Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nervous About Endoscopy On My Daughter...looking For Support


jenn42

Recommended Posts

jenn42 Explorer

Just got back from the doc. Scheduled Endoscopy with biopsy on my daughter, she's 11. Is this procedure pretty simple? If anyone has any comforting words please share.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

We had a wonderful experience. Our daughter was put to sleep with anesthia mask first so the pain and anguish of a IV was not there. She recovered immediately, enjoyed a popsicle had a light lunch in 2 hours and a minor sore throat the following day with no other problems.

It was a thousand times harder on me and my husband than it was on her.

My DD however was 6, and we did not tell her about it until we were driving to it. We had just said it was a hospital check up with a camera they were going to look down her throat with. We did not mention anything else till we got there. It worked out beautifully for us.

StephanieL Enthusiast

It was WAY harder emotionally on us than my DS. He was 3 at the time. Call the hospital and talk to the Child Life specialist. They have ideas that may help. We do the "A day in advance for each year they are old" so we started talking about it with the help of a coloring book from the hospital. It helped DS get use to the idea he was going in and showed pictures of the equipment which I know helped him. I am sure your DD being older has seen much of the equipment.

Hugs. I have said it before that THESE moments are the ones you aren't prepared for as a parent. We all hear about sleepless nights and colds but this is the tough stuff. I try and remind myself that while we have several specialist, we DON'T have an oncologist or neurologist and for that I am grateful!

Cara in Boston Enthusiast

My son had one at age 6 and had such a good time, his older brother was jealous. We were at Children's Hospital so they were all just fantastic. He was impressed with the video game selection. Also, he got to pick whatever "flavor" he wanted for the gas. He was up and about within an hour and was perfectly fine the rest of the day.

Older son (9) finally got his chance a few months later and he too LOVED the experience. He recovered very quickly also.

I had one as well and do not remember it at all. Zero. I was kind of groggy for the remainder of the day, don't remember leaving hospital with my husband, don't really recall eating lunch, etc. etc. I wasn't sore or anything, just really out of it for several hours.

I made my husband take him because I was so nervous and didn't want to see him unconscious in a hospital bed. He had stitches when he was a baby and I just about passed out when I saw him in the hospital robe in a big hospital bed, so I knew it would be best if someone else went with him. It is much harder on the moms and dads.

xjrosie Apprentice

Mine had it at ages 14 and 9 (two of my kids). It was really easy. Same thing here - anesthesia mask to make them drowsy, then the twilight meds go through the IV. The nurse (I had the same nurse for both kids) had them laughing so they didn't notice the IV much.

The hardest part is waiting for them to finish the actual procedure. It's the longest 15 minutes, I swear. From beginning to end, I would say we were in the hospital for about an hour.

kb27 Apprentice

My 8 year old just had it done. We were actually at the hospital about 6 hours, but it all went fine. They checked him into the Children's Hospital and gave him a room there. Then he went from there down to the surgery waiting area when it was time for his procedure. Same as others mentioned - he got gas to make him drowsy and then the IV went in afterwards. After he woke up, he got to go back to his room. They kept him there until he was clearly awake and had eaten and kept it down and was ready to go home.

It was pretty easy on him, and he actually looked forward to it (mostly because he got to miss a day of school).

Darn210 Enthusiast

It was easy. My daughter was 6. She was nervous but the staff was excellent at putting her at ease. They let us go back to the procedure room so we were there until she went to sleep (via gas). That was standard procedure with this (pediatric) GI but I don't think that's too common . . . you can always ask.

We were warned by the nurse not to wake her up, let her sleep off the anesthesia. She said if you wake them up "early" they'll be grumpy and have a pretty bad headache. My daughter roused a little, did a whiney-grumble-cry, we told her she was done, we were there and she went back to sleep. She got her choice of a snack when she woke up. She was on her way after she got her bearings and showed the snack was going to stay down. We could hear the nurse give the exact same instructions to the people next to us but they were in a hurry to leave. About 5 minutes after the nurse left, they woke up their daughter and she cried until they left the building. Well, I assume she cried after she left the building, too.

They also gave my daughter a little stuffed animal prior to going in and made sure she had it when she was leaving. It was a nice touch. If your daughter has a favorite stuffed animal, you might want to bring it along.

The doc also gave her a copy of the pictures he took of her "guts" :P She loved taking it to school to "gross out" her class. (I thought the pics were pretty interesting and not gross looking at all but I wasn't 6 at the time :lol: )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

My daughter has been through it at least 3 times.

Pretty much the same as previous posters. Follow directions. No food after 12 midnite the night before. (I heard through the curtains a few times. The gum chewer had the procedure. The infant the mom fed a bottle to had to induce vommitting for the procedure.)

You can bring things from home that make your child happy. They do give a stuffed animal depending on the child's age. Popsicles, juice, and soda pop are offered in recovery. You can check the products for allergen concerns the day before. One time we weren't sure and brought our own. They do say there can be chance of some trapped gas in GI track. :blink:

They might eat light afterward, but my daughter wanted P.F. Chang's spicey chicken :rolleyes: needless to say we made plans for a future PF Changs visit.

The procedures usually go youngest to oldest. See if you can take the rest of the day to rest up. Like you are going to sleep the night before?

It is like 15 to 20 minutes tops. You should get scope pictures on the spot and be told when the pathology report should be in.

jenn42 Explorer

Thank you to everyone! I feel better already! It's nice to have a place to go like this. The support is incredible!

divamomma Enthusiast

My daughter was 4. We told her she was going for a tummy test so they could look for owies with their camera. We told her she would go to sleep. She had the IV put in and then was given the sedation drugs intravenously. I was with her in the OR while she got the IV and when they gave her the meds. She went to sleep VERY quickly. Watching that was the hardest part. Her eyes rolled around and kind of backwards and she put her hands up a few times but they put them back down for her. It was literally like 6 seconds. I started crying, knew she was out and I left. She was in the OR only about 15-20 minutes. Not long at all. Like the others said she was a bit tired after and had a sore throat later that evening but that's it. Good luck!

faithforlife Apprentice

My son cried when he had to put the hospital gown on. That was the worst part! :(

jenn42 Explorer

My DD had her Endoscopy today and it went perfect! I was so nervous and it was absolutely nothing! She did great! They gave her a teddy bear and a HUGE orange popsicle.

The unknown is so scary! Thanks to everyone for your supportive words.

Ninja Contributor

That's great!!

Praying for some answers for you and your DD. :)

~Laura

xjrosie Apprentice

I'm glad it went well. As parents I think we tend to work ourselves up more than necessary. It's a protective feature built in to all of us :)

jenn42 Explorer

Thank you everyone. This whole thing gets easier (emotionally) the more information I get, and with the help of others. Thanks so much!

mamaupupup Contributor

We are in your shoes too! We have twins with endoscopies scheduled for 3/20. I'm nervous too! The girls are excited to get pictures. One of the girls wanted to make sure that the string the camera is attached to can't break (who would want an errant camera floating around in them???!!!). I love the guideline of telling them a day in advance for each day they are old. Smart. I'm adding that to my list!

Good luck and thanks to all!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.