop. On Sunday I was at a church potluck with my boyfriend and he brought me some injera with veggies on top. He swore up and down that the injera (Ethiopian flatbread) was made from teff only, which is gluten-free. It looked like teff and the girl who made it was there, so I believe it. However, it was sitting with all the other injera, which looked like they had wheat in. So I said I couldn't eat it. Then he asked about the other injera and told me it was made from rice, so I ate the teff stuff... felt fine for the rest of that day and the next.

48 hours later, almost exactly, I come down with a fever, sore throat, aching muscles, pounding headache, throbbing eyes, chills, and the lot. No resperatory problems or excess mucus or coughing. Just a whole-body ache and very sensitive skin that feels like fever. (Unfortunately, I don't have a thermometer, so I couldn't check my temp when it was at its worst, but the important thing is it FEELS like a fever.)

I haven't gotten sick with a fever in years and years. I don't think I've been exposed to any super sick people.

Boyfriend said it was rice, but I think it's possible they said self-rising flour and he heard rice when it's actually wheat.

Please help. Could it be gluten? If so, I'm pissed because if my reaction takes 48 hours, boyfriend is not going to believe me that it's gluten. He doesn't take my celiac seriously enough as it is. He gave up drinking beer for me (if he wants to kiss me) and will wash out his mouth after eating bread or whatever, and he respects me when I say, "no, I won't eat that", but he always makes little comments like, don't be that way, as if it's just all in my head.

I feel absolutely terrible right now. my muscles are all just like ARGH. my lymph nodes are sore to the touch, swallowing hurts, I'm at work right now and I can't concentrate...

okay, rant over. infection or gluten? what do y'all think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

It sounds like you have the flu or a virus or something, you tick every box if you know what I mean? Aching, sensitive skin, fever - all at the same time. Its influenza or something or a virus I reckon!

Strawberry-Jam Enthusiast

I can't help but think it's gluten though, since one of my main gluten/casein symptoms is horrible headaches and muscle aches?

beebs Enthusiast

Give it another couple of days - either way there isn't much you can do - but if you still feel bad in the next few days- like fluey then you probably have your answer ya know?

Strawberry-Jam Enthusiast

true enough. GERD is a huge gluten symptom for me and I'm curious why it's missing and then I remember that I'm not really eating anything right now... just liquids today, very little yesterday.

I keep seeing people say that gluten makes them feel like they have the flu. I don't know what my gluten symptoms are because I strongly suspect I have a delayed reaction (even though my reaction to soya happens within hours). Why does this have to be so confusing?

UKGail Rookie

Sorry, but I am with Strawberry Jam. This is exactly how I feel after exposure to gluten. My main, and first, symptoms are extreme fatigue, migraine and joint/muscle aches, plus my body thermometer seems to go dodgy for a day or two. However my reaction is fast, and gastro symptoms follow after 24 hrs (and are quite mild by the standards of this board).

Strawberry, I would trust your instincts, and keep observing your reactions to possible/probable ingestion or cross-contamination. This is what I am doing, as I am still quite new to this. Maybe we are both barking up the wrong tree? By the way, I haven't had a virus in 5 months since going gluten free, despite working in a school, having school-age children bringing all manner of nasty bugs home, and a husband who had a stinking cold over Christmas. I used to suffer regularly, particularly in winter.

Strawberry-Jam Enthusiast

yeah, me too. I used to get fever-sick at LEAST twice a year, if not more. I also had a chronic winter cough. After celiac, no more fevers, no more sicknesses. Until now.

I was sick with a sinus infection about a month ago, which I did not attribute to gluten, as it was pretty clear that it was some bug I caught, prolly from a coworker.

One of these days I need to just, when I'm feeling healthy, sit down and eat a wheat biscuit or something. For science.

interestingly enough, I'm not having gastro symptoms at the moment, except for extremely smelly gas yesterday and the day before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

interestingly enough, I'm not having gastro symptoms at the moment, except for extremely smelly gas yesterday and the day before.

It may not be the case for you but for me it takes 3 to 4 days for the D to hit. Until you mentioned this I was also thinking flu but the other symptoms you are describing also hit me before the D sets in.

