Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Couldn't Tolerate Coffe But Now I Can?


Poppi

Recommended Posts

Poppi Enthusiast

I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.

A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.

This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.

Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?

Anyway, I'm just curious what the experts say.

For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.

Edited because caffienated fingers can't spell.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Well congratulations!

I'm very happy for you!

I never gave up the coffee.

But yeah, I have read that you can get a gluten-like reaction from coffee..or some people have.

I skipped right over that part though, and probably made myself another cup of coffee.

I hope you can keep enjoying it. :)

IrishHeart Veteran

A ravaged gut can't tolerate MOST things, including coffee. (My list of "nopes" was very long, and it has become shorter). I added back coffee last month, but decaf. Caffeine makes my heart race too much.

So, YES, I believe you are healing your gut and therefore, able to enjoy coffee once more! :)

Cheers!

Skylark Collaborator

I had trouble with coffee when my stomach was all irritated from gluten. Now it's fine. It would have helped tremendously 20 years ago if my stupid doctor had told me to go off wheat rather than coffee when he diagnosed me with gastritis. :lol:

GFinDC Veteran

You probably will need to be on it for a couple weeks to find out if it affects you. Some things don't happen right away but build up over time. But you may be just fine too. We are all individuals and react as individuals. Personally I can't do caffeine of any kind but I never had the GI symptoms from it that you described. So we is different.

Kjas Newbie

I had trouble with coffee and tea.

I've always been somewhat sensitive to caffeine but until my gut was screwed up I was never intolerant of it. I can handle a good quality decaf with both coffee and tea now, although I keep it to once a month. I'm still hoping I will be able to heal completely and go back to coffee even if it's on a one day a week basis at some stage.

dilettantesteph Collaborator

Coffee is hard on the stomach. It is probably because you are healed that you can drink it again. I gave it up at first and now can drink it too. It does bother me a bit when I am glutened, but I drink it anyway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.

A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.

This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.

Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?

Anyway, I'm just curious what the experts say.

For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.

Edited because caffienated fingers can't spell.

Yeah!

:D

GFinDC Veteran

Well, I opened my mouth and stuck my foot in again. I ended up drinking caffeine last night and survived. It doesn't usually cause me a problem unless I drink it for a week or so straight. Here's what I did, some of you may like this.

So I have been drinking herbal teas (caffeine free) for a while now. I took to keeping a kettle of hot water on the stove this winter. I got the idea of adding some cinnamon to the kettle water since they say it is good for blood sugar control. And some ginger because it can help digestion. Then yesterday I got the bright idea of adding some powdered Hershey's cocoa. Just a couple teaspoons. So I put a little stevia in my tea cup, a mint tea bag, and add the chocolate - ginger - cinnamon hot water from the kettle. Dang tasty stuff people! Not as rich as regular cocoa made with dairy, but I haven't had that in years due to avoiding milk. But tasty-tasty.

Then after a kettle of this tea and a refill noticed I was feeling kinda wired. Feeling better than I had in a while in fact. More energy. More alert. That caffeeiney feeling you get. Thought about it and remembered chocolate is supposed to have some caffeine in it.

So found this wise geek page talking about it. There is a little caffeine in chocolate, but much less then coffee or tea. So this might be something to try for people who like that sort of chocolatey, dairy-free, low caffeine hot drink stuff. You know who you are, no need to spell out names. I did get pretty buzzed before I realized what was happening so it is not without affect. Took me a while to get to sleep.

The cinnamon does leave a little grit in the bottom of the tea cup but I don't mind that . It is just ground up tree bark after all.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.