Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Eat!? I'm Going Crazy :(

CeliacFashionista

Recommended Posts

CeliacFashionista Apprentice
CeliacFashionista
Posted

I have been okay with eating gluten free but now I am trying to go on a low iodine diet to cure my DH. I need some type of candy that I CAN eat because this is driving me crazy!! I am almost to the point of suicide because of this disease and I don't think I can hold on much longer if things don't get better. Please someone help!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kim69 Apprentice
Kim69
Posted

Whereabouts in the world are you? It looks like you are from USA from your use of the word candy. I have never heard of a low iodine diet do I googled it (and DH). I hope the lid helps you. I am sorry that you have to be on this diet. I found this website that says you can have dark chocolate, marshmallow, hard candy, jellies (tho according to the site I found no red dye is allowed), Popsicles. Could you make or buy a vegan gluten-free cake? I have made chocolate cake before that is gluten-free and vegan. The egg substitute powder would need checking. But apparently u can have cocoa at least :)

rosetapper23 Explorer
rosetapper23
Posted

You can eat all See's candies except those that have hard frosting on them (like Easter eggs). That means everything in the display case is fine to eat. My favorite is the Butterscotch Square. Nestle's chocolate chips are gluten free as are Reese's Peanut Butter Cups, Hershey Bars, and a lot of Trader Joe's chocolates. Actually, there are quite a few candies we can eat. Do you like ice cream? Haagen Dazs (sp?), Breyer's, Dreyer's, Double Rainbow, Ben and Jerry's, and Baskin-Robbins are gluten free as long as they don't list wheat in them (such as Cookies and Cream).

If you're following a low-iodine diet, you only have to avoid iodized salt, salty snacks, seafood, dairy, and asparagus. Otherwise, you can eat practically everything else that is gluten free. However, I would avoid most processed foods. I suffer from DH, and candy has never really been an aggravating food. If you're feeling practically suicidal, I think chocolate is really needed in your life (lots of calming chemicals).

GottaSki Mentor
GottaSki
Posted

I am not familiar with the low iodine diet. Others have made suggestions for sweet treats, hopefully you can purchase some things to help get you through the rough patches of changing your diet.

Do you have someone to talk to regarding how tough your dietary changes / health problems have been on you which led to the statement about suicide? Sibling? Parent? Friend? Pastor/Priest? Counselor/Therapist?

If you are having suicidal thoughts, please, please talk to someone.

Metoo Enthusiast
Metoo
Posted

My undiagnosed DH drove me nuts!

I didn't go totally iodine free, but I did things like strictly avoided eggs, and limited dairy. It definitly seemed to help, but it still took me over 5 weeks to get mine to stop having my skin peel off and hurt!

I also switched to all gluten free soaps, lotions and shampoos.

My 'gluten' reactions in terms of stomach stuff, or fatigue is nothing compared to what the little patch of skin on my hand does...it litterally drove me nuts and just continued to be painful and peel off skin down to raw flesh for over 5 weeks the last time I got glutened. The skin alone is what keeps me from eating gluten. I am terrified, nor do I know exactly how much gluten would make me break out again.

lovegrov Collaborator
lovegrov
Posted

If you truly have DH and it's truly driving you nuts, consider dapsone for a while (if you haven't tried it already). I know that the side effect warnings scare some but it's better than suicide. I took it for more than 20 years when DH was my only symptom and I didn't know about celiac.

richard

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

Thank you Guys so much for all your help! I was sent to the ER last because my eye has swollen up and they gave me prednisone to help with the swelling. Hopefully it will help the Dh as well. It sucks because I get the worst of it on my face and most doctors believe its just really bad cystic acne and aren't willing to treat it as anything else. Is prednisone unsafe to take for emergencies? I don't break out in DH daily but the scars are what bother me most. I really want to eat chocolate but I think dairy is the biggest trigger. Maybe I will try dark chocolate to see if thats better. Thank you again! I don't know what I would do without this forum.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748
    Bob Madden
    Newest Member
    Bob Madden
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.