One thing you may want to do is pick up a cheap thermometer. I will feel like I have a fever, hot one minute, cold the next but when I take my temp it will be normal. Don't know if that will be the case for you.

We all seem to have a symptom progression that may be different from the symptom progression of others but it does take some time and a few accidental glutenings to figure out what our progression may be.

Whether it is the flu or a glutening I hope you are feeling better soon.

Strawberry-Jam Enthusiast

I'll drop by a chemist and get a thermometer on my way home today.

I only ever have had this sensitive skin when I have a fever of 99 + (my normal temp is around 97).

if I do not have a fever, then it must be gluten. if I do have a fever, then it could be either way.

Strawberry-Jam Enthusiast

update: boyfriend still swears up and down that it was made from rice. they told him in Amharic and not English like I thought so it's unlikely he misheard. There is a possibility they used some other flour as well, but I really don't know, and boyfriend says they didn't. There was other bread on the table too though. the CC risk is still considerable, but not as clear-cut as I thought it was is all.

Bubba's Mom Enthusiast

Well..you don't know if the kitchen where the bread was made had gluten cc? It's possible the bread wasn't made with gluten ingredients..but could have had a bit of contamination from the counter where it was made..or the pans?

It could also be a bug? If you were with a big group of people..there's always a chance that you could have been exposed to something?

I've had sweats and alternating chills, and I'm sure I have a fever. When I take my temp it's usually around 97*, which is normal for me. Get yourself a thermometer. They aren't too expensive and a good thing to have.

I hope this passes quickly and you feel better.

Strawberry-Jam Enthusiast

temp is 99.8.

Katrala Contributor

Fever and sore throat?

And you were at a party with other people who could have touched food?

Strep throat?

Strawberry-Jam Enthusiast

Temperature is now 101.8.

It's definitely not gluten. I have some kind of sickness, like the flu. dang my body hurts right now...

beebs Enthusiast

No good. I hope you feel better soon. Flu sucks! :(

UKGail Rookie

Get well soon. I guess at least you know now!

Strawberry-Jam Enthusiast

thanks for all your well-wishes. boyfriend brought me some tylenol and vitamin C, and I have a chicken boiling right now so I can have some chicken stock to drink (maybe I'll put rice noodles in). I had to call in to work this morning and I HATE that... hopefully the tylenol will allow me to go to work tomorrow (I only have to work for 4 hours) and then I'll have a nice weekend to recuperate.

Strawberry-Jam Enthusiast

haha, my fever went to 102.5 this morning. doctor said I need one week of bed rest.

I have one more question. the doc gave me antibiotics. usually when they give them to me, I don't take them, since they're over-prescribed, but in this case it is to prevent pneumonia, which I've had 3-5 times as a youngster (I forget) and DO NOT want again. So I'm taking them.

Should I take probiotics at the same time with the antibiotics, or should I wait until after the full course and then take them??

lynnelise Apprentice

haha, my fever went to 102.5 this morning. doctor said I need one week of bed rest.

I have one more question. the doc gave me antibiotics. usually when they give them to me, I don't take them, since they're over-prescribed, but in this case it is to prevent pneumonia, which I've had 3-5 times as a youngster (I forget) and DO NOT want again. So I'm taking them.

Should I take probiotics at the same time with the antibiotics, or should I wait until after the full course and then take them??

My doctor always advises I take it with the antibiotic!

alex11602 Collaborator

haha, my fever went to 102.5 this morning. doctor said I need one week of bed rest.

I have one more question. the doc gave me antibiotics. usually when they give them to me, I don't take them, since they're over-prescribed, but in this case it is to prevent pneumonia, which I've had 3-5 times as a youngster (I forget) and DO NOT want again. So I'm taking them.

Should I take probiotics at the same time with the antibiotics, or should I wait until after the full course and then take them??

With since the antibiotic will be killing off all the bacteria, you need to add back in good bacteria. Feel better!

Roda Rising Star

Make sure you don't take the probiotic at the same time as the antibiotic otherwise it will just kill it off too. Try to take it at least 4 hrs before or after you take the antibiotic if you can.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.