Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Supplements To Help Heal?


Mom-of-Two

Recommended Posts

Mom-of-Two Contributor

I have been gluten-free for almost 6 weeks, while my GI symptoms have improved (my issues were bloating, gas, cramps) I have not regained any energy and am still fatigued. I have not lost a single pound, despite changing my entire diet and lifestyle- I am not eating gluten-free grains or packaged foods either, only whole foods with meats, veggies and fruits. I was not deficient in iron, and my bloodwork was all normal aside from my celiac panel of course. I was not tested for vitamin D or B12 but my specialist did not believe I was having any malabsorption issues. I think my gut just needs time to repair, but I thought you all could help me with what supplements I should be taking daily to help me heal. I hate taking huge multivitamins, I take D3 and was considering adding a good quality B complex and omega 3 supplement, I do take probiotics. What do you all recommend?

I had a routine TSH test with that bloodwork, my specialist said it may be a good idea to have other thyroid tests done, due to fatigue and not being able to lose weight despite my HUGE diet changes.

While I know I am healing without gluten, I just don't FEEL the positive changes I thought I would- I KNOW it is still early. I was reading about how important supplements are to heal and improve mood and energy when you are healing from celiac, so I want to be vigilant about taking what I need daily.

We also just bought an elliptical machine and have started riding bikes with the kids :) so I am hopeful those things will help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

B complex and omega-3 are really helpful for me. The other one I would consider since you suspect thyroid trouble is a selenium supplement with 100% of the RDA of selenium. Thyroid peroxidase is a selenium enzyme and if you are selenium deficient it will make you hypothyroid.

I'm glad your Dr. is following up on other thyroid tests.

IrishHeart Veteran

Aside from probiotics, which IMHO are essential, I believe good EFAs (which Skylark has mentioned) and a good multivitamin with minerals should do it. If you hate big capsules, how about liquid form? :) Many celiacs seem to need a boost in Vit D3.

It is very wise to have your thryoid checked, but I would also suggest that while it is great that you want to exercise, be kind to your body at first ---as it is healing and it has been malnourished.

It may take awhile for the fatigue to resolve, but if it does not, I would also suggest having your Folate level checked. Celiacs are often folate deficient and it is one test that doctors overlook while doing blood work. (I mention it because it was what kept me flagging for months, despite being treated with B-12 and D supplements--being deficient in both of those. I finally asked for that test--and that was it! ;) )

Ease into your exercise routine, drink water and relax and know you are healing! Best wishes to you.

Mom-of-Two Contributor

I have used Nordic Naturals Ultimate Omega in the past, is this a good amount of omegas for me to add? I read someplace that those with celiac should have at least 1000mg of each DHA and EPA, but that is a big amount in a supplement. I took between 4000-5000 IU of D3 all winter, I have some multivitamins that I do not have trouble swallowing, they are liquid softgels by Nature Made, for women. They have 100% of B vitamins, I just didn't know if I needed a "better" vitamin or extra B complex on top of the multi.

I was looking at the Raw Vitamin Code B complex, I took their multi in the past but wasn't impressed for the price-- however, I am a big believer in food rather than synthetic vitamins.

Probiotics: I have been using RenewLife for awhile now, been using the adult formula ultimate flora, they are almost gone, since finding out about the celiac, curious if I should try their critical formulas, which are 50 billion. I also have Culturelle in the house since I give it to my kids.

Do I need fiber? My hubby thinks I should be taking psyllium fiber.

IrishHeart Veteran

They all sound fine to me. I have used both Custom Probiotics 6-strain and Culturelle. They work well.

Unless you have specific B and D vitamin defs, there is no need to mega-dose those! People make this mistake and then wonder why they feel like crap or have "tingling" in their extremities. My doc says it is likely many are toxic from over-supplementing. I had wicked burning sensations for so long and he told me to back off the B vits as my Folate and B-12 levels had come up. And it stopped.

Maybe Sky has a few thoughts?

RE: psyllium fiber. Honestly, if you get enough fibrous veggies and whole grains in your diet, and are not experiencing MAJOR constipation, why bother? Unless someone takes in enough water on a daily basis to absorb it, psyllium can actually clog the bowels and make things worse. This is what I have read and believe me, I know more about the GI tract and efficiently running bowels than I ever cared to. :rolleyes: I did not plan to be a "poop specialist" :lol:

Supplements can be VERY useful, IF THERE IS A DEFICIENCY, but in the long run, healing the gut and getting nutrients from food is the key.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,031
    • Most Online (within 30 mins)
      7,748

    Beverly Hickman
    Newest Member
    Beverly Hickman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      That "gut ache" after drinking may be more than alcohol not agreeing with a gut that's trying to heal. Alcohol prevents absorption of vitamins, and actually breaks thiamine Vitamin B 1 so it cannot function.  Thiamine deficiency can cause Gastrointestinal Beriberi, with symptoms of digestive upsets and abdominal pain, nausea, vomiting, anorexia, and can cause neurological problems and problems with thinking and judgement.  I've experienced Gastrointestinal Beriberi myself.  Thiamine supplementation is a must, along with the other B vitamins and Vitamin C.   Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pubmed.ncbi.nlm.nih.gov/31543793/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/
    • Suze046
      Yeah I think my body is definitely telling me to lay off the alcohol I just don’t seem to agree with it right now but that might be because my gut is still trying to heal. 
    • Gwen myers
      We are a couple with celiac trying to find a concierge doctor in Palm Beach Gardens/West Palm/ Jupiter area that has knowledge of celiac .  Help!
    • Mettedkny
      Thank you so much for your validation. I completely agree with you that the crackers COULD be the culprit even with very small trace amounts (less than 20ppm) and accumulating over time - I am at the point where I am about to request that my son gets retested to make sure that my "control subject" is still testing perfectly lol. I have a meeting with my celiac disease doc tomorrow and will run the crackers by him to see if he is willing to retest in a few weeks. I have not had any of them for the past 3 weeks so far, so fingers crossed, we can retest and hopefully find out if it is them. And no - I have been scouring EVERYTHING to make sure nothing else has changed. Only use gluten-free lip products and toothpaste so not there either (but very good suggestion). Thank you for validating me. I feel like many are just saying "you are not being gluten-free enough - but I do have a perfect 16 year track record that proves otherwise - so has to be something sneaky.
    • Mettedkny
      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
×
×
  • Create New...